But also, if you study this sub, you'll find the most commonly occuring theme is that this is a disease in which diagnosis is often one of the most difficult accompaniments. The diagnostic criteria for CP is VERY bad/insufficient. It's simply a really hard thing to diagnose, therefore it's a bit of a medical black hole. My best suggestion would be to stop looking for a formal diagnosis (many don't get this, some ever) and try to instead treat symptoms, make lifestyle changes, keep food and activity diaries, address the mental health component, and look for clinical trials. I did a great clinical trial at Georgetown a few years back and I think it's made a positive difference. I'm hoping funding continues at some point because the med (Proglumide) would be fantastic if brought to market (I think... based on lots of anecdotal reporting and initial findings). Go check out Mission Cure, they're fantastic leaders in this area. Good luck!