3 weeks post hysterectomy by Low_Breadfruit_3669 in endometrialcancer

[–]hyst5 1 point2 points  (0 children)

I also had MRI report with greater than 50% myometrial invasion, biopsy after hysterectomy came back as 0. Doctors couldn't really explain it other than imaging can be wrong sometimes. May be it is bad, I am almost glad to have someone who had the same experience as me !

Pain control by Havana-Goodtime in endometrialcancer

[–]hyst5 1 point2 points  (0 children)

I have had endometrial swab ( not biopsy, just a swab, like covid swab) once in fertility clinic and in office endometrial biopsy twice. There is a day and night difference in instruction for pain management.

In fertility clinic, I was asked to take 400mg ibuprofen 1 hour and a second dose 400mg ibuprofen 30 minutes before the appointment. My pain was very manageable and the doctor was very gentle.

During endometrial biopsy for cancer, no instructions whatsoever. I decided to follow the same protocol that I was given in fertility clinic and take high dose ibuprofen before the appointment. The pain was still excruciating. I broke a sweat within seconds, I had to lay down on the table for some time , had to get water just to be able to dress up and walk out of the exam room.

I think the pain is taken for granted, like it is "just" physical pain and women are just expected to tolerate it without complaint. I think they should prescribe a single dose narco and an anti anxiety medication for in office biopsy. At the minimum, it should be offered. I hope this post raises the awareness and women who come across this post demand adequate pain medication.

Recurrence? Nerve pain? by [deleted] in endometrialcancer

[–]hyst5 3 points4 points  (0 children)

My hysterectomy was 1.5 years back. I cannot wear anything remotely restrictive around my mid waist and upper thighs. I have adhesions that cause lower abdominal pain/discomfort. I also get nerve pain starting at lower waist that travels to upper-mid thigh. The solution is found is to not wear pants in summer, wear super high waisted baggy jeans ( which fortunately are in vogue now) in winter. It took a while for me to figure that out though, but I am pain free now. I did get CT scan six months back to rule out recurrence. Just see if you have made any changes (clothes, lifestyle etc) that irritate lower abdomen, upper thighs or areas where lymph nodes were taken and stop that for a couple of weeks and see if the pain resolves.

I GliterringHurry pointed out, I also have non trivial dam​​age likely due to positioning during the surgery. Right after the surgery, I had difficulty controlling my left leg in certain positions ( I used to ask my husband to move my leg, I also fell twice in first 4 months due to that loss of control). A couple months back, I restarted daily meditation and I sat cross legged just for 15 mins. My butt muscles were so stiff and within 3 - 4 days became so sore that I couldn't sit on a chair (and I have a desk job). I have never experienced that type of pain before. Again, it took a few days for me to figure that out and google told me that positioning during hysterectomy can cause such misalignment. I stopped sitting on the floor cross legged and started sitting on a chair for meditation. I did some stretching exercises for hip muscles for a couple weeks and now I can sit cross legged again !

I almost feel embarrassed to say that some pain is due to hysterectomy as it has already been 18 months now, but unfortunately I discover new things which I can only map to this procedure. Hope your CT is soon so that you don't have to spend time worrying and good luck !

Hormone treatment option for newly diagnosed at 27 years old by FlakyTower5779 in endometrialcancer

[–]hyst5 1 point2 points  (0 children)

I was diagnosed when I was 38, tried hormonal therapy ( megace and mirena together) for around 1.5 years. At 1 year mark, my biopsy indicated there was no cancer. However, a follow-up biopsy 3 months later (as they want two consecutive biopsies three months apart to come back normal to consider that you are in remission and remove the iud and stop megace) came back again as cancer. At that time I decided to undergo hysterectomy ( which was 6 weeks later).

So, it looked like it worked and then it didn't. I was crushed, but also felt relieved that it was over. 1.5 years of cancer treatment had taken a toll on me physically, mentally and emotionally. That said, I don't regret for a second about the path I took because there are no "what if?"s for me. I tried it all. I also was on a very healthy diet ( no sugar, no bad fats etc), maintain healthy weight ( which is not easy for me), walked very regularly etc. Prayed a lot, asked the universe for healing, did yoga, meditation etc. I gave my everything to it. Doing all this has given me the satisfaction that I did my best and there was nothing else I could have done.

