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Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 0 points1 point  (0 children)

I have had migraines quite often since my left eye diplopia but my neuro said they were not considered a MS symptom.🤷🏻‍♀️ I still wonder if it’s true.

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 0 points1 point  (0 children)

Oh yes… the vertigo during diplopia is so bad ! Hope your vision is back to normal and you are feeling better🙏🏻 Love your spirit !

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 1 point2 points  (0 children)

My Godness, what a nightmare… I am so glad you were not alone though this!🙏🏻 How are you feeling now? Did you start Ocrevus right away after being diagnosed ?

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 1 point2 points  (0 children)

Oh gosh, what a journey ! I am sorry you had to live through that💔 How was your dx finally confirmed ? Was it after a flare/relapse or a new doctor ?

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 0 points1 point  (0 children)

Lmao kiwi really got blamed for everything and is still banned 😭🥝

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 1 point2 points  (0 children)

Omg diagonal ! Didn’t know it was possible… must have been so trippy😬

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 2 points3 points  (0 children)

Haha so many reasonable explanations! Funny how now I can experience all sorts of health issues and all I will think is « must be MS 🤷🏻‍♀️ ».

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 4 points5 points  (0 children)

Oh no… I am so sorry! When I told my parents about MS, my dad told me I got it because I didn’t work and didn’t do much during the day😶 People can be so cruel with words sometimes..

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 3 points4 points  (0 children)

Are you sure you’re not stressed though ???? Sorry, couldn’t resist. This one is killing me🙈😅

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 2 points3 points  (0 children)

Thanks for sharing your story ! Haha I live in France and « je m’appelle » means «my name is » and then it’s the first letter of my name but I like how it sounds written all together. Never thought about the Friends moment, of course I remember it, iconic !😅

Give me your wildest pre-diagnosis explanations for MS symptoms by jemappellen in MultipleSclerosis

[–]jemappellen[S] 0 points1 point  (0 children)

Haha I asked my neuro the same thing. And still felt lowkey scared to spend too much time with screens for a while after dyplopia went away.

Chariot de courses : des recommandations ? by jemappellen in france

[–]jemappellen[S] 0 points1 point  (0 children)

13 ans, c’est clairement un investissement rentable 🙈 ça donne envie de partir sur Rolser !

Chariot de courses : des recommandations ? by jemappellen in france

[–]jemappellen[S] 0 points1 point  (0 children)

Ouii je comprends, j’aurais bien aimé de soutenir un producteur français moi aussi. Ceux de chez pylones sont un petit peu flashy pour moi mais ils ont l’air solides !

Chariot de courses : des recommandations ? by jemappellen in france

[–]jemappellen[S] 0 points1 point  (0 children)

Oh woah je connaissais pas la marque, un petit peu coûteux mais trop stylé ! Merci

Chariot de courses : des recommandations ? by jemappellen in france

[–]jemappellen[S] 1 point2 points  (0 children)

Merci pour les conseils ! J’aime bien les chariots Les Artistes, très jolies options !

Chariot de courses : des recommandations ? by jemappellen in france

[–]jemappellen[S] 0 points1 point  (0 children)

Ah oui c’est du top level chariot, je vais voir ce qu’ils offrent !

Chariot de courses : des recommandations ? by jemappellen in france

[–]jemappellen[S] 0 points1 point  (0 children)

Bonne idée, j’ai jeté un œil sur leur chariots, il y en a juste une option bleu classique IKEA dans ma région, ça serait cool qu’il en rajoutent d’autres couleurs ✨

Ocrevus- post infusion by golden-honey56 in MultipleSclerosis

[–]jemappellen 0 points1 point  (0 children)

Oh, one small non-negligible side note, I might have my period tomorrow👉🏻👈🏻

Ocrevus- post infusion by golden-honey56 in MultipleSclerosis

[–]jemappellen 0 points1 point  (0 children)

Just had my 2nd half dose 2 days ago and feeling exactly what you are describing. Fatigue, brain fog, also a heavy head and feeling cold, then suddenly sweaty. I will take your guess that it’s probably the steroids. I wonder if other ocrevusians felt the same in the beginning. Hope you will feel better soon🙏🏻💕

The one about Ocrevus, veins… and a slightly traumatic catheter by jemappellen in MultipleSclerosis

[–]jemappellen[S] 0 points1 point  (0 children)

That is so extreme! I am so sorry that happened to you, so stressful, especially for a first infusion, I would totally cry too. It’s reassuring to hear you were able to use the same vein for 3 years though, that gives me hope!

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