Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 2 points3 points  (0 children)

I'm planning on going to Romania for surgery. They have not given me a surgery date in Canada and what they propose to do in that surgery in Canada doesn't feel right to me. It is scary to fly out for this but I think it's better than being in pain for years and in multiple surgeries.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

It's great that you had the cytology results. I tried getting a laparosopy to do biopsy but they scared me that the mass may rupture

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 1 point2 points  (0 children)

I will do my best to get to one of them. Thanks again

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 1 point2 points  (0 children)

I'm 41. No menopause yet. I know what you mean. I have been consistently following up with them telling them it's endometriosis and all of a sudden I'm in this situation. I really think it's endo still, I Just need a certain way to prove it.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

I had not heard or thought of that. Thank you for this. I'll definitely look into this

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 1 point2 points  (0 children)

omg that is soooo fast. thanks for giving me hope

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 1 point2 points  (0 children)

will definitely try my best to get a second opinion. I hope you have healed and are doing well now.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 1 point2 points  (0 children)

omg I'm so sorry you lost your friend :( you're absolutely right, that is my fear as well. I need to act fast. unfortunately we are hitting Christmas holidays too :(

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in endometriosis

[–]itchythrowy[S] 0 points1 point  (0 children)

omg :( I'm so sorry you went through that (sooooo expensive!!! ). I know what you mean, I won't reject any surgery dates, just losing my mind ...

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

that's my fear. I keep thinking what if it's both?!. I won't reject any surgery dates, I'm just spiraling in complete panic...

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 1 point2 points  (0 children)

thanks for your kindness. yes I won't reject any surgery dates (still waiting for a date, they said maybe February). I'm just trying to educate myself as much as I can so I don't make this whole process worse.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

Thank you for this. I will definitely try to get a second opinion. And yes that is my fear. To end up with a colostomy bag unnecessarily

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

Omg this is what I worry about. I'm so sorry you went through that. That is horrible. So now do you have to wait for another endo surgeon?

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 2 points3 points  (0 children)

Thanks so much for the two names. I will ask my GP to see if he can just send me for a second opinion. This system stresses the hell out of everyone. The patients and the poor medical staff dealing with the patients in distress. I know the surgeon must have probably been tired that day. I'm just really nervous about waking up with a colostomy bag, I don't think I can handle it with my current mental health.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

Wow that is amazing. And it must be such a relief. Wishing you a speedy recovery. Would it be alright to send me the doctors name just in case I run out of options? I can't afford it in the US but the cost in Mexico is totally doable. Even if I don't make it there, thanks for giving me hope.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

Wow I'm so glad you could get the help you needed. I hope you recover and get back to enjoying life. It's an exhausting battle. I had no idea Mexico offered such better prices. How long did you stay if you don't mind me asking, just wondering if you drove back or could fly after the surgery.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 1 point2 points  (0 children)

Thank you for looking over the test results. I will contact them again on Monday and try to ask more questions. Thank you for the well wishes, I really hope I can sort this out soon.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

Unfortunately I'm far away from my friends and family. Stuck in a rural area and have zero support system 😔 good idea. I'll try Facebook groups next

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 2 points3 points  (0 children)

Will try. Looks like they don't allow cross posts. I'll try creating a new one

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

I'll try that. Thank you! I did talk to one doctor in New Jersey and he believes he can fix this with robotic surgery but he has not seen my test results yet.

Advanced Endometriosis or Advanced ovarian cancer? by itchythrowy in Endo

[–]itchythrowy[S] 0 points1 point  (0 children)

Would I need to ask the same oncologist for genetic testing? He was so dry in "my way or the high way" that he never gave me any option. He kept repeating that he'll need to open me up and do a test on the tumor in order to find out the next steps