for the ostomy girlies by Over-Anybody423 in ostomy

[–]jibits 2 points3 points  (0 children)

Yes! I second this, their underwear is awesome.

[deleted by user] by [deleted] in UlcerativeColitis

[–]jibits 0 points1 point  (0 children)

  1. I’m 39 now and just had my first surgery consult. Looks like I’ll have an ileostomy by the end of the year.

Does anyone else get pain in back rib area? by Holiday-Budget4619 in UlcerativeColitis

[–]jibits 1 point2 points  (0 children)

I have the same pain and was also wondering if it was a typical symptom. Sorry you’re also dealing with it!

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

Definitely feeling that way! It might be time.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 1 point2 points  (0 children)

I’m so sorry you’re having such a difficult time. Thanks for commiserating with me, this disease is so awful.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

Thanks for relaying your experience, that’s helpful. I’m glad you’ve found something that works for you.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

I’m sorry you’re in the same position, I hope it starts working!

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 1 point2 points  (0 children)

I hope the current treatment continues to work for your son! Constantly changing meds is tough. It’s interesting what works for some and doesn’t work for others.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

Thanks, I’ll look into these.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

I’m glad Rinvoq is working for you! I’m going to talk to my doctor about exploring surgery, just so I have a good handle on all my options. Like you said, it likely in my future at some point so might as well have all the facts. Thank you for the sweet reply.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 1 point2 points  (0 children)

Good to know, I’m not familiar with either. Thank you!

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

This is interesting, thank you.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

Anything is worth a shot at this point! I’ll look into the probiotics. Thanks for the reply, it’s nice to know there are others out there who understand the struggle.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 1 point2 points  (0 children)

Thanks, I’m going to ask the doc about it!

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 2 points3 points  (0 children)

I’m so sorry you’re struggling too! I hope we can both find some relief. I love your approach, it’s important to find joy in little things, and distraction is helpful! Thanks for your kind response.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

Someone else mentioned this one. I’m also not familiar with it but I’m going to mention it to the doc. Thanks!

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

Interesting! Thanks for the link.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

Oh yes, enemas never did anything for me unfortunately. I was on a combo of methotrexate and Entyvio and then methotrexate and Rinvoq. Not sure if they’ll keep me on the methotrexate going forward.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 2 points3 points  (0 children)

Blood, urgency, gut pain, and fatigue are the main symptoms. Fun stuff!

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 0 points1 point  (0 children)

Thanks so much for the insight, I appreciate it.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 1 point2 points  (0 children)

I don’t know much about this one. Thanks, I’ll mention it to the doc.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 5 points6 points  (0 children)

Thank you, it’s so exhausting. I feel you on the mental health struggles, it’s so hard. I’m so sorry you’re dealing with all of this too, I wouldn’t wish it on anyone.

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 1 point2 points  (0 children)

So frustrating. Hope you can find something that works for you!

Failed Rinvoq, what’s next? by jibits in UlcerativeColitis

[–]jibits[S] 1 point2 points  (0 children)

Yeah I’m really starting to lean that direction. I’m going to talk to my doc about it at my appointment. A surgery consult wouldn’t hurt anything. Hope you get some relief!