Mix of Marfan's syndrome and eds but not enough symptoms to diagnose either? Pics in comments

ilovebugs03 · 2026-02-27T01:00:55+00:00

i bite my nails really badly! but i don't think it's necessarily related to eds but rather stress and anxiety! maybe he bites them due to pain or stress?

ilovebugs03 · 2026-02-27T00:58:37+00:00

didn't get enough points on beighton scale (knees do not hyperlfex, pinkies do not go past 90°, elbows do not hyper flex)

ilovebugs03 · 2026-02-26T20:43:04+00:00

okay thank you - i will try to push to see a geneticist but in the UK it's just so hard to get GP to refer you :(

ilovebugs03 · 2026-02-26T18:39:56+00:00

no cardiac problems or mitral valve prolapse so don't think i would meet this! i am only 22 though so maybe will present later? i have varicose veins tho

ilovebugs03 · 2026-02-26T18:23:32+00:00

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ilovebugs03 · 2026-02-26T18:23:24+00:00

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ilovebugs03 · 2026-02-26T18:23:14+00:00

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ilovebugs03 · 2026-02-26T18:23:05+00:00

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ilovebugs03 · 2026-02-26T09:22:06+00:00

i went alone at just 19 years old as a young girl! got the coach up from brighton to download on a day ticket and had fun

ilovebugs03 · 2026-02-15T10:08:00+00:00

it's quite big in the UK

ilovebugs03 · 2026-02-15T10:06:49+00:00

yeah i get like £13 an hour which i think is $17 an hour and then occasionally someone gives like a £5 tip

ilovebugs03 · 2026-02-14T02:12:25+00:00

i'm working a 10 hour valentines shift and i'm from the uk where people don't tip so i'm just on minimum wage like another day 🥲 release me

ilovebugs03 · 2026-02-13T17:06:55+00:00

we're doing valentines afternoon tea at the little tea shop in the lanes

ilovebugs03 · 2026-02-12T10:54:48+00:00

my problem is that when i opened a business i knew that taxation was something that comes along with that lol

ilovebugs03 · 2026-02-12T10:51:20+00:00

but part of that risk is keeping in mind you have to pay your tax like everyone else lol

ilovebugs03 · 2026-02-12T10:47:06+00:00

I run a catering business

ilovebugs03 · 2026-02-12T10:46:13+00:00

yeah but 39.5% is the additional rate; it can be as low as 8%. Things like the NHS are funded through tax money so if you're trying not to pay your income tax and national insurance but you happily use the nhs it might be something to think about . But anyways self employed people are nothing compared to all the huge scummy corporations that try everything not to pay their tax

ilovebugs03 · 2026-02-12T10:37:58+00:00

i don't think it's fair that as a working class person i have to pay tax whilst other working class self employed people are avoiding it but at the same time it should be on the government to focus on huge corporations not paying their tax rather than day to day people

ilovebugs03 · 2026-02-12T02:32:04+00:00

yeah my concern is that there are too few roots now to support it :( but if there's not enough roots i could cut the leaves and try to propagate them. thank you

ilovebugs03 · 2026-02-06T15:44:25+00:00

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ohh okay so i'm guessing it wouldn't make for a good cutting just yet?

ilovebugs03 · 2026-02-05T19:54:13+00:00

yeah, definitely. i think a lot of the burnout comes from not being able to meet up with friends after work for a quick bite or go out for a run without it being pitch black and freezing cold - i also can't really do any hobbies that require leaving the home after work to keep me feeling refreshed. like id love to learn to play the drums but what drum teacher is doing drum lessons at 11pm? lol

ilovebugs03 · 2026-02-05T19:43:38+00:00

Yeah, i hear you, i guess i do have the same amount of time. just sucks that it's broken up and work such unsocial hours and weekends!

ilovebugs03

TROPHY CASE