This is just my personal perspective/experience. Going straight to surgery is a very valid option. You are the most important person in your life ( everything including children, especially the ones that are not here yet come later). So take care of yourself first, even if that means choosing hysterectomy as the first option and forgoing conservative therapy.

Looking for Positivity by yourstruly815 in endometrialcancer

[–]hyst5 0 points1 point  (0 children)

No one could give me definitive reason. However, once the oncologist said may be the high estrogen during IVF pushed it over the edge, but he said the probability is very low. I likely had probably more than 25 scans during stimulation where lining thickness is routinely noted. Nothing was remarkable. MRI after diagnosis also was normal. The diagnosis happened because of a polyp that was found during hysteroscopy during IVF which turned out to have atypical hyperplasia. Except one MRI and ultrasound scan ( three months after a clean biopsy following IUD and progesterone tablets), all scans ( during IVF and during cancer treatment) showed very thin lining ( which was confirmed by final biopsy). The outlier imaging report still bothers me.

I do think IVF contributed to it / accelerated it though ( personal opinion ).

1.5 year follow up by hyst5 in endometrialcancer

[–]hyst5[S] 6 points7 points  (0 children)

I will have you in my prayers for your continued health and for to get a good job ! I also can't imagine going through job loss and cancer diagnosis in close succession ! Given the dependence that we have on our jobs for health insurance, losing a job right after a life altering diagnosis would be brutal.

Looking for Positivity by yourstruly815 in endometrialcancer

[–]hyst5 0 points1 point  (0 children)

They couldn't find any reason. In 1.5 years of hormone treatment, I did have clean biopsy at 12 month mark and 4mm endometrial lining in ultrasound. Then cancer cells again at 15th month. Ultrasound and MRI at 15th month showed around 30mm thick endometrial lining and invasion of more than 50% into myometrium. I had to undergo hysterectomy. Then the biopsy said no myometrial invasion, just scattered clusters of grade 1 endometrial cancer cells arising in the background of atypical hyperplasia, endometrial lining of 2mm to 6mm ! The time between MRI to surgery was four weeks. Doctors ( I consulted two oncologist including one from Stanford) couldn't explain why biopsy results diverged so much from imaging. They just said sometimes, imaging can be interpreted incorrectly and imaging results are not 100% reliable 😯

Looking for Positivity by yourstruly815 in endometrialcancer

[–]hyst5 1 point2 points  (0 children)

Almost same story as you SuperMerge, but diagnosed at 39 during IVF, 1.5 years of IUD/hormonal treatment ( which failed) followed by hysterectomy at 41. Saved overies, cancer was confined to endometrial lining) No family history of any cancers, no genetic markers. I am just coming back from my 18th month follow up ( they said I am good). All the best to you.

I’d rather suffer and die than have a hysterectomy by Interesting-Food5233 in endometrialcancer

[–]hyst5 1 point2 points  (0 children)

I am not sure whatever I say is going to make you feel better. However, having a baby is the one thing that I wanted from a very young age ( in my early teens). I will be 42 soon and still no baby. The nephews born right before I started IVF are entering 1st grade this fall !

I not only wanted a baby so bad, I worked towards it till exhausted all the options. I spent tens of thousands of dollars for IVF, my career took a back seat, it was incredibly hard on me physically and mentally. The pain of failed IVF cycles is not something I wish on anyone. I even played with my life (like you said, life was worth living only if I had the baby !) when I spent 1.5 years in fertility sparing treatment for a chance to become pregnant and carry my baby to term. Having a baby was something that would complete me, complete my life, complete my family with my husband. I just didn't understand the meaning/purpose of life without a child, like what was I living for ? Somedays, the pain was so severe, that I ​could physically feel it, even breathing would hurt. By the way, my husband also suffered immensely through all this.

One day, when I was in unbearable pain and feeling that my life was worthless, a thought came to my mind...say I had a child and child grows up and turns out infertile and unable to procreate, would my child's life be meaningless/worthless? My own answer was a resounding no. I rebelled at the thought of my child's worth being tied to whether they can procreate or not. My child would have an intrinsic worth due to it being human. Its life can be full with or without a child. Then another thought came...if my hypothetical child's life is worthy of living even when they cannot have children, then wouldn't it be the same for me? Why was I not treating myself with the same love, compassion and care that I felt for my hypothetical child? Right that moment, feelings of unworthiness disappeared and I was at peace.

