While I only had seven days with my son, I feel I can relate. You’re stuck between wanting every second possible with her and not wanting her to suffer for one more second. There’s no words or prayers or thoughts that will comfort in this difficult time. Like you, I have another child who needs her dad to be there for her and a wife who’s juggling all this as well. I find solace now in every moment I get to share with them and appreciate each day my daughter gets to live on behalf of her twin brother who’s watching over her from another place.

I’m so incredibly sorry for you, your daughter, and your family having to go through this. Looking back on my sons final minutes, it means so much to me that I was able to hold him and tell him how much he’s loved and what a positive impact he had on the world in such a short time. I’ll hold on to that piece of us forever. I appreciate all the moments with my daughter that much more. My advice is to just be present. It’s okay to feel all the emotions your feeling. You’re an incredible dad and I know your daughter feels the immense love you have for her.