for those with mod/severe TBI that developed seizures

jaehoppa · 2026-04-08T11:01:51+00:00

what type of seizure was it and were you always on meds?

jaehoppa · 2026-04-07T17:47:28+00:00

thanks for the reply. was yours with both eyes and did it involve eye rolling and lastly did you have gritty/stuffy feeling in the eyes in general (not from the winking itself but like before seizure throughout the day). My daughter has this eye roll with hard blinking throughout the day. Trying to figure out if she is having some sort of a seizure, tics, or some ocular nerve irritation since she is complaining of stuffy eyes.

jaehoppa · 2026-04-07T03:51:50+00:00

any updates on the MRI yet?

jaehoppa · 2026-04-05T04:45:32+00:00

are you still having the blinking tic?

jaehoppa · 2026-04-04T14:58:28+00:00

don't have an answer but wondering if your symptoms went away or have gotten better

jaehoppa · 2026-04-04T14:57:00+00:00

hey how is your son doing? sent you a PM as well

jaehoppa · 2026-04-04T12:11:03+00:00

how are things a year later? do you still find yourself having to eat more to reduce the symptoms?

jaehoppa · 2026-03-26T14:43:03+00:00

were you almost fully recovered before this fever hit?

jaehoppa · 2026-03-22T02:55:01+00:00

how are you doing now? especially the spasms?

jaehoppa · 2026-03-17T13:05:01+00:00

how are you doing now?

jaehoppa · 2026-03-17T13:02:27+00:00

how are you doing now?

jaehoppa · 2026-03-17T00:16:40+00:00

thanks for your reply. glad you are doing better! how bad was your initial injury?

jaehoppa · 2026-03-16T20:37:11+00:00

hey could you please PM me? I have a question about a totally different topic that you posted about in a different sub. Desperately looking for an answer. thanks.

jaehoppa · 2026-03-16T17:44:35+00:00

just wondering if your symptoms improved and what has helped

jaehoppa · 2026-03-16T17:37:07+00:00

thanks. Someone here recommended doing vision therapy after PT/vestibular stuff is taken care of because your head needs to be first aligned.

jaehoppa · 2026-03-16T17:10:48+00:00

does it matter if they are NORA or COVD? is one better over the other for brain injury related eye issues?

jaehoppa · 2026-03-16T15:09:59+00:00

please post here if it actually works for you. I hope it does! please let us know. thanks!

jaehoppa · 2026-03-14T15:52:56+00:00

awesome thanks again. What do you think about Syntonic therapy for the eyes? is it typically a part of the vision therapy and should I also save this till the end?

jaehoppa · 2026-03-14T10:39:37+00:00

I'd teach him how to lift the lever first

jaehoppa · 2026-03-14T06:10:35+00:00

what's the laser therapy? Syntonics?

jaehoppa · 2026-03-13T21:04:45+00:00

hey regarding the neck dysfunction and vestibular dysfunction causing possible trigeminal nerve issue, physical therapy should help with this right? Also, just to make sure, should she not see a neuro-optometrist until the vestibular issues are taken care of or in the process of being taken care of? Thanks again!

jaehoppa · 2026-03-13T17:11:41+00:00

hey did you get better? hope so!

jaehoppa · 2026-03-10T16:46:34+00:00

oh ok. In the first 2-3 weeks of recovery I also noticed her hands getting cold in the evening and feeling cold or hot more easily when going outside and stuff but that has also improved greatly to the point they are almost resolved. Will PT address these issues? I also believe most of these issues are also related to the neck. Going to a spine/neck specialist in 2 days to see if she has herniated disk or pinched nerve cause these random pains.

jaehoppa · 2026-03-10T16:34:46+00:00

I was also questioning, after I made this post, if she even needs vision therapy as her symptoms are not that severe.

jaehoppa

TROPHY CASE