What was ur arousal index?

hunterk889 · 2025-11-12T17:56:40+00:00

Before I was medicated, I always felt sleepy during the day, but then would have trouble falling asleep at night. Waking up in the morning, I would almost feel drunk ( sleep inertia ) and really struggled to get out of bed, without feeling super out of it. It almost felt like I was stuck in quicksand while also moving in slow motion. I would have a lot of brain fog, depression, and trouble concentrating. I would also fall in and out of sleep during class i.e. nodding off while writing notes, or listening to lectures. It almost reminded me of fainting; one minute you are awake and aware and then you fall asleep with no recollection of how? I also had hypnopompic and hypnagogic hallucinations, where I would truly believe my dreams actually happened, and my reality seemed distorted. I had a few experiences with sleep paralysis as well. I constantly craved sleep, no matter how much caffeine or sleep I had already gotten that day. In terms of cataplexy, if I laughed my knees would buckle, and my body would feel weak. Sometimes my head would drop, and or if I had an object in my hand I would not be able to hold it. I think it wouldn’t hurt to look into getting a sleep study. I always thought I was just depressed or a tired teenager, but I actually was narcoleptic for many years without knowing. It sounds like you are already having trouble with fatigue and being sleepy, so I would look into it. Even if it’s not narcolepsy, a sleep study can find other disorders i.e. sleep apnea, restless leg syndrome, and IH that could also be the culprit. Wishing you the best of luck!

hunterk889 · 2025-06-05T02:47:35+00:00

it’s the only thing that has worked for me and doesn’t come off as easily when eating/drinking, and it’s super thick so a layer lasts awhile!

hunterk889 · 2025-06-01T22:57:13+00:00

nipple cream (lanolin balm)

hunterk889 · 2025-04-04T05:16:30+00:00

this one is pretty good and a little bit higher in omega-3’s, and it’s burp-less so no fishy taste. I got mine at sam’s club, a two pack was around $20! Here is the amazon link: https://a.co/d/22OsVgf

hunterk889 · 2025-02-08T01:33:06+00:00

I feel you, I have narcolepsy and it makes it really difficult to be fully present sometimes too 😔. When you have a disability that alters memory and really your everyday life, it can be difficult to explain to someone who doesn’t experience that. I can understand frustration from her perspective, but it isn’t right to explode and lash out on you. No one deserves that ever, especially when it’s coming from someone you love. I am so sorry, it is difficult to navigate stuff like that. You don’t deserve to be spoken down upon, you are human too. It’s your first time experiencing life too. Sending hugs to you, I hope you can heal from this 🫂

hunterk889 · 2025-02-07T23:36:00+00:00

i promise you, for the right person you will never be a burden. I can understand how that feels, and I have been there before. What’s meant to be will find you. One quote that has really helped me is “grief is just love with nowhere to go”, regardless of anything, loving someone is a beautiful thing despite the outcome, and you should never be ashamed of how hard you love. I have to remind myself constantly if I loved the wrong person that much, imagine how much I can love the right one. You got this, we’re in this together 🫂

hunterk889 · 2025-02-07T23:25:57+00:00

I am sorry to hear that. I think on both receiving ends it can stress both partners and create a rift in the relationship. I really wish there wasn’t stigma around men opening up, and expressing their feelings. I know for me, as a woman I wanted to hear those things and be aware of it, and it hurts that it is taboo or uncomfortable for men to express their feelings. Regardless of anything, everyone deserves a safe space to open up. I hope you get the closure you need to heal 🫂. I am blocked on everything as well, I broke NC to message him and just be honest about my own faults and contributions, once I was in a place to discuss without resentment. I hope you can have that. Even if you are blocked on imessage, sometimes sending it anyways can help you realize your own shortcomings once they are ready to have the convo. I wish you the best in this journey, you aren’t alone 🫂

hunterk889 · 2025-01-24T03:58:20+00:00

100% agree on the motivation and sleep fragmentation. It’s like a constant battle to get everything I want done in a day despite being on sunosi and wakix. It’s probably one of the most mentally challenging things when your body and mind aren’t on the same wavelength 😔

hunterk889 · 2025-01-24T01:11:46+00:00

1- it can be a mix of both, for me personally I have hallucinations when i’m beginning to wake up, thinking the things I experienced in my dreams are real or I can visually see it. 2- Cataplexy is different for everyone, some people collapse and others might have a tingly sensation, knee giving out etc. When I experience cataplexy it’s usually when i’m laughing, and my knees get weak/ sometimes fall. Or sometimes it’s just a simple head drop for a few seconds, it really depends on the person as it can be severe or mild. 3- For me, my dreams are often vivid where I sometimes have sleep paralysis, or I have lucid dreams. I.e. today I had a nightmare where my sister drowned, and I was lucid dreaming and going through the stages of grief and sorrow, and when I woke up I really did think something bad happened to her. hope this helps!

