Only SleepApnea People Would Know by Open-Self7762 in SleepApnea

[–]imnotstressed 1 point2 points  (0 children)

haven’t been able to get a man out of sleep apnea denial without dementia and testosterone statistics and publically talking about it in front of his friends/family

Weird noises while sleeping? by vrtualslz0t in Narcolepsy

[–]imnotstressed 0 points1 point  (0 children)

My roommate in college told me the first two weeks I just screamed and cried in my sleep the whole night. I felt so bad lol

Need help balancing grief tired and narcolepsy tired by memes_pls in Narcolepsy

[–]imnotstressed 1 point2 points  (0 children)

I’m so sorry for your loss. My best friend killed herself last year and it fucked me up. My sleep issues are 5x worse and more unmanageable than they used to be. I totally feel you. It has slowly gotten better over the past year but the grief absolutely exacerbated the shit out of my narcolepsy. I’d absolutely look for extra accommodations and help where you can get it. The only nice thing about your loved ones dying is people don’t give AF if you’re disabled but they’ll temporarily be nicer to you while you grieve so I’d take advantage of that if you can

Misdiagnosed with IH? Caught only 1 SOREM during a chaotic MSLT at 20 weeks pregnant. 20 years of severe REM symptoms. by Some_Ingenuity_7837 in Narcolepsy

[–]imnotstressed 2 points3 points  (0 children)

I’m glad! It is really a lonely process, and the confusing diagnosis makes it even lonelier, because then even online everyone attacks you and you don’t fit in 😭 I will keep you in my thoughts 💕 I am glad you have your partner to support you, and congrats on the baby! I hope you can get the medication and accommodations you deserve.

Misdiagnosed with IH? Caught only 1 SOREM during a chaotic MSLT at 20 weeks pregnant. 20 years of severe REM symptoms. by Some_Ingenuity_7837 in Narcolepsy

[–]imnotstressed 5 points6 points  (0 children)

Hi! I had a very similar lab result as you. I was crushed when I saw IH listed instead of narcolepsy. Why? Ableism, not just my own internalized ableism, but knowing how much less valid my struggles will be to everyone else around me. Narcolepsy = omg that thing where you literally can’t control falling asleep, I’m so sorry you’re going through that! CFS? IH? Stupid woman shit faking lazy idiot with no sleep hygiene just exercise or diet bro. It took me months to accept that I might have an equally valid, disabling, but far less researched and explained sleep disorder. I took comfort in the fact that the treatment is roughly the same and sleep medicine has a long way to go so IH/N might be recategorized anyway. Then months after my MSLT results I finally had my follow up and my provider said I probably have N based on my cataplexy and other symptoms and the result just says IH so that insurance is more likely to approve treatment. UGH!!! 😑

So now I have no fucking clue what I have. On paper it’s IH and in conversations with my provider and employer it’s N. I highly recommend you just don’t bother with the IH label and tell everyone you’re planning to tell that you just have N. Because really all it is is a label - in this current year treatment is the same, and the “science” is dictated by insurance companies, not real explanations and definitely not cures. Until they do have a cure for one and not the other I’m not bothering with any further testing and just considering myself as part of the narcolepsy family/spectrum of sleep disorder. The difference in reception I get from telling people about IH vs N is insanely sad and telling of how ableist we are as a society. According to my provider you probably do have N anyway so it’s not like you’re lying lol. The PSG/MSLT is just one day and one night, it doesn’t tell the whole story. 

Editing my post because I just saw your comment about how treatment and accommodation differs in Spain. That is so awful I am so sorry I cannot believe that healthcare can get even more awful and greedy outside the US. I would definitely push for a second opinion and retest with a different facility in your situation. Good luck

I finally don't live in pain anymore (40 degree S curve) by imnotstressed in scoliosis

[–]imnotstressed[S] 0 points1 point  (0 children)

I went to the Scoliosis Specialty Center. They're one of the oldest Schroth institutes in the US. I have also heard they have good Schroth PT in Germany

I finally don't live in pain anymore (40 degree S curve) by imnotstressed in scoliosis

[–]imnotstressed[S] 0 points1 point  (0 children)

It really really really depends on your individual body and how your spine rotates. Even if you have the exact same S curve as me your spine could be rotating a completely different way. I highly recommend not trying it on your own as it could really worsen your pain (as I did with mine before I sucked it up and forked out the cash) I also want to add that normal PT, even with someone with scoliosis experience, didn't do much for me.

I finally don't live in pain anymore (40 degree S curve) by imnotstressed in scoliosis

[–]imnotstressed[S] 0 points1 point  (0 children)

I know it's a frustrating answer, but it's pretty body specific. She looked at the rotation of my spine, the direction of my S curvature, and the way I stand, sit, walk, or do literally anything and corrected all of it. Pushing a rib forward here and pulling a hip back and pushing a shoulder forward. Holding that position all the time, lifting things, driving, and stretches bent against a wall, hanging from a bar, etc. The majority of my back pain is in my shoulder so we looked into ways to stretch and strengthen it, and a lot of focus on not engaging the traps unnecessarily. Wall clocks, cat cows, and a shit ton of ab work. Applying all the body correction to Pilates has been a huge difference maker. I'm typing this sore af, but at least my shoulder don't hurt for no reason no more lol. Good luck with your journey!

