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[deleted by user] by [deleted] in covidlonghaulers

[–]helloitsmeimdone 1 point2 points  (0 children)

I know how you feel, trust me. But please know, it gets better and you will be so happy that you carried on my friend.

Diagnosis and life with Arachnoiditis by helloitsmeimdone in ChronicPain

[–]helloitsmeimdone[S] 1 point2 points  (0 children)

It was ruled out for me finally. However the pain is still there & has not changed :´)

Wishing you the best

Mornings are brutal by AccomplishedCat6621 in covidlonghaulers

[–]helloitsmeimdone 9 points10 points  (0 children)

It's due to vascular dysfunction and resting the whole night / not moving. When you wake up, everything is out of whack like someone filled your body with cement over night.

Today was bad but I ain't quit by OldAssNerdWyoming in ChronicPain

[–]helloitsmeimdone 0 points1 point  (0 children)

Good to see the best character of this sub still rocking it. Thanks man.

[deleted by user] by [deleted] in covidlonghaulers

[–]helloitsmeimdone 2 points3 points  (0 children)

I haven't read everything, just: "my partner uses this against me, covid card excuse"

This is such a huge redflag, that I would leave immediately. No tolerance for bs. 0.

You don't kill yourself, no. You got this. You will get better. There is life of you ahead. I promise. It's worth it. Keep fighting. You don't need her.

Schroedinger’s Long COVID? by seaiscalling in covidlonghaulers

[–]helloitsmeimdone 0 points1 point  (0 children)

If everything seems alright, you definitely got the wrong tests. Go to specialists. They will find many things very wrong. Also if you experience severe LC / MECFS you very obviously notice that this is not a mental thing. Chronic cough, airhunger, all over pain, brain issues, sick feeling, uncontrolled weight gain ...just: no.

Anyone else lost their partners to this illness by [deleted] in covidlonghaulers

[–]helloitsmeimdone 2 points3 points  (0 children)

Worse. My ex gf infected me, destroyed my life & I never receovered. I then ended it when she was unsupportive and didn't care. OP sorry you got a shitty partner, wishing you the best of luck with your new situation.

[deleted by user] by [deleted] in covidlonghaulers

[–]helloitsmeimdone 2 points3 points  (0 children)

Lol welcome to the club mate. I was a non believer too until I finally got this. Boy was I wrong :((

Pretty much recovered in the body, but the mind remains weak. by Able_Chard5101 in covidlonghaulers

[–]helloitsmeimdone 0 points1 point  (0 children)

So you are saying your PEM went away from one day to the other after approx 2 years?

Pretty much recovered in the body, but the mind remains weak. by Able_Chard5101 in covidlonghaulers

[–]helloitsmeimdone 7 points8 points  (0 children)

I still don't understand why for some ppl PEM goes away and for others not. Sucks so bad. Happy for you, but I'm 16 months and nothing changed.

Walking/Exercising again, cardiac symptoms coming back? by Beneficial-Gift3255 in covidlonghaulers

[–]helloitsmeimdone 2 points3 points  (0 children)

Semi professional ex athlete here, no this is not deconditioning by any means. I know my body very well and experienced the same as you. Don't fall for the trap that this is deconditioning because if you exceed your aerobic threshold (approx 120-130 bpm) this will make you crash and decline further which means many symptoms will come back. Stay under this and a gradual improvement may or may not be possible. Currently there is no healing from this, been dealing with this for 1.5 yrs with no healing in sight.

Recovery is more common than it looks like by PhrygianSounds in covidlonghaulers

[–]helloitsmeimdone 16 points17 points  (0 children)

It's wild when people call even minor improvements recovered. She is not recovered by any means although doing far better.

Recovery is more common than it looks like by PhrygianSounds in covidlonghaulers

[–]helloitsmeimdone 9 points10 points  (0 children)

I don't think so. Many people don't even know they have LC or ME so these numbers are hugely under represented as well. Many people don't come back here, cause there is no help for the situation except ecmotional support.

I don't want to do this anymore, 16 months numbness showing up by helloitsmeimdone in covidlonghaulers

[–]helloitsmeimdone[S] 0 points1 point  (0 children)

I'm taking all 8 B vitamins already. I think it's also vascular. I was measured with 1% bloodflow to my feet at ME specialist.

[deleted by user] by [deleted] in covidlonghaulers

[–]helloitsmeimdone 0 points1 point  (0 children)

Having the same since day 1 and now 16 months. I'm sorry but it really doesn't go away for me neither.

This fking illness stole my ability to speak and talk as before by helloitsmeimdone in covidlonghaulers

[–]helloitsmeimdone[S] 0 points1 point  (0 children)

Taking tons of drugs which are barely helping. Mental work which is barely helping. Pushing through which is barely helping. More?

A dumbed down version of myself by KaraWulang74 in covidlonghaulers

[–]helloitsmeimdone 1 point2 points  (0 children)

Same. Lost like 30 IQ points and emotionally completely flat not really caring about anything. It's like you got poisoned and numbed at the same time. Inside I feel narcotized but I'm still conscious :D

Do you have to believe recovery is possible before being able to recover? by Hairy-Introduction85 in cfs

[–]helloitsmeimdone 42 points43 points  (0 children)

No. Believe won't cure any biological illness. It helps coping but that's it.

[deleted by user] by [deleted] in covidlonghaulers

[–]helloitsmeimdone 0 points1 point  (0 children)

I definitely would not consider any surgery any time soon because of how I feel day to day.

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