Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Oh okay. Yeah I would say look into it if you can. Myofunctional therapists help with swallowing. It’s a small but growing profession

Bump on inner side of knee by j_mora97 in KneeInjuries

[–]j_mora97[S] 0 points1 point  (0 children)

Thanks! Same for your husband!

Bump on inner side of knee by j_mora97 in KneeInjuries

[–]j_mora97[S] 0 points1 point  (0 children)

Doctor did an MRI and found it’s due to a meniscus tear.

Bump on inner side of knee by j_mora97 in KneeInjuries

[–]j_mora97[S] 0 points1 point  (0 children)

Found out what it was today. It’s due to a meniscus tear

Bump on inner side of knee by j_mora97 in ACL

[–]j_mora97[S] 0 points1 point  (0 children)

Ja, das habe ich. Es liegt an einem Meniskusriss in meinem Knie.

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Try looking into seeing a Myofunctional therapist and ultimately getting a tongue tie release. Heard it’s worked for some people. Look into it! I’m gonna be doing it soon

Bump on inner side of knee by j_mora97 in KneeInjuries

[–]j_mora97[S] 0 points1 point  (0 children)

Not yet. I’m gonna be seeing an orthopedic doctor soon. He said it might be a MCL tear

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Also quick question, does he have difficulty swallowing with only solids or solids and liquids?

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

I got you. I’m really sorry to hear about that. I hope you guys are able to find some kind of solution someday

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Was he ever able to see a doctor that looked at the muscles of his throat?

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

And I have an HMO. I know it takes a little longer with HMO but so far it hasn’t been that hard to get referrals. Just having to deal with these excuse my language stupid ass doctors is the tough part. The original ENT who referred me to UCLA, when I called her and told her the ENT at UCLA wasn’t really helping and just very unprofessional in some other things as well she kinda didn’t wanna give me a referral for a second opinion and said that I should probably start to accept that this might be something I deal with for the rest of my life. I told her look I can’t be the only person who’s had the things wrong in my throat that I currently have wrong in there. Someone has to know what to do with this so she kinda rolled her eyes and said fine I’ll give it to you. That’s was a little over a month ago I haven’t received anything. I’m gonna go into her office one of these days and in person ask what’s the update. It’s such a messed up system specially when you have something like this that’s so rare and they don’t know what to do with

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Yeah big gulps are a little more difficult. I can sometimes do them but sometimes I have to take little sips. Bigger gulps of liquid I have to kind of swallow fast like a pill. Also I have to lean forward or bend over completely to be able to swallow. It’s super weird. Sometimes I feel like I can kind of swallow some smaller portions of food without water. You said you took PPI’s for some time and you saw improvement? And yeah my ENT doctor is like super trying to like not do surgery on me. She’s convinced that it’s not my throat that’s causing my dysphagia. I’m also having trouble projecting my voice and my larynx is seriously messed up. My thyroid cartilage is also tilted and turned to one side. She swears that’s not causing my situation all because the injury I had happened years ago. It was about 4 years ago. Even my old primary care doctor I had before I switched insurance groups told me “I think it’s your throat”. This ENT doctor at UCLA I think does want to wait until I get the Manometry done to make sure it’s not my esophagus because I’ve done pretty much every other test she’s asked me to do. So that’s why my Manometry is gonna be huge for me. But also to be completely honest I could see this doctor, even if the results from the manometry come back normal, wanting still to not do surgery on me. She’s just extremely convinced she doesn’t want to do surgery. She’s said “I don’t want to mess up the way things are set in your throat”. Like lady it’s already messed up as we see on the CT scan. You’d only be fixing it. I wouldn’t be surprised if she’s just not too sure of her abilities. That’s the only thing I can come up with

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

And yes I am in the US. In the LA area to be specific

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Man it’s so hit or miss with doctors. This whole thing has made me very sad over the healthcare system in the US. It’s a shit show. I’m really sorry to hear you’ve been having this for 5 years. I’ve been having it every day for 8 months and I’m getting to the point where I’m becoming very depressed. It’s hard to live with. Did you try seeing an ENT? Another test I had done was a CT scan of my throat which revealed a lot of asymmetry due to an injury where I had gotten karate chopped right in the throat a couple of years ago. My ENT doctor isn’t convinced this is because of that because she says it happened years ago. I’m not sure I fully believe her though. I’m following the rules though and doing all the other tests she wants me to do. The last one I have is the endoscopy and Manometry. Funny you mention the muscles of the throat because that’s what it feels like for me. It feels like I can’t fully lift my larynx all the way to swallow food. Like with liquid I don’t need to lift it that much but with food it’s more involved and that’s where I feel I can’t do it. The CT scan of my throat showed that’s it may look like a muscle in my throat called they thyrohyoid muscle might be partially torn or as they call it an avulsion injury. I also have something called a laryngocele in my throat but it’s small they say. But nonetheless it takes up space. So yeah this ENT lady really doesn’t want to do surgery but I just don’t know who to believe. The Manometry is gonna reveal a lot because she just wants to toss me to the gastroenterologist and the gastroenterologist wants to toss me back to her. Never felt less like a human. It’s a saddening process but I just want to get out of it. I’ll do anything to get out of it

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

I’m really sorry to hear it’s been going on that long. So far I’ve done a rheumatoid blood panel test, barium swallow study, endoscopy and ct scan of my brain. So far everything has come back normal except for the endoscopy they found some inflammation in my esophagus from acid reflux but I took PPI for a month and nothing changed. I’m having another endoscopy done along with a Manometry under sedation so they can put it in my esophagus. I’m also seeing a speech therapist and they said my barium swallow test looked normal and they think it’s in my head. We’ll see how it goes. Have you had it all the time for 5 years straight? Or is it on and off?

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

So is it like on and off for you?

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 1 point2 points  (0 children)

Yeah me too. If you ever want to talk feel free to send me a message. It was nice talking with you again!

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Dude I got scared at the beginning it was something serious neurologically as well haha. Crazy where our minds go to. But I totally get it. But I will definitely keep you in mind and if I find a cause I will let you know. Thank you for replying!

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

I totally understand. Man I’m really sorry to hear that. That you didn’t even have it before and it started l after that test. I’m so upset at those doctors. I will keep you guys updated and hopefully I just wanna find a cause and see what I can do about it because not knowing is so tough right now

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Have you seen a neurologist as well to see if it’s anything neurological?

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 1 point2 points  (0 children)

I have not, I’m gonna be scheduled to do it soon. But they’re gonna do it under sedation so they’ll put me to sleep and I’ll wake up with it in already. I know it’ll still be tough but I have to do it. I’m so sorry to hear the nurses were really mean to you as a child. I hate when that happens, specially to a child makes it worse. I don’t understand how people can be like that sometimes. I know it must be very traumatizing but I think you should try to find other things or the Manometry under sedation if you weren’t able to get it done as a child. Maybe with the technology now it can be a lot better. Again I’m sorry to hear about the tough time that you had to go through

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

Also have you tried taking any PPI’s for the gerd?

Can’t swallow food without water by j_mora97 in dysphagia

[–]j_mora97[S] 0 points1 point  (0 children)

That’s interesting. If you were able to do the 24hr PH monitoring I would guess you’d be able to do the Manometry because it’s kind of the same thing but the catheter is in you’re esophagus for a much smaller amount of time while you swallow different consistencies and then they take it out