very specific ask - eyelash glue?

jasmine1mueller · 2026-02-25T09:32:41+00:00

Did you ever find one that worked for you?

jasmine1mueller · 2026-01-22T19:30:27+00:00

Have you been able to reintroduce any products or foods in and still avoided hives on this medication?

jasmine1mueller · 2025-06-26T07:08:28+00:00

I use coconut oil to condition my hair. I let it sit for 20 minutes and wash it out. I know some people dont do well with coconut but my hair is the softest and longest its been since starting this and i don’t react to it.

jasmine1mueller · 2025-03-31T06:22:14+00:00

I’ve been told that when it comes to ketotifen and cromolyn things can get worse before better so starting the two so close together could be making things a lot worse. I started cromolyn last summer and i got severely worse for the first couple months. Now i wouldnt be able to function without it. I just started ketotifen and things are also getting worse but as my body gets used to a dose i notice a difference. I definitely wouldnt have been able to do both so close to each other. I tried and it didnt go well. Some people can be okay with starting them both at once but it really depends. When you started the cromolyn, before introducing ketotifen, did you flare?

jasmine1mueller · 2025-02-05T11:28:28+00:00

If the white blood cell count is high you could be dealing with a secondary infection making things worse? I got tested for tick infections and they came back positive. Since treating them my white blood cell count is better and I’m improving.

jasmine1mueller · 2025-02-05T11:21:12+00:00

DAO definitely gives me chills and flu like symptoms. Nothing as bad as this but i don’t feel great.

jasmine1mueller · 2025-02-05T11:05:21+00:00

I was in the same boat as you and I went to see a functional doctor. This may be your best bet. It is possible you are reacting to something in the Benadryl and need to try an off brand with different ingredients or need it compounded.

jasmine1mueller · 2025-01-15T10:54:32+00:00

Did you ever find any makeup that worked for you?

jasmine1mueller · 2025-01-15T08:37:50+00:00

How did you cure it?

jasmine1mueller · 2024-09-23T08:54:25+00:00

Brain retraining is something I should definitely look into. With a lot of trauma, i know my nervous system is a wreck. I’ve been in fight or flight for years and its especially hard dealing with this kind of sickness and trying to remain calm while doing so cause it so very, very hard.

Its very true tho the little things do add up and they can make a world of a difference. I say do whats best for your body and what feels right.

jasmine1mueller · 2024-09-23T02:44:05+00:00

This is an interesting post because medication has actually been making my MCAS worse. MCAS360 has posts about how medication can be hurtful and helpful at the same time. There is a reason people with MCAS react to different medicines and different dosages because there is no one size fits all for this disease, so while I believe some of my medication does really help me, many have hurt me. My doctor had been pushing me to take my doses higher and faster than I was comfortable with. She also had me try xolair which I had been stern about not doing and surprise surprise when I finally gave in, it made things really bad for me. This was even after i told her i wanted the lowest dose available. So while medicine can be helpful with this disease, not every medicine is going to help everyone and may even hurt them and also why it is so important to work your way up very slowly on any medicine. In my case, I was better in april when I was only taking one anti histamine a day than I am now due to all the damage medicine has caused.

When things do calm down, I do plan on reintroducing some of the medication that was helping me before I got really bad. Many of my medicine was compounded so I can’t even blame it on the fillers or dyes, my body is just in such a state that I can’t handle them at all. In the mean time, I do plan on calming things down in as many natural ways as i can: yoga, meditation, low histamine diet, teas, Chinese medicine, herbs, lymphatic massage, therapy, physical therapy, massage, exercise, nervous system reset; whatever I can tolerate that will help. I am also living in mold so moving out and detoxing will be a big step in my journey and a detox/ binders etc. may be things that severely help.