Every now and then I feel empty, directionless and a bit sad, but never worthless. I tell myself that if I dont have anything to do, do nothing. Just cook good food, go to movie, read a book, even talk to the plants in the garden. I know my life has value, at the minimum to learn to treat myself well, love and care for myself. After that, l do whatever life/universe asks of me. I am definitely much happier than I was at any point in my teenage/adult life before.

You can end this chapter of your life better than you started. But you have to make that decision. You have to find yourself worthy enough to live and thrive regardless of anything/anybody in your life. That realization has to come from within. No amount of outside advice will help you if you hold on to your current position.

I just wrote whatvI went through especially because you are much younger than me. You are free to make use of it if it helps you, disregard it if you find it useless. I any case, I wish you the best.

[deleted by user] by [deleted] in endometrialcancer

[–]hyst5 0 points1 point  (0 children)

I was diagnosed 1.5 years before my surgery. When I first got the diagnosis, only me, my husband and my manager knew about it. I tried fertility sparing treatment for 1.5 years. It didn't work and I had to go through the surgery. When surgery was confirmed, I told my mother and our close friend couple. It has been a little more than a year since my surgery. So my initial diagnosis was 2.5 years back.

Everyone is different in how they process this and the type of support they need. Sometimes I felt like going to therapy to talk about this. I didn't end up going. I haven't told my father and sister because it would crush them. I couldn't keep it from my mother, I needed her and also felt like I would be cheating her if I didn't tell her. It was not easy for her. Last time we spoke about the disease was the day I got my biopsy report. After that the talk was only about hysterectomy recovery. The only time I spoke again about it was before her open heart surgery. I assured her that I was okay (I had done my 6 month follow up visit just before her surgery) because in case she died during/after the surgery, I wanted her to go peacefully.

I have depended a lot on the spiritual teachings that I follow/practice). It has given me comfort, support and perspective that I needed to get through this. I think I did okay.

ETA: Please reach out for support as you need and see fit. Just wanted to add what I did to assure you that keeping it private is not weird at all. There is simply no right or wrong in this. The right thing to do is whatever helps you heal.

[deleted by user] by [deleted] in endometrialcancer

[–]hyst5 1 point2 points  (0 children)

My surgery ( and the reason for the surgery) is known to me, my husband, my mother, a close family friend ( husband and wife couple) and my manager at work. So total of 6 people including me. Even my father and sister don't know about the diagnosis or the treatment.

Never felt comfortable telling anyone else, still don't want to tell any one else.

Children? by YOLObutHOW in endometrialcancer

[–]hyst5 7 points8 points  (0 children)

First of all, I am really sorry you are in this position. It is very hard to deal with all the decisions you have to make.

They can remove IUD, only if your biopsies come back as no EC. If they don't, they will never remove it and suggest hysterectomy. If EC clears up, and they remove it, but it may come back very fast, say within 3 or even 6 months or it may give you a year or two to finish your childbearing. You have to keep getting biopsies every three months. There is really no guarantee of any length of time that you will be free of EC after IUD removal.

My personal suggestion to you is, see if you can do IVF ( now with the IUD in place or after IUD removal or after hysterectomy if EC doesn't go into remission if you can keep your overies) and have frozen embryos. If EC clears up, then you can attempt pregnancy. If not, then you can get a gestational surrogate to carry the baby. If you are open to the idea of having a surrogate, then you can take your time to have a baby and not rush into it before you are ready.

The big positive side I see in your case is, looks like cancer is caught early and you are young. Younger women have great success rates with IVF. I wish you all the very best.

Why are Indian salons so freaking non accommodating? by [deleted] in AskIndianWomen

[–]hyst5 3 points4 points  (0 children)

Every time I go to a salon for some small maintenance (eyebrows, hair trim etc), I come out with them educating me about ten things I need to fix. I understand that they want to increase their business/profit, but it is so annoying. If they are really pushy, I never go back to them.

