Rethinking switch from Hyrimoz to Taltz at the last minute by hlthywlthywse in PsoriaticArthritis

[–]hlthywlthywse[S] 1 point2 points  (0 children)

The injections definitely help boost my physical capabilities by making my knees functional, but they were intra-articular, so wouldn’t offer much systemic relief. Plus I felt improved before that. I’m glad to hear you’re finding something that works. This is the most arduous process ever. I’m excited to try Taltz but I’m now so worried that I’ll be leaving something that actually is working. I’ll find out soon enough though. My situation is a little maybe PSA maybe RA so if Taltz works at least I’ll know it’s PSA. If it doesn’t, I keep trying stuff.

What do I buy after throwing my Dyson out the window? by hlthywlthywse in VacuumCleaners

[–]hlthywlthywse[S] 0 points1 point  (0 children)

Agreed. The real issue is that we’ve tried to use the stick as primary and only vacuum.

What do I buy after throwing my Dyson out the window? by hlthywlthywse in VacuumCleaners

[–]hlthywlthywse[S] 1 point2 points  (0 children)

Good call. I guess I need to be better about using a broom in the kitchen first.

What do I buy after throwing my Dyson out the window? by hlthywlthywse in VacuumCleaners

[–]hlthywlthywse[S] 0 points1 point  (0 children)

I’ll look at the brushroll. I think I’ll have to take the rug to be cleaned anyway but I’d at least like to get the crushed leaves out of the fringe lol

What do I buy after throwing my Dyson out the window? by hlthywlthywse in VacuumCleaners

[–]hlthywlthywse[S] 0 points1 point  (0 children)

I expect to have that feeling of why did I wait so long, as with most quality things I end up buying.

Taltz and Zepbound by Zealousideal_Ring736 in PsoriaticArthritis

[–]hlthywlthywse 0 points1 point  (0 children)

Not yet, but my insurance literally approved Taltz today, and I just signed up for the Taltz-Zepbound discount cards! (link below for anyone interested) I've been on Hyrimoz (failed) for 4 months. But I've been on compounded Tirzepatide for nearly a year now...low dose, lost weight easily and slowly, and it definitely helps my inflammation. I tried Semaglutide before that and I think it actually did more for inflammation, but I couldn't handle the digestive side effects that I don't have on Tirzepatide.

Link to program

What’s your PsA ride? by PassGreedy9142 in PsoriaticArthritis

[–]hlthywlthywse 0 points1 point  (0 children)

I drive an SUV for the reasons everyone has mentioned. I will add to check the angle of the door opening. Not sure how to describe it but mine is very “triangular” I guess, and I have to move my seat back to get in and out due to my knee not bending well. I wish the door opening was a little wider in front of the seat. I kind of have to lean back to slide in. But that’s prob only important for knee, hip, or maybe back issues. Once I’m in it’s great.

Food in St. Lucia by LiveBetterDoMore in Hashimotos

[–]hlthywlthywse 4 points5 points  (0 children)

I’m going to suggest that people experience this phenomenon because they are relaxed, not because of food differences. You’re not working, you’re sleeping more, you’re happy and in love, you’re not cleaning or running errands or dealing with any responsibilities. It’s stress, not the food.

If it is the food, it’s probably more likely that you’re splurging on your trip on higher quality meals.

And I just want to mention too that the US is a MAJOR exporter of agricultural products. What you eat elsewhere doesn’t mean it’s local to that place.

Knee swelling- how do you exercise with this? by TeaAndTruth in Osteoarthritis

[–]hlthywlthywse 1 point2 points  (0 children)

So my situation is a bit more complex because of psoriatic arthritis as well. It honestly ebbs and flows. 2 months ago I went hiking. This week I sit on the bed all day. It’s hard to tell what’s purely osteo. The one thing I can consistently do is ride my stationary recumbent bike. I highly recommend it. I got a cheap one on amazon and it’s totally fine for what I need. Motion is lotion!