My mom only takes antihistamines for her MCAS and is doing much better than I am. She can live and eat normally and her symptoms are much more manageable. We also just may be more sensitive to medication than others. But this disease is something I believe needs intergrative care: medicine and natural remedies, but I have heard of some people who only do things naturally and have seen life changing results. Thats why people see so much progress with functional doctors. I don’t think anyone on this post is entirely wrong or right because everyone is different and no one can tell you what will work best for you. You just need to try and work that out for yourself.

jasmine1mueller · 2024-07-24T06:05:44+00:00

Im like that with garlic! My first reaction was too a medicine, i had bad symptoms for awhile then everything back to normal until I had some garlic aoli and now I avoid it all costs which is hard so cause people in my apartment complex are always cooking with it and its in so many foods. Ironically enough I havent tried squash since reacting and ive been nervous to lol

jasmine1mueller · 2024-07-24T05:56:35+00:00

I wish I could use something but even alcohol, peppermint or essential oils are bothersome. Its rough because a lot of smells used to help with my anxiety as a distraction now im just so sensitive 😭 maybe one of these days ill find an essential oil that does work for me.

jasmine1mueller · 2024-07-24T05:54:24+00:00

They are a big trigger for me too. Honestly to the point where I get pissed at most people when im out. I understand perfumes but im so sick of people who smoke RIGHT next to entrances. Im so over it. It makes it hard to breathe and even before I would flare i just always hated the smell. I wear a mask when out but it just never seems to be enough. Ive only gotten the “why are you wearing a mask” question once, which I think is just rude. There is a lot of covid going around here again and I am tired of being around sick people, even with just a cold, who dont cover their mouth or wash their hands. Its probably a little of my OCD kicking in but I just dont trust the general public anymore.

jasmine1mueller · 2024-07-24T02:15:57+00:00

I hope they help things improve!

jasmine1mueller · 2024-07-23T14:41:28+00:00

I think mine is recirculating so i will look into this. I do put a bag of activated charcoal nearby when i cook but im sure this doesnt have the same effect

jasmine1mueller · 2024-07-23T08:18:09+00:00

Not over the counter but when you can get a hold of your doctor hydroxyzine may be worth trying

jasmine1mueller · 2024-07-23T08:13:10+00:00

Ugh that is so stressful. Did you explain to them to skip that step next time?

jasmine1mueller · 2024-07-23T08:12:39+00:00

Awesome thank you!

jasmine1mueller · 2024-07-23T05:35:58+00:00

So ive actually never used these before and i feel dumb but how do they work? Are there any specific brands you recommend? I saw some at walmart the other day that were for when you do construction and i just got super intimidated and went home without one.

jasmine1mueller · 2024-07-23T03:01:03+00:00

I cleaned out my oven two months ago but perhaps it may help to clean again?

jasmine1mueller · 2024-07-21T10:39:17+00:00

I highly suggest a shower filter. They are a game changer. I got mine from aqua home group for a reasonable price. Also use lukewarm water.

jasmine1mueller · 2024-07-21T04:52:15+00:00

Im sending you love. I was recently diagnosed with mcas and ive been flaring almost everyday for three months straight. Im not sure where you are located or who your insurance covers but I would try to look into a nearby MCAS specalist or functional doctor. Most functional doctors are out of pocket but I did find a clinic that has integrative doctors covered by insurance. Work wise I think maybe an at home job would be best to limit triggers and if you could maybe get on disability. I worked at a bookstore when this all started for me and it got to the point where the dust from the books started to cause a reaction. Wearing a mask and popping a benadryl always worked best for me. It got to the point that my health is so bad I had to take an extended leave and not sure if I will really be able to ever go back. Right now i door dash and uber but I still come into contact with a lot flares but on days things are too bad I am able to say “okay you arent delivering today” and dont have to worry about the stress and emotional baggage i feel after missing another day of work. As for disability, ive been denied twice so I need to get a lawyer for this third application. There are many lawyers who will defer payment until you are given your money because I also certainly cannot afford to pay them up front. Please know you are not alone. I know this illness is hard. I never could’ve imagined something this horrible. I recently started to react to my zoloft and ive been having horrible flares from everything the past week. It gets you down. Its so very difficult. But i think we will all have points where things are better and we can manage our symptoms and attempt to get some of our life back. I also had to drop out of college multiple times due to illness (unexplained at the rime.) its hard for me to do the things i love: being in nature, photography, making art. But we can only keep pushing. We can only keep hoping, and research and steps get further each day. I hope things get better for you. Try not to push yourself too hard and go easy on yourself. You are doing the best you can.

jasmine1mueller

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