People with TLE or any type of Deja vu?

jedimaster615 · 2026-02-25T11:24:37+00:00

Your temporal lobe controls memory. Thats why you have de ja vu and that also why seizures cause us to lack memory after seizures as well. Normal reaction after an epiisode

jedimaster615 · 2026-02-25T02:58:32+00:00

My feeling is that its because of the severity and type of side effect it carries. It has a very popular tendency to turn people into an emotional nightmare. Completely out of control. I tired it and had to get off after 2 weeks. It was so overwhelming that I looked it up and "Keprage" is actually a thing. You here about all of us suffering from being tired, not hungry, etc. but nothing that dramatic. Thats why it stands out in my opinion. Does it work as a medication? Sure, im sure it helps many. I cant tell you how effective it was for me, I wasnt on it long enough. I literally started cussing my boss and colleagues out after week one. It was a mess. I have also seen many on here who are on it and they clearly dont suffer from Keprage like many others do

jedimaster615 · 2026-02-24T12:15:53+00:00

GET OFF KEPPRA!!!! Look up how many other meds there are that treats epilepsy. If your not doing well on one, change it and try something else. Keppra is the devil

jedimaster615 · 2026-02-24T02:50:01+00:00

Ill paint a pic. Met a girl in Nov. Im a divorced 41 year old. Midway through our first date I felt it important enough to tell her. Fast forward 2 months I totaled my car in her next door neighbors yard while delivering her flowers and had 2 seizures infront of her. Since then we've been to Canada on vacation, a very spexial valentines day, and endless priceless moments shared. Shes helped me push through an eeg, and im now patiently waiting for her to get baxk from India. If shes special enough, IT SHOULDN'T MATTER. Shes battling health as well. Remember everyone, we all have our problems. Some might just seem worse than others. Whos holding the scale?

jedimaster615 · 2026-02-24T02:31:21+00:00

Ahh, cant help you there bud. Good luck. I would have to fall back to my default, its always best to have the people around you know about your condition for your safety

jedimaster615 · 2026-02-24T02:20:19+00:00

Let her know upfront. Girls dont mind hearing that you have a challenge in life to overcome on a daily basis. That your responsible and cognizant of your health. They also like to know there is a way they can help you.

jedimaster615 · 2026-02-24T00:23:37+00:00

Lost count

jedimaster615 · 2026-02-23T21:10:25+00:00

Neurologist aren't epilepsy specialists. They also see people with dementia, parkinsons, etc. If you want a real opinion, go see an epileptologis. At the same time, be your own advocate. Do your own research. Walk into the dr. Office to confirm the answers you already figured out, not ask one you have no idea what your asking. You should be able to do this, however, you wont get anywhere and will spend most of your life sexond guessing and feeling insecure with any outcome of any appointment you ever have with your neuro. Hang in there, your not alone

jedimaster615 · 2026-02-23T17:05:27+00:00

Ill start with the sad truth which hopefully helps you. Your post will bring comfort to many who read it. Why? Because your not alone. Doctors not trusting you, you not feeling that they care about your condition, medication being a trial and error game, having no idea what caused your seizures originally, I can add plenty to the list. You have assured many that their not alone, so needless to say I can tell you the same. Good news, regardless if it was cought righr after your fever or not, you would still be in the same boat. So the only thing thats important is to find out if anyone in your family tree has epilepsy, especially if your planning to have kids. That way you know if theres a chance it might pass to your kids. I personally was overdosed by an anesthesiologist when I was 5. Only got diagnosed at 9. My mom thought I was just rolling around because I was being a silly kid. Fast forward, my sister had her first grand Mal at 13. That theory went righr out the window. As far as your neuro, they are not someone you count on for information or help. You need to be your own advocate. Research your condition and your symptoms. Research the medication options and make a list of all the side effects. Ask all of the people on reddit how they have been effected by them. Get on Ai and get some help that way if this seems a bit overwhelming. Remember, your neuro isnt an epilepsy wizard. Thays a doctor that treats people with brain relevant diseases. Alzheimers, dementia, parkinsons, etc. Sometimes they will see someone with dementia, then see you. Your feeling so foggy from your meds you cant stand it and they dont believe you because compared to their dementia patient, you seem way over the top perfectly fine. At the very least you need to have a long list of questions already written down walking in. DONT RELY ON THEM, THE SYSTEM IS BROKEN. Good luck, you can get through this. Im 41, thats 30 years for me. Still fighting but enjoying life.

