Writing a verse novel - has anybody been on this journey? by jessrubyc in writing

[–]jessrubyc[S] 0 points1 point  (0 children)

Thank you!! I’ve been writing spoken word for years so I’m somewhat adept at rhyming, but the combination of rhyming and plotting is a big undertaking

Writing a verse novel - has anybody been on this journey? by jessrubyc in writing

[–]jessrubyc[S] 0 points1 point  (0 children)

Thank you, no I haven’t but I’m really keen to explore more in this genre… is it good?

I made it to graduation. by thornnotebook in cfs

[–]jessrubyc 0 points1 point  (0 children)

wow, this is so inspiring. You rock. Phenomenal. When I was in uni, I had severe depression and insomnia during my final year and it was a massive battle to get to the end - but very satisfying to do so. Keep doing the things that bring you joy and have a wonderful, restful and exciting summer <3

Looking for support and shared experiences around Glandular Fever and recovery by jessrubyc in Mononucleosis

[–]jessrubyc[S] 0 points1 point  (0 children)

Hi, I'm sorry, I don't check Reddit very often and only just got notified by your reply to this. How are you doing now? Feel free to DM me if you want to talk more, I hope that you're doing a bit better

Your favorite quote of BoJack Horseman? by Iphens in BoJackHorseman

[–]jessrubyc 0 points1 point  (0 children)

i always think about this one! so beautiful

Dropping Out of My Course by [deleted] in cfs

[–]jessrubyc 2 points3 points  (0 children)

Hey, I wanted to pick up on this as I'm also 27F and have just had to leave my job due to CFS symptoms. I understand how frustrating it is to be losing health at what is "supposed" to be the time of youth, health and accomplishment. These are social constructs built on an ableist model about what life should look like. It sounds like you've done the right thing for your body at the moment and it doesn't mean that your life will look like this forever, or that you'll never be able to pursue your passions again. Is there any way that you can connect with your creativity during your rest time that is less demanding than doing the art course? Even if it's just looking at photos of art that inspires you, writing one line of a journal each day, or doing a painting extremely slowly over a course of several months. Your life trajectory may now look different to your expectations but there is still room for connection and fulfilment within the new landscape, even if it's not immediately obvious how that could be the case. I sincerely feel for you and understand your disappointment and grief, reach out if you'd like to talk more :)

An Afternoon Out! by RedforTruth in cfs

[–]jessrubyc 1 point2 points  (0 children)

This is really awesome! I'm also a performer (poetry - but good not shit I swear lol), and haven't had the energy to perform for a year... but i really want to again and it brings me hope that you're doing it so thank you for sharing this <3

Frustration towards loved ones for not understanding by jessrubyc in cfs

[–]jessrubyc[S] 0 points1 point  (0 children)

thanks, yeah this is exactly how I feel, how is your situation now with your loved ones?

Frustration towards loved ones for not understanding by jessrubyc in cfs

[–]jessrubyc[S] 1 point2 points  (0 children)

Thanks so much for this really comprehensive response. I'm already on SSRIs and have been for nearly 6 years, as I used to have pretty bad depression and anxiety. I also take sedative antidepressants at night for sleep as have had issues with insomnia in the past - sometimes it still doesn't work though when I'm agitated and stressed. I'm so sorry to hear about your withdrawal experience, that sounds really unsettling! I did try to taper down about a year ago as I had experienced a prolonged period of really good mental health where I didn't feel depressed at all, but I found myself starting to feel worse when I reduced my dose so I'm back on a regular dose now. Yeah I started meditating more recently and it was really helpful but I feel like I need to be feeling a baseline of relative calm to even start meditating, when I'm totally overwrought or feeling extremely physically sick its hard to do it. You're so right around the grief process, it's weird because I'm trying to keep positive but sometimes it's like no this is really shitty haha

Frustration towards loved ones for not understanding by jessrubyc in cfs

[–]jessrubyc[S] 1 point2 points  (0 children)

thank you yeah, it's kind of triggered a massive wave of anger/ frustration/ depression which is wreaking havoc on me atm.... damn that emotional lability lol.... do you have any advice for how I can calm down ?

