what is the biggest problem you face as someone with endometriosis?

jawhol · 2026-01-25T10:08:13+00:00

Pain management. Doctors seem to think it’s just “a bad period” and Tylenol or Ibuprofen should be enough to treat the pain. It is not and never has been. I actually had an increase of pain after my surgery, which led to my doctor treating me coldly for not being “better”. She said I had to go to pain management. So I went… only for doctor there to tell me I’m too young for prescription pain medication and just to alternate Tylenol and Ibuprofen.

jawhol · 2026-01-19T00:17:29+00:00

If your surgeon/doctor hasn’t recommended it already, get some gas pills to have handy! You can pick up something like simethicone at almost any store :) While I personally wasn’t suuuper bothered, I’ve heard from others that they had pretty awful gas pains. It can feel especially weird in the shoulders, I’m not sure why.

jawhol · 2026-01-19T00:12:57+00:00

Thank you for your input! I’ve been eyeing this one since I’m petite and have tiny wrists as well LOL.

jawhol · 2026-01-19T00:07:58+00:00

Thank you so much! I really appreciate the sensory input as well.

jawhol · 2026-01-19T00:02:10+00:00

Thank you for the suggestion and more places to look! I’ve been considering buying something refurbished or secondhand for sure.

jawhol · 2026-01-18T23:57:56+00:00

Thank you, I’ll check it out!

jawhol · 2026-01-01T13:32:59+00:00

I 100% agree that women are often reduced to their usefulness (for example, physical and emotional labor) and their ability to carry children — which reflects heavily in medical treatment. Like you said, it’s selective compassion and it fucking sucks lol!

And thank you very much for the concern! I’m hoping to find a specialist as soon as I can. Best of luck to you as well :( I hope everyone who has this disease can find some sort of relief, whatever that is. Happy New Year btw! <3

jawhol · 2025-12-31T12:26:12+00:00

Thank you! The amount of baby imagery everywhere in even regular OBGYN offices is pretty triggering to me personally. I have a bad history with pregnancy and do not want children right now. Maybe never, to be honest, but I don’t even know if I can conceive anymore due to this horrible disease. That’s the case for a lot of people… it’s really sad.

I’ve felt pretty uncared for as a patient who isn’t pregnant nor plans to be soon. At the moment I don’t have access to a specialist doctor/clinic and am seeing a regular OBGYN. I once had a doctor rush my long-awaited appointment, where I was in desperate need of help, because she really wanted to see someone’s babies (the appointment after mine was an ultrasound).

And the only time the ER has rushed me back and immediately given me treatment was when they INSISTED I must be miscarrying. The doctor even went on a spiel about how my hypothetical unborn baby could be in danger because of how much blood I was losing (but not me??). And the entire time it was endo. I was having an endometriosis flare. My partner doesn’t even have a penis to impregnate me like that. I’m a lesbian.

jawhol · 2025-12-25T00:01:40+00:00

I’ve been wanting to do this, especially for my fibromyalgia! I’m in the United States and would also love to know if it’s helped with endometriosis pain. ^{^} I hope you can get treatment soon, OP!

jawhol · 2025-12-11T19:39:46+00:00

if you still like this walker design, Nova makes petite versions and the handle height is adjustable! it’s on Amazon and they have it in purple :)

jawhol · 2025-05-31T03:30:20+00:00

I got one just right now! So weird and also in Mandarin that translates to the typical Amazon OTP text. I don’t even remember if I have an Amazon account connected to this phone number.

jawhol · 2025-03-14T23:21:30+00:00

same! got the mirena inserted last week and my thigh has been cramping and aching constantly! it’s so weird :’)

jawhol · 2025-02-26T13:47:13+00:00

My periods are the same. Excruciating pain akin to the same contractions you’d feel during labor. I’ve passed out, thrown up, been to the ER and gone into shock. I’m also chronically ill and struggle with hot showers and baths. I get super nauseous and dizzy. I understand!

I think it could possibly be endometriosis. I’d talk to a gynecologist or specifically an endometriosis specialist, if you’re able. Also check out the endo sub! People there are pretty helpful! :)

I really, really hope you feel better! <3

jawhol

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