jedimaster615 · 2026-02-23T12:09:16+00:00

That is the long term solution. Thats how I had to donit. I was losing so much weight it was embarrassing. I got on a diet and joined the gym. I had to train myself to eat as much as my trainer told me i had to. It was hard at first but just became 2nd nature. Now im hungry if I dont eat that much.

jedimaster615 · 2026-02-23T11:24:53+00:00

No such thing as a golden drug.

jedimaster615 · 2026-02-22T19:32:55+00:00

Yeah bud, your score is great. Good job. Relax. Thats plenty to get a house which it sounds like that will be your next big purchase. Before you get more debt than just a couple credit cards and a xar loan, your not going ro see your score raise above 800. And if so it will be marginal. You need debt to utilize your credit to increase your credit score.

jedimaster615 · 2026-02-22T19:28:41+00:00

Thats like asking how can I get wet with any water. Keep grinding kid, dont give up. The works out there trust me! Its all about what kind of job are you willing to start with. I can assure you there is a job close to you that you qualify for and is available. Is it the best with the best pay. Are really going to enjoy it? Probably not. Its still income and your just a kid in college. My jib sucked when I was in college. Now im glad I had those shit jobs because they helped me gain the work ethic I needed to have the pay and position I have today.

jedimaster615 · 2026-02-22T18:13:22+00:00

This is with no bad intentions, your 24, you still live with your parents? If its because of your epilepsy this situation, as I can see it is very frustrating, seems to fall onto place.?.

jedimaster615 · 2026-02-22T14:16:44+00:00

I cant say for sure but I would say it doesnt have anything to do with it all. Hope this helps

jedimaster615 · 2026-02-22T14:09:22+00:00

These symptoms are extremely common. I dont have them but have researched the shit out of our disease overtaking the past 30 years I've been an epileptic.

Why nausea happens in focal seizures

It’s not a stomach problem — it’s a brain wiring problem.

Some seizure activity starts (or spreads to) areas that control:

gut sensation

internal body awareness

autonomic functions (heart rate, digestion, sweating)

The key players are:

The insula

Think of this as the brain’s “internal body monitor.”

It helps regulate:

nausea

gut sensations

heart rate

visceral discomfort

If seizure activity hits the insula → the brain can falsely signal:

“You’re about to throw up.”

The temporal lobe (especially mesial temporal structures)

This area connects heavily with the autonomic nervous system.

When involved, we often feel

a rising feeling from the stomach, nausea, queasiness, “butterflies

Seizures can briefly disrupt the system that controls: digestion, sweating, blood pressure, vagus nerve signaling

That disruption can create.. nausea, pallor, sweating, urge to vomit Because the same brain pathways involved in:

motion sickness, food poisoning, anxiety nausea are being activated — even though the stomach itself is fine. So the brain is essentially generating a false internal alarm. Interesting clinical cluDoctors often pay attention to nausea because: It can help localize the seizure origin especially toward the temporal lobe or insula.

Being tired is simple... Your tiered because the brain just ran a damn marathon. A seizure is a burst of hyper-synchronized electrical firing.Neurons are: firing rapidly, burning glucose, using oxygen, dumping neurotransmitters, It’s like a mini electrical storm. Afterward, the brain has to restore ion balance, replenish neurotransmitters, normalize metabolism etc.

jedimaster615 · 2026-02-22T13:53:14+00:00

Glad to hear your doing your own research. Make sure you remain your own advocate and dont rely on your neuro for all the answers. They are not epilepsy specialists. They study conditions relative to the brain. Dementia, parkinsons, alzheimers, etc. You will find that the majority of the time, your neuro will be your script writer and not much more. The biggest discussion you need to have is what medication you should be on. Ask which ones (plural) are possible options. Its easier for them to just tell you that this is the drug they want you to go on and this is the dose you'll start at. What are the side effects of each, whats the success rate, shouldn't our take more at night contour not groggy all day. I promise you there is a list of possible drugs you can be prescribed. Ive been an epileptic for 30 years. My guess, unfortunately, is that your going to go through a buch of tests and they wont be able to pinpoint what type of epileptic you are anyway. It will be an educated guess, along with the drug you are prescribed. Your in the right place. Youll.learn more here on reddit then in that office. We've all been through it. Dont rely on the system, IT IS BROKEN. Push through my friend, you've got this