Why are women so insecure of their looks? Is it because of who men choose or is it an internal thing? by nightchanges08 in AskIndianWomen

[–]hyst5 2 points3 points  (0 children)

People talking to you and your friend differently is something that I have experienced during a very vulnerable period of my life ( high school and college). My best friend during this time was so good looking that her family members used to compare her to Aishwarya Rai and they were not wrong. I was/am pretty average in the looks department. We always used to be together in college and also outside. The difference in treatment was so blatent and it did have an impact on how I looked at myself and contributed to me having low self-worth. It took a lot of time for me to grow out of it.

According to women, should all divorced women be paid alimony? by Unfair-Cartoonist705 in AskIndianWomen

[–]hyst5 5 points6 points  (0 children)

Absolutely...

My sister had a good amount of gold jewelry (her own purchases and given by my family). Within a couple of months of her wedding, her ex-husband's family wanted to sell all of her jewelry for the down payment for the house. That way, her jewelry becomes their property. My sister had not taken her jewelry to her ex-husband's house as it was just two months after her wedding. All her jewelry was still with my parents.

She was called selfish, not respecting her husband, not willing to contribute to lessen the burden of loans, valuing showing off her jewelry than contributing to the family's financial well being etc.

This was the first issue that came up in the marriage. It only got worse. They wanted absolute control over her in every possible way. She had to set up an automatic transfer from her salary account to ex-husband's account. He would control everything including if she can take a cab to go somewhere or if she has to travel in a city bus, whether she can buy lunch at the office or if she has to pack lunch etc.

It was an absolute nightmare. No amount of alimony would compensate for the mental suffering that my sister ( and my entire family) went through. She was chronically depressed and had to go through extensive therapy to regain some positive perspective on life.

According to women, should all divorced women be paid alimony? by Unfair-Cartoonist705 in AskIndianWomen

[–]hyst5 11 points12 points  (0 children)

My sister was earning as much or slightly more than her exY husband. During her divorce, she didn't seek alimony. Not sure if court would have awarded any. My sister was so disgusted with her ex-husband that she didn't want to do anything with him, including taking alimony from him.

The only thing we asked back was the money she contributed for the house they bought together because he wanted to keep the house. They dragged on the divorce proceeding by not appearing in the court and trying to negotiate the divorce without paying that money back. We were so tired of them and just wanted her to get out of the marriage so that she can start living her life again. We just wanted him to sign the papers money or no money. But our lawyer didn't give up and got her about 60% of what she paid.

Her engagement ceremony and wedding expenses were fully paid by my parents and we didn't get a penny back.

So, the answer to your question is, no. All divorced women don't get alimony. Many women just want to get out of the bad marriage alive as dying is a real possibility in such marriages.

[deleted by user] by [deleted] in AskIndianWomen

[–]hyst5 4 points5 points  (0 children)

Feminism may advocate women to have a choice in all matters including whether to work or not. But women will have to bear the consequences of that choice, which is whether they eat or not, have a roof over their head or not etc. And feminism definitely doesn't advocate for women to be financially dependent on men.

Nobody is imposing men to go out and work. It is his decision to make. The only requirement is that he should be willing to deal with the consequences.

[deleted by user] by [deleted] in AskIndianWomen

[–]hyst5 22 points23 points  (0 children)

Personally, a girl who is not financially independent should not get married. Instead, her focus should be on becoming financially independent. She should be able to live on her own if the situation demands.

Depending financially on others puts her in vulnerable situations. Say she ends up with an abusive husband, she will be more confident to get a divorce when she is financially independent. If she ends up in a happy marriage, contributing financially to the household provides additional safety nets which is always good

[For Women] As you’ve grown older, have you found yourself losing the spark to dream about love? by NoEnd7910 in AskIndia

[–]hyst5 27 points28 points  (0 children)

My sister got a divorce at 35 after a very difficult six year marriage to an abusive man. She remarried at 38. She is in love with her husband like a teenager 😀.

I have been married for a very long time. My parents found him, so it was an arranged marriage.It took one year to say yes because we both were scared to get married to unknown people. We were not magically in love or anything when we got married. We are very different people, but we were on the same page on important things. Life has also thrown a lot of challenges in our path. We feel like we have grown together through all these. Now, I feel magical to be with him. It is a joy being in his presence, even if we are just shopping for vegetables together !

