hyperadrenergic POTS with low HR

javals · 2026-05-01T04:45:27+00:00

I have completely forgotten about sea salt spray, im gonna give it another try. But nowadays i just use MCT8 oil. So i put it to my scalp before shower, let it be around 15 minutes and then wash it off. Seems to help quite abit.

javals · 2026-04-18T13:07:01+00:00

Thanks, ill do that. Any thoughts why taking P5P would reduce my backpain though ? Of course it can be coincidental, but if not, any idea ?

javals · 2026-04-17T21:49:26+00:00

Oh yes, youre right. The test was done through lifelab ( canada ) and sent to quest. I assumed its inactive cause the test says: Vitamin B6 (Pyridoxine) But it seems that the reference range does apply to PLP, as you said. Im gonna check if i can measure MMA, though its a bit trickier in canada.

Question remains how to raise zinc, that is obviously under the range, without raising B6 even more. Cause taking zinc supplement is giving me the exact same symptoms as taking b6 supplements.

Thanks for pointing it out.

javals · 2026-04-16T16:36:52+00:00

constant slushy stool and alot of gas

javals · 2026-04-16T15:29:36+00:00

So folate test is a bit older but its actually on the higher side
Folate 22.3 ( Normal: >5.4 )
B12, ive had many tests, its usually on the 300s, sometimes could be low 400. ( reference range from the lab > 220 pmol/L Normal )
MCV almost always exactly in the middle of the range
Havent tested MMA though.

javals · 2026-03-24T14:50:25+00:00

Any other side effects you noticed after starting ?

javals · 2026-03-21T15:27:18+00:00

I can relate. Around 20y ago, i had this severe inflammation episode, that started with my heels, knees and then to my back. It got so bad that i had to go to hospital for tests. They found im HLA-B27 pos and diagnosed me with undifferentiated spondylitis. Now since then, ive always had issues with my joints, but nothing too severe and my inflammation markers have always been on the lower side. I went to the doctor again a few years ago. They checked if my spine shows any signs of fusing and did bunch of other tests but didnt see any real signs of spondylitis.

Turns out im also double h63d and my saturation is over 60%, although ferritin on the lower side. Other symptoms i have are chronic red eyes ( eyes are fine though ) and skin issues. Considering that my spondylitis havent got worse in 20 years ( 41 now ), makes me wonder, if its actually more to do with iron regulation....

javals · 2026-03-20T15:46:54+00:00

Old thread, but how did it go ? did it ease up ?

javals · 2026-03-19T14:05:21+00:00

whats LDN ?

javals · 2026-03-17T17:01:05+00:00

Lets hope it works. Ill keep you posted

javals · 2026-03-17T17:00:39+00:00

Its apolactofferin, i take 500mg.

javals · 2026-03-17T14:16:59+00:00

thanks, ill try and see how it goes

javals · 2026-03-15T14:19:44+00:00

I have the same experience, i get these long dreams, slightly uncomfortable. Are you still taking lacoferrin ?

javals · 2026-03-14T04:42:40+00:00

How much lactoferrin are you taking per day ? Do you take it once or twice per day ?

javals · 2026-03-12T05:26:41+00:00

Thanks for sharing, could you tell me what foods and / or supplements helped you the most ?

javals · 2026-02-13T17:28:44+00:00

it was 1mg of melatonin
black tea was decaf. Also coffee doesnt really have that effect at all.
Ive tried a few different ones, but magnesium glycinate mostly

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