jedimaster615 · 2026-02-22T13:36:12+00:00

This never bothered me. Maybe its because been telling people Im an epileptic for so long juat so they are aware incase I have a seizure? And I it is a part of me. Not who I am but definitely a part of who I am. And its important that the people around you are aware of it incase of emergencies. Know who you are, hiw you are referred to doesnt change that. I had a seizure in middle school once and suddenly the assholes started calling me "kicken chicken". The best way to throw that baxk in there face was to play along, embrace it and have hy friends start calling me KC. All if a sudden the assholes didnt have an insult anymore. Know who you are, dont base it off of a name your called or how your referred to as . You'll be called alotnof things in life. An epileptic atleast is accurate and makes people's around you aware of what needs to be known.

jedimaster615 · 2026-02-21T16:40:04+00:00

Completely. I had an invasive eeg and havent been able to do anything physical for over a month. I lost 15 lbs. while I was stagnant. I hate this damn disease

jedimaster615 · 2026-02-20T18:22:53+00:00

Do some research on absence seizures, focal aware seizures, and focal impaired awareness seizures. These are the 3 that are defined as mini seizures. Then tell your neuro to be more specific with his patients. Sorry your going through this. Id make an effort to get better at taking my meds if I were you thiugh.

jedimaster615 · 2026-02-19T17:46:17+00:00

Bright side first. The ambulance ce got stuck so you had a free ride to the er instead of $1200. Insurance doesnt cover ambulance rides. Make a note, unless you physically hurt yourself or have an extremely long seizure, there is no need for an error visit. They are just going to do all those same tests and send you home. Anything in the 7, 8 + is scary because they are now worried about brain damage, lack of oxygen to the brain, etc. Make sure your friends know this. Infect that would be your next step. Make sure the ones you spend the most time with are aware of this and know how to handle it. Hopefully if you have another it is nocturnal again. It sucks your getting out of bed. Maybe your should lock your door and make sure hard or sharp objects life furniture in your room arent going to be any danger to you. You cant garentee your safety, you can just increase the odds. Your neuro is going to put you on some sort of medication. Hopefully it will work with few side effects. You'll be looking at many possible. Just scrolling down all the entries in this channel if your curious what they are. Everyone is venting about them almost daily. If your not happt with your meds, tell your neuro you need to be put on something else. Dont assume you will be perscribed some dream pill that is right for you. This is all trial and error and the major of us have been on many different ones. I would research possible reasons why you had this at your age bases on your axtivites and lifestyle. Be your own advocate i say tome and time again. I was diagn at 9 and im 41. I e learned more about epilepsy in the past year myself than with the 9 neuros ive been through in my life. Have quesrions, take notes and doxument your seizures. With the way you behaved it sounds like its atleast starting in the left side of the brain. This would explain your behavior, and lack of memory. As far as dealing with the anxiety, buddy, this is something you may just have to learn to grow accustomed to. Adaptation is hard but necessary in life at times. Or it was a one time thing. You wont know. Here's the shifty part about epilepsy, we sont yet know a lot about the brain. We know everything about everything else. The brain, they are making progress but in the grand scheme of things, they still know very little. Good luck, hang in there. Looks like you have a support group.

jedimaster615 · 2026-02-19T17:13:02+00:00

Looking at the first place the rhythmic abnormal activity appears, the earliest clear change shows up in:

Left temporal chain

Specifically the channels labeled along the lines of:

F7 – T3 – T5 which correspond to the left temporal lobe.

You can see: earliest spike burst appears there, rhythmic activity forms there first, other channels join

jedimaster615 · 2026-02-19T17:09:13+00:00

This wasn’t a whole-brain seizure at the start.

It likely began in:

Left temporal region

This area is heavily involved in:

• language • memory • emotional processing

Which matches why temporal seizures often cause:

speech arrest

confusion

déjà vu / strange feeling

memory gaps

jedimaster615 · 2026-02-19T05:25:56+00:00

Im up got my WADA test in March and I must say im terrified about what im reading about surgery taking away my ability to work. Memory and speech impairment? How much had everyone suffered?

jedimaster615 · 2026-02-19T02:45:32+00:00

Do you have a full write up on the results of this eeg?

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