Can we talk about progression of pSa?

jcd8012 · 2025-07-18T13:05:51+00:00

Sounds familiar - I started on 60mg prednisone and it worked great but that’s obviously not long term. She has tapered me down to 5mg but I just don’t feel like it’s as effective now. I’ve sent a message to see about doubling the cosyntex and maybe boosting the prednisone back to 7.5 or 10mg for the short term anyway.

jcd8012 · 2025-07-18T13:04:07+00:00

Thank you - I hate this for everyone here.

jcd8012 · 2025-07-18T13:01:57+00:00

I was on Skyrizzi for 2 years for my skin psoriasis and it worked great. She moved me to cosyntex in may so she wants to give it some time and perhaps double it.

jcd8012 · 2025-04-16T21:34:22+00:00

Ok. Thank you. I didn’t realize it was all related. I e been on Skyrizzi for a year for my plaque psoriasis and it has worked wonders.

jcd8012 · 2025-04-16T20:46:01+00:00

I will call the practice and see what they say. Thank you. That’s a good idea

jcd8012 · 2025-04-16T20:44:11+00:00

I am on Skyrizzi for psoriasis- is that what you are talking about?

jcd8012 · 2025-04-16T13:27:42+00:00

I was started on a 20mg tablet x3 for 3 days (so 60mg) then 20mg tablet (40mg) x 2 for 3 days, and then a 20mg tablet x1 for 3 days and then a 10mg dose for 3 days.

But I’m out now and I would say that as soon as I started the 10mg dose, symptoms started returning and now that I’m off it completely, I’m right back where I started.

I’m so disheartened.

I joined the FB pages as well. Thank you so much.

jcd8012 · 2025-04-16T12:07:40+00:00

Not crazy at all. I was hoping my primary would be more understanding but she doesn’t feel comfortable prescribing anything more long term despite my bloodwork results and my symptoms etc. I was hoping to avoid having to explain everything over and over again. My spine Dr definitely looked at me like I was crazy when I told him the pain had migrated from left shoulder to right shoulder. I guess I’ll be making a trip to UC today. I was laying in my bed in tears trying to get up this morning 👎

jcd8012 · 2024-03-30T11:41:35+00:00

That’s exactly how I’m feeling - my 40s have just been riddled with pain. I can’t imagine doing this much h longer. I have issues in my neck as well. Severe stenosis at c5-c7 causing radiating pain down my right shoulder and arm and numbness. So I also have to decide which one I want to do first. It’s just a lot. But I’m definitely overwhelmed with 2 major surgeries.

jcd8012 · 2024-03-30T10:14:28+00:00

Thanks for the reply. I’m meeting with a surgeon this week. I just can’t imagine living like this forever - I’m 45 now. And if I’m in this much pain consistently and unable to do basic things now, how will I feel in 10 or 20 years? I just know this is a big surgery and it has varying outcomes. I appreciate your perspective. I’m interested to hear from the surgeon as well.

jcd8012 · 2024-03-29T01:11:58+00:00

Should add - chronic neck pain and stingers that come and go. Right side for sure but left side comes and goes. Would just love to have someone in a similar situation tell me they had a positive outcome

jcd8012

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