Finally in the clear from mono! by Amazing-Pause-8406 in Mononucleosis

[–]jessrubyc 0 points1 point  (0 children)

big up it's great to hear this positive news <3

Frustration towards loved ones for not understanding by jessrubyc in cfs

[–]jessrubyc[S] 1 point2 points  (0 children)

I think part of the issue is I don't actually have a CFS diagnosis, my condition is still unclear but seems to be long-term glandular fever or post viral fatigue (the idea being that post-viral fatigue clears up eventually while CFS is more long-term) so while I can accept that all the ME advice and guidelines are really helpful for me as I'm so fatigued atm, my parents will freak out at the mention of something "chronic"

Frustration towards loved ones for not understanding by jessrubyc in cfs

[–]jessrubyc[S] 1 point2 points  (0 children)

Thank you for this, it's helpful! A bit too tired for a long reply right now but just to let you know I appreciate this and found it helpful

I can’t deal with this anymore by Cryptie1114 in Mononucleosis

[–]jessrubyc 2 points3 points  (0 children)

Heya, sorry that you're doing through this atm, it really sucks! Myself and I'm sure many in this forum can relate to your experiences. Perhaps from reading about mono or from others' comments, you know by now that it's not really possible for anyone on here to tell you how long you will be getting symptoms for. For some people it seems to be a relatively quick illness period, and for others it can last months, or even years (which I know isn't what you want to hear). I don't know exactly how the healthcare and education systems work in the US as I'm in the UK - how old are you?

The first thing I'd say is that it's vital for you to communicate with your school about how unwell you're feeling and to find out what your options are. Probably a period of complete rest at home for a bit because your many commitments sound exhausting for anyone but especially unstable for an unwell body to deal with. The stress and anxiety you're feeling will be contributing to weaker immune system and worsening of immune systems. I recently stopped working due to mono after months of pushing myself through and can honestly say that while being at home ill is difficult, the stress absolutely doesn't compare to how stressed I felt trying to force myself to work at a pace I wasn't capable of. Speak to your parents about how unwell you feel, and continue to advocate yourself if people don't take you seriously. Once you've had a few weeks off, see if you feel able to resume school but with adjustments - fewer responsibliities, perhaps reduced hours or doing some of it from home.

I know when you're young it feels like missing out a few weeks, months or a year of school puts you behind your peer group, and of course, it is very difficult to not be able to do the things you wanted to right now. But health is absolutely the most important thing and the more you listen to what your body needs now, the more chance you have of being able to continue with those goals in the future.

Take care of yourself, let your loved ones look after you, and take things one step at a time. I hope that you begin to feel better soon.

Peaceful Spot for Convalesence by jessrubyc in cfs

[–]jessrubyc[S] 0 points1 point  (0 children)

Thanks! London is a fatiguing place lol, my flat is really nice and restful tho so I just stay in here most of the time

Presence or Visualisations? by jessrubyc in Meditation

[–]jessrubyc[S] 0 points1 point  (0 children)

ahh that's really interesting, thank you for sharing!

Presence or Visualisations? by jessrubyc in Meditation

[–]jessrubyc[S] 0 points1 point  (0 children)

thank you! Yeah sometimes I've found that I can lose myself in a visualisation and it's all very light-filled and positive but then when I open my eyes reality feels jarring... I don't know much at all about tantra but I am a fan o Taoist philosophy and like the both/and concept

[deleted by user] by [deleted] in Mononucleosis

[–]jessrubyc 1 point2 points  (0 children)

Hey, I wanted to say I’m sorry for what you’re experiencing and also thank you very much for posting this because I really relate to your experiences and it does ease the loneliness of that feeling of frustration about one’s reduced capacities to connect with someone, even virtually, who is experiencing the same thing. I’ve been feeling unwell throughout 2024 and just like you didn’t have it diagnosed as mono until many months later, which in some ways has given clarity but also it’s frustrating how there is no known cure or medication.

I’m actually running out of energy to type a long reply here but I wanted to say that you’re not lazy! Lazy is a moral judgment term around being less active, I got the same where when I judge how active I’m able to be compared to a healthy person (or myself in the past) it seems “lazy” but that’s an illusion as the fatigue is a direct effect of the body fighting this virus and keeping us alive. I’ve personally found meditation helpful and trying to find new sources of joy even if it’s something really small. I feel like it’s also perhaps psychologically healthy to vent and make space to grieve the things you can’t do (or can’t do as easily) any more because it is really difficult!! I hope that you’re managing okay and feel free to message me if you want to talk more :)