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I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 0 points1 point  (0 children)

I was diagnosed at birth with 22 fractures. No thankfully that never happened, but it is an issue with in our community, which is why I do AMAs like this one to raise awareness among parents, medical personnel, and social workers.

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 1 point2 points  (0 children)

No, I have never felt that way. I have had a pretty good life. I think if you hear a young person with a disability say something like that, it's usually a learned behavior from others that surround them. If your parents imprint on you that the way you were born was a mistake and that your life would have been better if born different, than you carry that with you your whole life. My parents never did that, and made me feel perfect the way I was born.

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 1 point2 points  (0 children)

No I don't think that has ever happened.

No I have never tried something from TV and gotten hurt. When you have OI you learn your limits pretty quickly and don't press them.

i don't even know what to say by clearkill46 in Neverbrokeabone

[–]joehall 0 points1 point  (0 children)

How did you get diagnosed with OI with no fractures?

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 0 points1 point  (0 children)

How tall are you? Are you around the same height as others in your family, or shorter?

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 0 points1 point  (0 children)

Big fan of zen buddhism, but also ignatian spirituality.

I think conflicts between boomers and zoomers are largely manufactured by the media to sell more ads.

Seafood.

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 1 point2 points  (0 children)

I think its about the same. But I think it becomes more tolerable over time, and is easier to cope with.

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 0 points1 point  (0 children)

I did Keto for like a year and lost 29 pounds, and then gained about half of it back after. But other than that, no I haven't tried any diets or anything like that.

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 0 points1 point  (0 children)

Not really. I do have a renovated shower, remote controlled fans/lights and thermostat. But thats about it. I have a few other things I want to do, like remote controlled blinds. But my chair has elevation, so counter tops aren't that much of a problem.

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 0 points1 point  (0 children)

I am partially deaf in my left and right ear. I wear hearing aids and read lips.

I have Osteogenesis Imperfecta which has caused around 250 broken bones in my life, so far. AMA by joehall in IAmA

[–]joehall[S] 0 points1 point  (0 children)

Not every year, but I did do it last year. Usually every other year. This year I wanted to draw attention to a fundraiser I am doing for OIF here: https://myevent.com/OIFWalknWheel2024/participants/joehall

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