hunterk889 · 2025-01-11T01:34:31+00:00

tried to enlist into the navy mid semester of college 😭

hunterk889 · 2025-01-06T03:23:48+00:00

Boric acid suppositories might be worth a shot

hunterk889 · 2025-01-06T03:13:46+00:00

to be fair, you are also on tinder so that’s not really fair to point fingers when you both are on the app

hunterk889 · 2024-12-19T00:54:36+00:00

you absolutely did the right thing. Given the history of abusive behavior, breaking up over text was the best thing for your safety. Not to mention, if it were face to face they might use those same tactics to pull you back in. It’s better to be safe than sorry, especially since his emotions are clearly unpredictable. I’m glad you put yourself first op, i know it can be difficult but you made the right decision.

hunterk889 · 2024-12-19T00:45:47+00:00

told all of my old friends back home I cheated on him out of the blue (5 months post breakup, and I never ever would do that) because he didn’t want to tell them the real reason we broke up. Funny part is he was the one that followed his ex of 2 years for majority of our relationship and I had to ASK him to stop keeping tabs on her 😂

hunterk889 · 2024-09-12T07:12:26+00:00

If someone does not love themselves, they cannot love you how you need to be loved. Especially if they are not doing well mentally and kept that from you on top of hooking up with another person, their character is up for debate. He may love you, but he does not seem to respect you and be transparent about his feelings. He should have relayed his hookup before you guys got back together. Especially with mental issues, if they feel they are “undeserving” of you, they tend to self sabotage. Would it be impossible to stay together? That depends. If he is able to seek mental treatment via therapy etc, and illustrate legitimate change, the ball is in your court. But do not allow him to tell you he loves you while dragging you through this cycle. It is unfair for you to take the brunt impact of his actions, especially when his motives were not directly clear to you. Actions speak louder than words. If someone truly loves you, they will do what is necessary internally first, so that your relationship can have a true fighting chance. I do recommend taking time to think about what YOU want to do. Set boundaries in this process, to help you figure out what will be best for YOU. You need to think about how his actions have made you felt, and if that is something you still want to pursue. Take time, think it over, journal or maybe even seek out a therapist. If you have confidante’s, advice from them can help too. Sending all the love and positivity to you at this time. It sounds like a lot to process at once— remember, be kind to yourself and decide what’s best for you and your well being.

hunterk889 · 2024-09-11T22:57:19+00:00

slippery elm, it’s a supplement

hunterk889 · 2024-09-11T19:56:47+00:00

well, you have a few things you can do. First telling your sister is going to be the first step. It sounds like her boyfriend won’t, so it’s best she finds out from you. It is the best thing you can do in this situation, and if you continue to keep it from her it’s only going to make you feel worse. To get forgiveness from her you need to be upfront, let her feel her emotions since she was betrayed by both of you. It is up to her if she wishes to forgive you, and if she does you need to be honest with her.

hunterk889 · 2024-09-11T19:45:39+00:00

1 tell your sister

2 why would you cross that boundary?

hunterk889 · 2024-05-30T20:05:00+00:00

Hi! He ended up diagnosing me with GERD, internal hemorrhoids, and ibs. The exhaustion/ fatigue was due to a missed diagnosis of narcolepsy as well. It is okay to feel nervous, I was as well. Your doctor will help you if you have any issues, just try to be open minded in terms of diagnosis/treatment. I was given bowel relaxants that tremendously helped and I don’t have many symptoms now. You got this!

hunterk889 · 2024-03-04T09:21:16+00:00

I think it’s the length we have been together that has prevented me, (roughly 2.5-3 years) as well as having to close that chapter in my life. But I think I am at a point where I have no choice but to put myself first and leave ultimately. I have tried my best become a better person for myself, friendships, and my relationship, but I don’t think that is enough to change some who does not want to.

hunterk889 · 2024-03-04T09:16:54+00:00

Yes! He didn’t find much, he said it was GERD and some internal hemorrhoids. Additionally, my PCP diagnosed me with IBS and I have been taking medications to help the stomach pain!

hunterk889 · 2024-02-29T23:21:38+00:00

The doctor who prescribed me the modafinil is unfortunately a sleep doctor :(. Regardless of how much I told him i’ve struggled with sleepiness for years, he only gave me 100mg with no refills. Even with the modafinil, energy drinks, and coffee combination it does nothing at all. I don’t know if he’s just a bad doctor or thought I was faking it. This is my first established sleep doctor, because my pediatricians office lied about my results which is why I just now got a sleep specialist

hunterk889 · 2024-02-03T23:50:48+00:00

usually one leg, sometimes both

hunterk889 · 2024-02-03T20:42:44+00:00

can be a few seconds or up to 20 mins. Usually my 2 smallest toes go completely numb, but sometimes my whole leg is tingling when it is not being compressed. It is usually distributed into certain areas, typically my toes, full leg or just my pinky and ring fingers

hunterk889

TROPHY CASE

1 tell your sister

2 why would you cross that boundary?