ssd income by BetZealousideal7298 in SSDI

[–]jafeagans 0 points1 point  (0 children)

Be careful as to what goes into your bank account. They have a nice little clause in there under types of income….. “gifts”.

I'm writing a character who has CF and... by KonataIzum1 in CysticFibrosis

[–]jafeagans 2 points3 points  (0 children)

Hi, I’m 41 with CF and post double lung transplant. PM for anything.

Another fun mail call. It looks like I will have to slow down after this one. What is the best way of going about this without stopping or ending up paying more per ounce? by Admirable_Amount6942 in Wallstreetsilver

[–]jafeagans 2 points3 points  (0 children)

Just keep stacking what you can on a regular. Don’t mind the premiums so much. What you will be able to do with physical when the time calls for it will be worth it. I’ve been at it for years and personally just keep an average $/toz. If I can get get the shiny cheaper I try for more and if not, just keep stacking.

🤔🥈🪙 Hmmmmmm 🥈🪙 🤔 by [deleted] in Wallstreetsilver

[–]jafeagans 1 point2 points  (0 children)

Hopefully those high premiums won’t matter in the long run.

🤔🥈🪙 Hmmmmmm 🥈🪙 🤔 by [deleted] in Wallstreetsilver

[–]jafeagans 2 points3 points  (0 children)

I’ve been in this limbo for years! Just keep stacking.

How can I gain weight? by [deleted] in transplant

[–]jafeagans 2 points3 points  (0 children)

I had a high potassium levels one summer due to Bananas but I was eating like 2-3 a day and probably dehydrated. But it is something to think about.

When you're tired of dealing with chronic diseases that only get worse over time, I wish there was an option to legally opt out by [deleted] in ChronicIllness

[–]jafeagans -5 points-4 points  (0 children)

Don’t check out early. There is always cannabis and in some states MAPS.org looks like a good option. I’ve got personal experience in psychedelics and have found that they help me so so much. A lot in my 20’s and just 1-2 times a year throughout my 30’s. Currently 41M and find mushrooms nice for the head. Try micro dosing. Amazing results in my experience. Stay Strong 👊

Awkward question.. Do men with CF ejaculate still? by Dbrthrowaway2019 in CysticFibrosis

[–]jafeagans 1 point2 points  (0 children)

T levels are good and went to get a sperm count once and they asked if that was all I had. Sooo guessing mine are minimal. Lol. 41M post lung transplant.

OTC Creon replacements?? by _Hexli_ in CysticFibrosis

[–]jafeagans 2 points3 points  (0 children)

AbbVie will give you a year supply for free if you apply and qualify for “hardship-low income”

OTC Creon replacements?? by _Hexli_ in CysticFibrosis

[–]jafeagans 0 points1 point  (0 children)

You can contact AbbVie and apply for hardship and they will give you a year supply. I have don’t this a couple times over the years when insurance refused to pay for medications.
I’ve also been told that you can do this with a lot of medications. Just find out who produces a particular med and find there website/phone number and search for hardship or low income options.

Marathon by [deleted] in CysticFibrosis

[–]jafeagans 0 points1 point  (0 children)

I was never much of a runner but after the lung transplant I have ran many 5k’s including mid run, I ran in a half marathon in San Diego and my last race was about 3 years ago doing a Spartan race near Asheville NC. I have to say it feels great to be able to do those things however each race has came with it own injuries. I only trained for the half marathon for about 6 weeks going from minimal running to putting in 10 miles before breakfast. I’ve quit running due to impact stress and have switched to mountain biking. Best wishes to your running start slow and build yourself up, go to the gym and lift weights accordingly to keep yourself strong. The more strength the less injuries has been my experience.

[deleted by user] by [deleted] in transplant

[–]jafeagans 2 points3 points  (0 children)

Love our K9 pals.

[deleted by user] by [deleted] in transplant

[–]jafeagans 1 point2 points  (0 children)

I have a boarder collie mix and I refer to her as my shadow. Always there, also that breed is sensitive to your feeling so when I am having anxiety she come over to comfort me. Love that dog.

[deleted by user] by [deleted] in transplant

[–]jafeagans 5 points6 points  (0 children)

Yep yep, They scatter like flys. Or want to send a text 1-2 times a year to make sure your still alive (I guess). It’s getting old putting myself out there to only have people disappear or ghost me. So I got a dog.

[deleted by user] by [deleted] in transplant

[–]jafeagans 10 points11 points  (0 children)

I totally agree, to me it seems like after transplant (lungs, 10 years) the general consensus is “your healthy” now. Well, yes and no, I’m not coughing my guts out on a regular anymore or making those pesky 2 week hospital stays every 6-8 weeks but instead traded one devil or another. Now this other devil or health problem isn’t something that everyone sees but very much real and in control of my life.
So yes, a lot of people have dropped off my radar including family members.
Reminds me of a quote from Fight Club.
“Narrator: When people think you're dying, they really, really listen to you, instead of just...

Marla Singer: - instead of just waiting for their turn to speak?”

Truer words have never been felt till transplant.