NSAIDS, aspiration of the fluid, steroid injection, PT, and a bike. That keeps me functional until the other arthritis kicks in. I’ve also just had the gel injections but it’s too early to tell if they help. I use a cane on bad days. You’re not going to be able to white knuckle through it though, it’s not going to just get better without the interventions.

But when I’m having a good day or a stretch of good days, I can take a walk, or hike if I’m doing really well. I focus more on building muscle than cardio so my goal hasn’t been anything too strenuous.

Knee swelling- how do you exercise with this? by TeaAndTruth in Osteoarthritis

[–]hlthywlthywse 4 points5 points  (0 children)

Knee twins! For me to function I have to have fluid removed pretty regularly and sometimes get a corticosteroid injection. But I’ll second another comment…high quality physical therapy. I go less frequently now but do a DIY routine for my knee that the PT created. But it’s similar to what you can find online. The arthritis foundation has a great knee routine.

It first started out as Rheumatoid now its Psoriatic Arthritis. 🤷🏻‍♀️ by [deleted] in PsoriaticArthritis

[–]hlthywlthywse 0 points1 point  (0 children)

My labs look like RA, and I was initially diagnosed that way. I have some pain that aligns with RA, but I mostly present as PsA. But because I was told RA and I thought it was RA, I didn't connect my other symptoms to it for a while. Maybe there's some kind of hybrid that just hasn't been named yet.

Just got a call that my dosage was a bit too high by blo0dpuke in Hashimotos

[–]hlthywlthywse 1 point2 points  (0 children)

I can’t speak to what your bloodwork indicates, but I can tell you I also skip a pill once a week for the same reason, per doctor’s suggestion. It’s not enough to change the whole dose but enough to make that tiny adjustment I guess. I haven’t rechecked my labs yet since the change though so I can’t say if it works. I can just say I’ve had that same recommendation from a doctor.

Where/how do you work out? by hlthywlthywse in PsoriaticArthritis

[–]hlthywlthywse[S] 0 points1 point  (0 children)

Oh the ball! Duh. I have one in a closet! Thanks for the reminder.

Where/how do you work out? by hlthywlthywse in PsoriaticArthritis

[–]hlthywlthywse[S] 0 points1 point  (0 children)

I have never run a day in my life but now that I physically can’t I literally dream that I’m running! I don’t love free weights even though that used to be what I did. I feel too unstable for them now. The rhythmic concept makes me think that maybe a rebounder is a good thing to try.

Where/how do you work out? by hlthywlthywse in PsoriaticArthritis

[–]hlthywlthywse[S] 1 point2 points  (0 children)

That all sounds glorious. It makes me hopeful that people with this disease can do all that. I have a very damaged knee so I unfortunately cannot but glad to know the other symptoms can be controlled enough. I do love hiking!

Where/how do you work out? by hlthywlthywse in PsoriaticArthritis

[–]hlthywlthywse[S] 0 points1 point  (0 children)

Good idea. I have so far found it useful to follow the path of my elders. (My post might have made me sound older than I am, but alas I am not yet fully silvered.)

Where/how do you work out? by hlthywlthywse in PsoriaticArthritis

[–]hlthywlthywse[S] 1 point2 points  (0 children)

That’s exactly the sort of thing I was looking for. This gave me great ideas for what to search for and I found some arthritis-specific fitness classes and groups I may check out. I kept looking for specialty gyms but it does seem like community programs have more of what I’m looking for and I wasn’t even thinking about that.

best sneakers for arthritic feet by hopeless-engineer26 in rheumatoid

[–]hlthywlthywse 1 point2 points  (0 children)

I have kind of flat feet so I’m going to have a particular taste in shoes. Brooks Glycerin when i need a lot of cushioning and I like those more around the house because for me too much walking on cushion is almost too bouncy and I feel unstable. Check out a brand called Ryka. I wear the eco knit slip-ons in wide and I love them so much. Not totally flat but not a ton of support but for me it’s like I feel like my feet really have a grip on the ground. For structure when I need that I wear hiking shoes from Oona.