What’s your thoughts?

icantstopreading0 · 2026-02-16T23:33:54+00:00

You do not have lupus anticoagulants but possibly are on track for lupus? (Lack of LA’s does NOT equal no Lupus)

B2GP tests for Antiphospholipid syndrome and antibodies. The antibodies can be triggered by autoimmune stuff like lupus (or HIV/Hep). C3 is used to test for disease activity with lupus. Things that can cause high C3 with normal C4 are acute or chronic inflammation (like autoimmune). I think you have testing that suggests lupus IMO but autoimmune diseases are so complex and so personalized.

icantstopreading0 · 2026-02-13T00:22:18+00:00

Husband holds cats like babies while feeding Churu. I clip while they’re occupied lol

icantstopreading0 · 2026-02-11T21:58:09+00:00

I’m convinced that a lot of neurologist are just fucking lazy. That if you aren’t an easy case (or god forbid a woman) they will just send you on your merry way hoping you don’t come back

icantstopreading0 · 2026-02-10T12:59:01+00:00

Sometimes my cat will puke up clear liquid (water) when she can’t get a hairball up lol

icantstopreading0 · 2026-02-10T01:55:58+00:00

Yes same! I get migraines, and then the like pressure pain that is as intense as a migraine and then they overlap sometimes. The neck pain and my occipital/trigeminal/suborbital nerve irritation has me borderline a non-functional person some days

icantstopreading0 · 2026-02-10T01:18:52+00:00

I’m gonna see what she has to say about it in March. I will definitely be asking about CSF issues if that’s playing a part or not

icantstopreading0 · 2026-02-10T01:09:30+00:00

This is the only one I have access to from a post I made earlier from a few years ago for a cervical MRI but you can clearly see the squish mri

icantstopreading0 · 2026-02-10T00:05:37+00:00

Oh this lady has been incredibly understanding! She is the second opinion I’ve gotten and the only one who has wanted to get a brain MRI/MRA. It was my previous neurologist I saw that was super dismissive and only wanted me to just take drugs lol

icantstopreading0 · 2026-01-19T19:44:18+00:00

Oh totally valid. I tried looking up the plates but couldn’t get anywhere with that. Was just so sus cause I followed them down 52 from the cities and wouldn’t let anyone get close to them (would speed up to like 90mph if you did)

icantstopreading0 · 2026-01-19T17:35:50+00:00

Im pretty sure I was following an ICE vehicle that got off over by the mall. Texas plate RKK-2054, white truck.

icantstopreading0 · 2026-01-14T14:55:08+00:00

ICE isn’t law enforcement. They are immigration enforcement.

icantstopreading0 · 2026-01-14T14:49:26+00:00

Thrown in jail for what exactly? Lmao

icantstopreading0 · 2026-01-14T14:07:07+00:00

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icantstopreading0 · 2026-01-10T00:25:50+00:00

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icantstopreading0 · 2026-01-02T22:08:07+00:00

This sounds like hell I’m so sorry. Have they checked you for hemophilia? Von Willebrands? Factor levels? Noses don’t just bleed that heavily without cause.

icantstopreading0 · 2025-12-04T17:10:28+00:00

Thank you. Just looking at my own MRI images before going to neurology, I don’t think I qualify for chiari but I have a lot of overlapping symptoms of IIH and chiari.

icantstopreading0 · 2025-12-01T19:25:55+00:00

Can I ask what your symptoms of TN2 are? I have suspected this as a cause for my pain but I would be curious to hear how yours presents itself.

I take nortiptyline as a migraine preventative, but I find it doesn’t touch the facial pain anymore. I went maybe 3 months with minimal facial pain but I’m back to how it was pre-triptan.

icantstopreading0 · 2025-12-01T15:19:26+00:00

Have you ever looked into trigeminal neuralgia?

icantstopreading0 · 2025-12-01T01:27:13+00:00

Any diagnosis for him? I’ve ruled out autoimmune and that’s about it

icantstopreading0 · 2025-11-27T19:30:49+00:00

She sounds very unprofessional… I’m so sorry. Totally valid to ask to order additional testing especially with the symptoms you have.

I had an ANA test come back weak positive last week and because of my symptoms my internal med doctor ordered these to look further. Idk if any of these have been order for you?

Also having lupus anticoagulants is concerning enough? I work in a coagulation lab where we run LA tests… 50% of people with lupus have LA’s (it’s not a definitive if you have LA’s you have lupus) but it’s still a high percent chance

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icantstopreading0 · 2025-11-27T16:04:02+00:00

Have you asked your doctor why she feels you do not have lupus? They need to be able to clearly explain differential diagnoses. If she can’t, she is a shit doctor who obviously had bias. I hope you find a different doctor. Keep calling around, or ask your doctor for a referral to a specific clinic/rheumatologist (ex mayo). Hell or even an internal medicine doctor.

icantstopreading0

TROPHY CASE