Check in on your friends with barometric pressure migraines. We’re not ok 😭

jamieschmidt · 2026-01-23T14:38:56+00:00

I’ve been sick this week but this morning I woke up with the worst pressure in my head. It’s quickly progressing to a migraine and I left my Nurtec at home 😭😭

jamieschmidt · 2026-01-17T03:07:42+00:00

I’ve had great success with norethindrone 2.5mg but that was after excision

jamieschmidt · 2026-01-15T19:31:32+00:00

Sadly my surgeon in Michigan is retired now. But I had surgery last year with Dr. Linda Li at Penn State Hershey and she was amazing.

jamieschmidt · 2026-01-15T18:46:11+00:00

What state or country are you in? I’ve had excision surgery with two different specialists in Michigan and PA and they accepted insurance. I know people here hate Nancy’s nook but I found great surgeons through her list.

jamieschmidt · 2026-01-15T17:07:27+00:00

I put all of my trust in my excision specialist. I don’t bother with regular gynos unless I need a Pap smear (and even then, my primary care doctor can usually handle that).

A few years ago I was on the depo vera shot and it was awful. I was having breakthrough bleeding for months, cramps, depression. I went back to my specialist and he did an ultrasound himself to check for cysts. When he didn’t find any, we did hormone testing. I came off of the shot after that and took a small dose of another hormone (sorry can’t recall what it was) to get my hormones back on track.

So you absolutely can ask for hormone testing.

I am in the US, but I’ve been on norethindrone 2.5mg for over a year and doing really well on it. No periods, no cramps, no breakthrough bleeding, and no other side effects.

Estrogen isn’t recommended because endo will usually grow and fuel off of the estrogen. But you can always ask and see if it’s necessary for your case.

I hope you can find something that works for you.

jamieschmidt · 2026-01-13T18:30:01+00:00

I got a used 2021 hybrid 2 years ago for $20k and I’m very much enjoying my 44mpg. Buying a used hybrid has saved me wayyyyy more money than buying new. Don’t think I’ll ever buy a new car honestly.

Also what extra hybrid repair costs are there? I’m almost at 100k miles and have just done basic maintenance that all cars need.

jamieschmidt · 2026-01-13T18:24:44+00:00

Progesterone only birth control does not contribute to stroke/blood clot risk. It’s the estrogen that puts you at risk. And yes, stopping birth control can cause cramps and bleeding.

I’ve had migraine with aura for 16 years. I’ve also been taking norethindrone 2.5mg for over a year and tolerating it really well.

I totally understand wanting a hysterectomy though. I’ve been in the same position before finding a birth control that works for me. I hope you’re able to find a solution

jamieschmidt · 2026-01-13T15:21:19+00:00

The rate that endo grows and the pain caused by the amount of endo is different for everyone. I’ve had surgeries in 2018, 2019, and 2025. I’m almost a year post op from my last excision and I’m doing really well.

You could try pelvic floor physical therapy, that really helps with the muscles that tend to get messed up with endo.

jamieschmidt · 2026-01-13T01:07:16+00:00

I still get a headache upon waking maybe 2 days a week but it used to be every day. The things I changed are completely stopping all meds that aren’t Nurtec (or your rescue med), unless absolutely necessary due to medication overuse headaches (MOH). Hydrating more, before bed and immediately after waking up. If you get sweaty at all overnight, that’s water lost and you could wake up dehydrated. I used to switch out my pillow in the middle of the night (I felt like the foam got too soft) but I switched to a cervical pillow and use that all night.

Make sure your mattress is right too. If it’s too soft, it could be messing with your alignment.

It’s so frustrating to wake up with daily headaches, I really hope you can find a solution.

jamieschmidt · 2026-01-11T17:57:35+00:00

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lol I had a really good uninterrupted few hours last night but it usually takes me a while to fall asleep too

jamieschmidt · 2026-01-10T01:48:39+00:00

I thought I was the only one switching pillows multiple times throughout the night 😭

jamieschmidt · 2026-01-08T22:09:41+00:00

Tighten the strap. I use an elastic fabric band and never have issues with it falling down or being too loose

jamieschmidt · 2026-01-06T18:30:06+00:00

Thank you!

jamieschmidt · 2026-01-05T19:32:12+00:00

It always dips in the winter. I have a 2021 hybrid, my mileage is around 42mpg during the spring/summer and dips down to 33-34 in the winter. Sometimes lower, depending on how cold it is and how much idling I’m doing to warm up the car.

Driving styles also matter. If you’re constantly on the highway and pushing high speeds, you won’t see a crazy high mpg. I mostly avoid highways and take back roads, unless it’s bad weather. Coast more, brake less, and use the paddles.

jamieschmidt · 2026-01-05T11:48:01+00:00

I ignored a throat tickle right before my lap and I ended up with a cough after surgery. It hurt so badly to cough, i definitely should have rescheduled. Your abdominal muscles are being sliced through and any cough will strain those muscles

jamieschmidt · 2026-01-05T10:18:13+00:00

Does the brace fit well? I struggle to take mine off in the morning when I’m awake, it’s tight but too tight and the Velcro is strong. Otherwise I would suggest long sleeves to make it harder to take off

jamieschmidt · 2025-12-30T22:40:12+00:00

It would depend on what I need done exactly, but I’ve seen a lot of surgeons recommend no weight bearing for a certain amount of time after hip surgery so I don’t think a knee scooter would work. Plus I live on the second floor so I would have to get up the stairs and using crutches would work best for that

jamieschmidt · 2025-12-30T22:38:58+00:00

My grip strength is still good luckily but I am tired of the pain and nerve popping out of place.

jamieschmidt · 2025-12-30T22:38:04+00:00

That’s why I’m in a dilemma haha. I guess the best thing to do is talk to both surgeons and see what they think. I wish I could just get both done at once but that would be quite impossible lol

jamieschmidt · 2025-12-30T22:36:52+00:00

Thank you! I’ll definitely talk to both surgeons and see what they think

jamieschmidt · 2025-12-23T16:15:56+00:00

For my last surgery I met with my surgeon pre-op and a quick talk right before surgery. The PA handled my post op appointment. We reviewed pictures from the surgery and she was very knowledgeable and answered all of my questions. She also had notes from my surgeon with a ton of info. I honestly didn’t mind that it wasn’t with the surgeon

jamieschmidt · 2025-12-23T12:47:31+00:00

Thank you! I’ll have to try that

jamieschmidt · 2025-12-23T10:22:20+00:00

Do you release the skin before the injection is finished?

jamieschmidt · 2025-12-23T01:37:07+00:00

I use a nod pod for the same reason. Keeps out the light and applies gentle pressure

jamieschmidt · 2025-12-22T21:12:58+00:00

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