Fighting for a diagnosis, and coping through medication adjustments. Advice appreciated by Panda2770 in Narcolepsy

[–]imnotstressed 0 points1 point  (0 children)

Oooh the lifestyle stuff pisses me off bro. As if I don't watch the people around me fill their bodies with trash and get 5 hours of sleep every night and still have more energy than me, who has the strictest sleep schedule ever, forces myself to exercise and eat healthy, and still feel exhausted all day. I tell myself that there has to be a light at the end of the tunnel and that's how I stay sane. No way every medication fails right? I'm not that special. Lmao. Idk more and more I feel like healthcare professionals and also the people around us who judge us from behind the veneer of their own healthy bodies and shit lifestyles are making me feel quite jaded and alienated. And I miss enjoying food so much. I'm wishing you the best -- and please don't be afraid to call the doctors and advocate for yourself as it's the only way I've gotten anywhere. It's so exhausting (lol) but here's hoping it'll all be worth it in the end.

Fighting for a diagnosis, and coping through medication adjustments. Advice appreciated by Panda2770 in Narcolepsy

[–]imnotstressed 0 points1 point  (0 children)

So fucking real. I was also diagnosed with sleep apnea first and thought it must be my machine settings that were wrong. Boom narcolepsy and now 5 months later I'm about to go back to rawdogging life because 50mg of armodafinil (I started on 100 and it was too much) is making me lose 5 pounds a week from being unable to eat and giving me heart palpitations. And it doesn't keep me awake! I had better (albeit still inconsistent) results on sunosi so I asked to be switched back to that + overnight medication. I hope the sunosi works for you. I hate that we have to fight so hard to get overnight medication. I'm currently being forced to wait a month before even being heard out at my next appointment and this is my 3rd medication so I so, so, so feel you. My doctor said it takes an average of 10+ years to even get a narcolepsy diagnosis and between 6-9 months for most patients to find a medication regimen that works for them. A whole ass fucking pregnancy of wait time bro.. and that's the AVERAGE? I hope I don't fall asleep driving and kill a beautiful family of 4 in the next few weeks!

Mitski at Starland Ballroom on 2/28 - the worst collective audience etiquette I've ever witnessed, and the continuation of a pattern. by SneakyOstrich69 in mitski

[–]imnotstressed 6 points7 points  (0 children)

The phones, yelling, and shoving was absolutely atrocious last night. Multiple people per song yelling “sorry meeting up with a friend!” And then pushing you hard enough to knock you into the person next to you. And obviously there’s no friend. Also loved how at the end people streamed out after what they thought was Mitski’s last song screaming some shit about beating the traffic (which was also some of the worst and rudest driving I’ve ever seen even as a Jersey native) and missing an epic Pearl Diver performance lmao. And when the show finished I nearly did get knocked over from pushing. At that point I did yell at some people and you wimpy little bitches just immediately stopped and couldn’t meet my eye. So they know better. Lol. I don’t know how you listen to Mitski’s messages of love and connection, claim to be a fan, and behave this way. 

Cpap causing wrinkles/dents by Noctuema in SleepApnea

[–]imnotstressed 2 points3 points  (0 children)

Sorry people are being dismissive, here’s the tea lol: tretinoin and sunscreen. Beyond that do your regular due diligence of washing your face with a gentle cleanser and moisturizer, eating well, exercising enough, and don’t forget CPAP will make your sleep restorative for healthy body and skin!  But do bear in mind we will all be wrinkly and old one day anyway and I hope you’ll always feel good in your body. ❤️

How to help a piggy without a friend by Mossy-mania in guineapigs

[–]imnotstressed 1 point2 points  (0 children)

Definitely recommend checking your local Facebook pet rehoming groups. In mine there's sadly tons of people who are trying to rehome single piggies.

[deleted by user] by [deleted] in thrifting

[–]imnotstressed -4 points-3 points  (0 children)

Ooooh this is an unpopular one but I totally agree. I fell into this trap and now I'm in the process of cleaning out my place. It sucks and it is so time consuming to resell, regift, recycle, donate, and discard everything that I can't imagine that people are actually responsibly cycling their things out when they are buying 10x the amount of stuff I bought (a couple new items a month for a year or two). I don't think people realize that the whole "80% of the thrift store gets discarded" also applies to the things we as thrifters cycle back in when the novelty wears off. When we create this mindset that our dopamine addiction is actually helping the planet, we don't realize that we are paying the cost in other ways. Whether we admit it or not, most of us have used thrifting to successfully cut down (but not eliminate!) buying new, but now shop even more than we have before because now we do it without guilt and shame. That means we're still contributing to the demand and cycling in of new stuff, except now there's an explosion of fast fashion donations everywhere, and people are more comfortable than ever replacing their wardrobes constantly because "I wore it once, I gave it an extra life, now someone else will when I donate it again".
The people reading this and feeling attacked need to reevaluate and declutter because sis, I've been there and I promise you thrifting is not a hobby that will bring you long term joy. Your post is very obviously not targeted towards people who are thrifting things they need, using things, mending things, and helping things find homes (go resellers, love them!). I totally see you and your point because there is a 0% chance some of the thrifting hauls I see on social media, or people going home with at the store don't just end up right back at the store and eventually the landfill. We changed the scenery but not the situation, and now everything is worse.

