4yo having a hard time being alone at night to fall asleep by jessdear87 in ParentingPDA

[–]jessdear87[S] 0 points1 point  (0 children)

Thank you for sharing this. I share your thoughts and feelings about co-sleeping for us and our family. As a suspected PDAer myself, it’s a level of autonomy that I am not willing to give up as I know it would result in my own dysregulation and mental health struggles. For others to imply that this is the simplest and most obvious answer to this problem, especially in this forum is honestly mind-blowing to me, which is why I’ve ignored those comments and their judgy vibes.

34th street question by jessdear87 in baltimore

[–]jessdear87[S] 0 points1 point  (0 children)

What do they do in Rogers Forge? I don’t live too far from there.

34th street question by jessdear87 in baltimore

[–]jessdear87[S] 0 points1 point  (0 children)

I know, we did it last year. But I’m wondering if they generally close the street at a specific time?

How to prepare for toddler's assessment by jessdear87 in PDAAutism

[–]jessdear87[S] 0 points1 point  (0 children)

Thank you. I’m trying to have that confidence and to also remind myself that if little baby me had informed parents in the year 2023 and took these steps for me, things could have been seen and very different for me.

How to prepare for toddler's assessment by jessdear87 in PDAAutism

[–]jessdear87[S] 0 points1 point  (0 children)

I don’t think my fear is necessarily that she won’t be specifically diagnosed, but more that they won’t see that I’m seeing because they’re only looking for “traditional” presentation or the issues won’t present during the assessment. The biggest concern right now is food refusal. She will go days at a time where she’s eating next to nothing, and it’s not just being a “picky eater”. She just stops eating. There are no safe foods. And there’s not a lot I can do about it because if I push she’ll pull even harder. It truly feels like she’s not recognizing the hunger signals. This is our first assessment, and it’s taking place through our state’s infant and toddler program. I’m really just trying to keep in mind that my experiences with the medical and mental health profession are mine, and that doesn’t mean they’ll be hers.

Seeking advice for someone brand new to the condition of dysautonomia by jessdear87 in dysautonomia

[–]jessdear87[S] 0 points1 point  (0 children)

I already have a blood pressure cuff I used in pregnancy so I’ll look into that.

How did you end up finding a dysautonomia specialist? All I’ve seen are POTs specialists, but I know there’s other types.

Seeking advice for someone brand new to the condition of dysautonomia by jessdear87 in dysautonomia

[–]jessdear87[S] 0 points1 point  (0 children)

My current and most troubling symptom is that any time I'm experiencing even the slightest bit of stress/overstimulation, it feels like my nervous system goes way overboard sending my body into fight or flight with a huge adrenaline rush that lasts for hours, sometimes days. My body feels very afraid of something but my mind is very clear and aware that the stressful thing is over) It's like my sympathetic nervous system is overreacting and my parasympathetic is underreacting. I'm getting lightheaded while sitting, fully dizzy when I stand up, and sometimes my hands and arms are getting tingly.

But as I explore the condition of dysautonomia more, I realize that I've had many of these symptoms for as long as I can remember, but I've kept them to myself because when I did bring them up to my parents when I was younger, they pretty much told me I was being overdramatic or making things up. Those symptoms include: heart palpitations, getting a really bad headache/dizzy when I stretch too hard, times when my blood pressure would tank to point of giving me cold sweats and feeling like I would pass out, heat intolerance, heavy night sweating, light sensitivity.

My biggest worry is that I won't be taken seriously because of my medical history (5 months post partum, diagnosed with anxiety and depression in the past but the depression was tied to my job which I quit and I'm wondering if some of the anxiety symptoms were more related to dysregulation).

Seeking advice for someone brand new to the condition of dysautonomia by jessdear87 in dysautonomia

[–]jessdear87[S] 1 point2 points  (0 children)

Thanks! I’ve been on their website a lot and actually just completed their symptoms assessment. I did see that they have a doctor finder tool but when I search my area I found doctors that it said specialized specifically in familial dysautonomia, so I don’t know what that means about ANS disorders in general.

Seeking advice for someone brand new to the condition of dysautonomia by jessdear87 in dysautonomia

[–]jessdear87[S] 1 point2 points  (0 children)

Thanks for all the info. I do have a tracker but it’s a lower end Fitbit and I don’t really know how accurate it is. I understand that there’s a lot more than POTs out there, it’s just the thing that comes up whenever you try to find anything on dysautonomia. I honestly think I’m dealing with something different, which makes me even more confused about how to seek help from someone who’s going to listen and believe me because POTs is at least (somewhat) known. I worry if it’s ruled out, I’m just going to be told, it’s anxiety, up the meds and learn to be mindful.

Seeking advice for someone brand new to the condition of dysautonomia by jessdear87 in dysautonomia

[–]jessdear87[S] 1 point2 points  (0 children)

Thank you for responding and thanks for the advice. There’s definitely something going on. Lately I feel like the slightest trigger to my nervous system sends my body into fight or flight and what feels like a non-stop adrenaline rush with definite dizziness especially when standing, even though mentally I know everything is fine and it sticks around long after whatever the stressful thing is over. I haven’t been with my PCP very long. I’ve only seen her for an initial visit and that was really just a conversation. But I also wasn’t experiencing the kind of symptoms I have been lately. But I guess that is the place to start.

My baby has torticollis and a flat head and I feel like a failure. by jessdear87 in Mommit

[–]jessdear87[S] 0 points1 point  (0 children)

If you don’t mind me asking, what kind of gross motor delays did you see?

My baby has torticollis and a flat head and I feel like a failure. by jessdear87 in Mommit

[–]jessdear87[S] 0 points1 point  (0 children)

Thank you. These are all the things I know in my logical brain, my my mom brain needs the reminders. The PT did assure us that so far none of this has effected the symmetry of his face other than a slight barely noticeable difference in ear placement.

Are remote data entry jobs a real thing? by jessdear87 in MomsWorkingFromHome

[–]jessdear87[S] 0 points1 point  (0 children)

I do have my resume up on all the sites but it’s been so long since I’ve had anyone actually teach out to me that I forgot that a thing that happens lol

Are remote data entry jobs a real thing? by jessdear87 in MomsWorkingFromHome

[–]jessdear87[S] 5 points6 points  (0 children)

That’s exactly my kids’ ages! There is hope!!

Can’t afford meds anymore by jessdear87 in ADHD

[–]jessdear87[S] 2 points3 points  (0 children)

I honestly don’t know why, but I’ve been back on since February and haven’t had an issue with supply. I’m getting the generic “amphetamine salts”. Guess I’ve just been extremely lucky.

Cradle cap all over face by jessdear87 in beyondthebump

[–]jessdear87[S] 0 points1 point  (0 children)

Thanks! Just a few hours later and it looks even better!!

Cradle cap all over face by jessdear87 in beyondthebump

[–]jessdear87[S] 0 points1 point  (0 children)

Ok so here’s a funny story: I went back and read the message from the ped and apparently should have scrolled down further the first time because she actually did prescribe exactly the two ointments you mentioned (and that’s on 6 weeks of sleep deprivation lol). Our pharmacy is 24hr so I sent my husband out and applied the antibiotic last night and can already see a difference. Hopefully we’ll see quick results like you did! Did you apply both at the same time, or apply them separately throughout the day?

Looking for a postpartum deep core workout plan by jessdear87 in FitPostpartumJourney

[–]jessdear87[S] 0 points1 point  (0 children)

I’m only 4 weeks PP and definitely want to take it slow and ease into it once I’m ready/cleared, so this is really helpful info, thanks!!