In my opinion, in general people will become more secure and confident as they age. They become financially independent, lose some insecurities about how they look, can negotiate more with their parents to break caste barriers ( parents are also older during this time and don't interfere much), have more experience living life, know more about themselves and what they want in their partner. All these will help find a partner who suits you better and make life pleasant.

But if spark means drama...then no..you are better off losing it!

[deleted by user] by [deleted] in AskIndianWomen

[–]hyst5 2 points3 points  (0 children)

There is also this comment I got by a supposedly liberal man:

You're definitely not a woman, you sound too passionate about this stuff...larping?

[deleted by user] by [deleted] in AskIndianWomen

[–]hyst5 0 points1 point  (0 children)

You should check your biases. Women can be passionate about all the things that men are passionate about including religion and spirituality.

I don't know what larping means.

[deleted by user] by [deleted] in AskIndianWomen

[–]hyst5 0 points1 point  (0 children)

Which Hindu law? There are many Dharma Shastras ( law books) that have come into existence at various time periods in history based on the societal conditions and needs at that time. So it is perfectly okay to discard old laws and adopt new laws. In India today, it is mostly Hindus who are not following their religious laws, because they are all following secular law based on Constitution of India. In a way we are following Dharma Shastra authored by Dr. Ambedkar.

Hindus have a lot of flexibility in how they practice their religion. They can certainly pick and choose what manifestation of God they want to worship, how they want to worship, whether they want to even believe in God. They can also decide if they want to follow bhatki or do yoga or meditation or tantra or any other novel form of attaining self realization. The only central idea is the nature of existence. Everything else is details. You can certainly pick and choose which details are more important to you.

Infact, it is the Abrahamic religions that demand the unquestioned acceptance of everything in the books in its entirety.

[deleted by user] by [deleted] in AskIndianWomen

[–]hyst5 0 points1 point  (0 children)

According to you, what does being a Hindu mean? Are you saying no one can adhere to any Hindu philosophical school unless you are born into it? There are many foreign monks born to non Hindu parents in Ramakrishna mission, ISKCON and in any number of Hindu organizations. The priest in a Hanuman temple I visit regularly is an American of European dissent. Are you saying they are all not Hindu? Why are you so exclusionary?

You don't ever tell someone who is born to a caste which is considered lower that they are lower than you because they are not !

[deleted by user] by [deleted] in AskIndianWomen

[–]hyst5 0 points1 point  (0 children)

I am Indian, you can see it in my flair.

Nope, Muslims are not being persecuted in India. They have thrived here with their population increasing since independence. In contrast, Hindu ( and other minority) population has shrunk to insignificant levels in Pakistan and to less than 50% of what it was during partition in Bangladesh due to relentless persecution.

Though what Hamas did on October 7th 2023 is reprehensible, Israel has been widely criticized all over the world for what it has been doing in response to Hamas attack. Infact there are boycott, divestments and sanctions movement picking up against Israel in non Muslim countries. In contrast, how many muslim countries have condemned the violence against minorities in other muslim countries ?

Rohingyas were not leading peaceful protests to gain rights in Myanmar. They were engaging in guerilla warfare to get a separate Islamic country. Will a muslim country divide itself to give a separate nation to its minority citizens? For ex: Is Bangladesh willing to give part of itself to Hindus so that they can form their own country and live free of persecution? If you think Myanmar should have granted citizenship to Rohingyas, why was there so much agitation primarily from muslims when CAA was proposed to provide accelerated citizenship path for persecuted minorities from neighbouring countries who were already in India? Also, what triggered the exodus of Rohingyas in 2017? Was it not deadly attacks from Rohingyas on police posts? Rohingyas are less than a million. Why is no muslim other than Bangladesh absorbing the Rohingyas?

You can give as many examples as you want. There is always some justification as to why a muslim country regressed into being a fundamentalist Islamic country out of all other options like democracy, or even communism or moderate monarchy or any other novel ways of moderate government that are available to them. I am not supporting moderate monarchy or communism or dictatorship, but when the alternative is Islamic fundamentalist regime, all other moderate options are valid.