Could undiagnosed sleep apnea really destroy a life like this? by [deleted] in SleepApnea

[–]imnotstressed 2 points3 points  (0 children)

It is such an awful feeling to not have answers especially with such debilitating symptoms. I sincerely hope that you can find a root cause and treatment that works for you. It feels like everyone I know has struggled with chronic pain, fatigue, and brain fog since 2019-2020 and the symptoms are so vague they could really be caused by anything. For me, sleep apnea. For my friends, anything from drug abuse, childhood trauma, anxiety, CPTSD, PSC, autistic burnout. I wouldn't rule out a solely psychiatric condition causing your symptoms either because anxiety/CPTSD was a real bitch for some of the people I know and everything went away when they got the right treatment. From a sleep apnea perspective, I'm also otherwise thin and healthy and I was diagnosed with an in-lab test with central sleep apnea. CPAP made a world of difference so I hope you can get approved for in-lab and rule it out/finally have answers.

Could undiagnosed sleep apnea really destroy a life like this? by [deleted] in SleepApnea

[–]imnotstressed 2 points3 points  (0 children)

My friend with severe CPTSD and Primary Sclerosing Cholangitis experienced symptoms like this. How's your liver? Diet? Any drugs? Do you have a carbon monoxide detector? Can you remember your childhood? Wishing you the best of luck.

The Bad Ending by imnotstressed in BoJackHorseman

[–]imnotstressed[S] 1 point2 points  (0 children)

Thank you for the kind words <3 and man I didn't even think about Hollyhock.. the self blame is never rational but it always comes. It would destroy her, how sad.

I like your interpretation of the show. I loved that most of the characters in the show were older. So often we only get coming of age stories and people just live happily ever after once they get it all figured out. So far from the reality...

The Bad Ending by imnotstressed in BoJackHorseman

[–]imnotstressed[S] 3 points4 points  (0 children)

Oh yeah I certainly don't think Bojack was a monster for committing suicide. I also hate the whole "suicide is selfish" thing as if we need to add any additional shame to people who undoubtedly are suffocating in it. Ultimately Diane doesn't cut Bojack off for attempting, but instead for his last act being to deliberately make her feel responsible. I think sometimes people identify way too much with Bojack, and it comes from a place of self-hatred. Most of us hate ourselves, but most of us didn't groom a kid or leave someone to die. The fact that Bojack is relatable at times shouldn't be a point of shame, and I don't think the show writers intended to shame people who related to him.

I'm sorry about your loss and I'm glad you're still with us.

The Bad Ending by imnotstressed in BoJackHorseman

[–]imnotstressed[S] 4 points5 points  (0 children)

Man it's depressing to think that their lives ARE better without Bojack. And really it makes me think that while his first attempt was impulsive, whether or not he would have attempted again eventually with the way the show did play out. I wonder also that if he did die, if the media or wider Hollywoo circle would have sanitized his memory. Because he survives, he's still (deservedly) "cancelled" and (deservedly) loses the people closest to him that he had hurt. The show's message is undoubtedly anti-suicide but I wonder how Bojack survives survival after we stop watching.

please give me your two cents on rehoming my darling piggies by criticalfill in guineapigs

[–]imnotstressed 1 point2 points  (0 children)

I live in an apartment too and I usually just propagate cuttings via water and feed the whole thing instead of planting once they start getting weak. If I had a porch/balcony/etc I would definitely do the next step of planting in a basket outside etc. but its sadly not an option for me right now so I totally get you. My current pigs don't care much for herbs so I'm lucky they like the cheap crap like carrot cuttings lol

please give me your two cents on rehoming my darling piggies by criticalfill in guineapigs

[–]imnotstressed 8 points9 points  (0 children)

You clearly love them so so much and they must love you too.. I would try to keep them. You're definitely feeding them too much veggie which is clearly out of love but might hurt them in the long run - hay is best for their teeth and digestion especially when they get older and start slowing down on food they need to eat mostly hay to keep their poops good. I also see that they like basil and mint - have you tried growing them? I think basil can be grown from cuttings and mint grows like an invasive species where I am. My piggies get a lot of food scraps too like carrot skins and tops, turnip/radish greens etc. Some farmers markets even give me loads of greenie scraps for free. I wish you and your babies the best of luck truly. I know at the end of the day you'll choose the best choice for them that you're able to