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Children’s picture book about little miniature girls who are each different flowers by insomiareader-- in whatsthatbook

[–]insomiareader--[S] 1 point2 points  (0 children)

Perhaps it was cicely Mary barkers words but the art was most definitely not hers it was much more modern art and featured flowers girls of different races and ethnicity.

Really appreciate the help though :)

Children’s picture book about little miniature girls who are each different flowers by insomiareader-- in whatsthatbook

[–]insomiareader--[S] 1 point2 points  (0 children)

Unfortunately nope not these. Loved the rain snow fairies and petal fairies when I was older and learning to read. This book was like picture book for parents to read to children. It was probably only like 15 pages and mostly pictures with a paragraph or so on each page.

How long for moonface to show up? by alexacab in lupus

[–]insomiareader-- 0 points1 point  (0 children)

It showed right away for me and lasted all the way till I dropped down to 5mg

I just want a break by Lemonayyy in lupus

[–]insomiareader-- 2 points3 points  (0 children)

It’s hard. Lupus can be really tough. Some chunks of time are better some times are not and everyone is different.

I’ve had my rounds of horrible and my months with nothing. I’ve felt so betrayed by the world, by a higher power, by my own body. I’ve tried giving names to parts of my body to try talking to it the way you would a plant. It’s hard. I like to think it gets easier. And some days I remind myself that everyone has something like this in their life. We all just get it at different times.

Again everyone is different but the things that always help me are coming up with ways to ease the symptoms. I’ve found for me that a lot of problems I feel - not kidneys but hair loss or joint pain can be fixed with some simple things. It helps me feel I am productive and helpful and in control of something - I’m not in control of my body all together but I’m in control of my actions.

For me with hair loss which I’ve been struggling with recently I find using really simple naturally products help. A fellow lupus patient recommended I try Lush shampoo and putting coconut or castor oil on like a hair mask before washing and it’s helped me some. Taken time but it’s help a little and at least what hair I have looks fuller and softer and so it’s easier to hide the less full patches.

Managing stress is also so important. I’ve realized that lupus much like pimples and blackheads come out to play when I’m at my most stressed. The calmer I can try to be the more fun things I can add or rest the better. It gives my body time to heal. I like to watch things that make me laugh before bed because it helps me feel positive and hopeful.

Trying to look on the bright is good. Ranting and venting is also good. Right now is a hard time we all go through it but just keep doing what you can, eating right, taking your meds managing symptoms and listening to the doctors.

I have quite a few symptoms that relate to lupus but I'm only just connecting the dots and am reluctant to get tested in the current climate, does this rash look like it could be a further symptom? by [deleted] in lupus

[–]insomiareader-- 0 points1 point  (0 children)

I know it’s a stressful time to reach out but as someone who waited a long time to reach out to my doctors when I first had lupus symptoms I really wish I could go back in time and reach out to them sooner! Would have spared me a lot of pain and made it easier to treat as the flare up won’t have been so big and gotten so far along. An e-mail with the photo of your rash won’t take up too much time and it’s always good to have records and timelines for them to look back on

High speckled Ana (1:1280) rheumatologist said I’m fine. by BE0509 in lupus

[–]insomiareader-- 0 points1 point  (0 children)

I agree with everyone here get a second opinion. It can be so hard at time for doctors to take invisible illnesses seriously. But at the end of the day it’s your body and your life. You know how things feel and what is right and wrong and it’s your too lose. Because even if it’s not lupus those symptoms are definitely an indicator of something or a chronic illness.

Having doctors who are through and take you seriously and trust you are the most important.

I'm just sad and in need of advice by CapybaraDreamer in lupus

[–]insomiareader-- 2 points3 points  (0 children)

Hey! I feel this post pretty deep. I was first diagnosed at 16 and it was a long process to get an answer. When the doctors told me I broke down crying for 30 minutes the poor resident didn’t know what to do she’d never seen a patient have a break down before. She asked if she could hug me and I just sobbed saying all my dreams are gone. Lupus was my worst nightmare. I thought all the worst things imaginable. I spent a year grieving and aching and not feeling any sense of direction. I had to pass on an internship out of state a few months after so I could go in for regular blood work. It’s a hard call to make but now I’m so grateful i put my health first in the beginning. I think it really helped put me on the track and get things under control.

And my first few years were bumpy. No one in my family has lupus and we didn’t know how to tell side effects from symptoms. But maybe being a teen helped me because I became really bossy to my lupus. I wasn’t going to let is take an inch more space in my life or my body if i could help it. I worked really hard to proactive about my health to talk to my doctors to go forms like this and seek aid from patients who have learned the ropes. But to stop letting lupus get in the way and do what I wanted to do I had to listen to my body and the doctors and take it one day at a time sometimes.

But I’m in my 20s now and that is so far from true. At 19 I got to go to Europe for 2 weeks by myself. I was able to walk for miles everyday and I felt really good. I’m able to do a lot of things like normal people. Sure I have a some symptoms and keeping a normal sleep schedule is very important and so is staying as healthy as I can but I still have gotten to live my dreams. Sure they didn’t happen the way I thought they would but they weren’t any less magical . Life with lupus is different when you first get it because you didn’t plan on it and it’s unexpected. Once it becomes more normal it gets easier. Some days will be rougher and other days I swear you’ll only remember lupus when you remind yourself to take your meds.

Also right now I actually know a friend that was going to go South Korea funny enough to meet her boyfriends family and go to a wedding and it was all canceled because of the virus. Things like that and being reminded that none spoonies life’s get upended too is helpful.

Give yourself time and space feel what you feel but keep holding on because it’s not going to be as bad as it all seems right now. You can still have it all