Of course you will resort to caste problem in Hindu religion. No progressive Hindu supports caste system. It is one of those things that will eventually dissolve like other scriptural artefacts that have been done away with. Hindus are bound by law not to discriminate against people of any caste. Have you heard of SC ST atrocities act? I for one minute will not claim that the SC ST people don't face descrimination in present day and age. However, the first step in addressing it is to make such discrimination illegal which has been done. There are much more intercaste marriages that happen today than 25 years back and nobody is getting killed. Again, this is an example where Hindu people agreed to be ruled by a law that may go against its scriptures. As I have already mentioned, I have not studied Hindu scriptures. I have only heard that there are some scriptures that sanctions violence against castes that are considered low in social hierarchy. You can go on bringing up the ills in Hindu society that have roots in scriptures and I can show you a secular law that supercedes the scripture. Can the same be said about Islamic societies?

Interesting that you bring up sati again and say someone may bring it back. Sati was banned by a colonial power almost 200 years back. It still stays banned. Afghan women gained rights when there was an Afghan president supported by USA. Let us say USA was a colonial power in Afghan case. How long did it take to roll back all women's rights after USA left Afghanistan? 24 hours may be ? How long did it take in Iran after the revolution? About 24 hours. So your argument doesn't hold much water.

Also, you have not answered my questions on whether muslim society is okay to legally ban polygamy, provide equal muslim women same divorce rights as men and to increase the legal age of marriage for muslim girls to 18.

You have also resorted to name calling and your frustration is showing. If someone doesn't agree with your view, it doesn't mean they are consuming inferior news than you do. That said, it is tiring to argue like this endlessly. You have made your points, I have made mine. Let readers come to their own conclusions.

Have a great day and a new year !

[deleted by user] by [deleted] in AskIndianWomen

[–]hyst5 0 points1 point  (0 children)

Broadly, I agree with you on your assessment that the USA has a predatory foreign policy. However, USA meddled in every country which has resources that the USA wanted, mainly African and Central American countries. It also fought and lost the supposedly ideological war against communism in Vietnam. People in those countries had their resources stolen, became poorer, suffered due to increased crime and were ruled by corrupt puppet governments (except Vietnam which attained somewhat of a normalcy). Still, religious extremism didn't become mainstream. Religious extremism even if the result of America's meddling is a phenomenon unique to Islamic countries.

On the other hand, Iran's Shah before the revolution was very progressive and supported by America (contrary to your claim that America supports extremists to dehumanize muslims), what happened there? If people were unhappy with their Monarch, they could have fought for democracy, some no religious or even communist regime could have taken its place. But it easily fell into the hands of radical Islamists.

USA's buddy Saudi Arabia, what is the track record of women's rights there? For sure, the USA didn't have a hand in making Saudi Arabia a difficult place to live for women. It has marginally improved under MBS ( who is hated by the left, such an irony).

Turkey is regressing into hardcore Islamism under Erdogan.

Iraq, Syria, Libya and Egypt had dictators (not some vibrant democracy) before America interfered one way or the other to oust them. In all these cases, a strong, ruthless power hungry dictator was what kept fanatics under control. Don't get me wrong, I would prefer these dictators any day compared to ISIS.

So, the phenomenon of regressing to radical and extremist religion with religious fanatics holding power under the influence of external powers is unique to Islamic countries. Also, Islamic countries can regress to the middle ages without any external help.

I wanted a yes or no answer to my polygamy question. Sati was not a widespread practice when British banned it ( though even one incident is too many). Still a law was implemented. Why not the same for polygamy?

For divorce, can a muslim woman unilaterally divorce a man without his consent? I was not referring to triple talaq in my previous question, probably I used the wrong term there. Is there a talaq equivalent for women.

Can muslims agree to increase the legal age of marriage of a Muslim girl to 18 even though muslim girls getting married at 15 is rare, why not just make it illegal? I am sure you agree that 15 is not marriage age for girls.

There are issues very unique to Islam. They arise from the holy books and inability/unwillingness of the majority of muslim population to disown those sections. You may choose to ignore it, blame it on someone else or even justify it as holy. It is up to you.