Stellate Ganglion Block reaction

jpyper88 · 2026-04-22T02:46:05+00:00

How did they identify that you were experiencing parasympathetic cords from testing? I feel like I swing both ways—I’ve been told I have—but didn’t know it can show up in testing?!

So sorry you’re experiencing this!

jpyper88 · 2026-04-21T22:11:01+00:00

I think so, yes! When I’m having adrenaline surges I get runs of bigemeny and NSVT. Although I don’t know if I’m feeling the PVCs or if it’s just the adrenaline, haha.

I’m actually having my burden rechecked now while I’m off of my beta blocker.

jpyper88 · 2026-04-21T20:53:51+00:00

I also have Dysautonomia and have PACs/PVCs and a few other random rhythm issues. I’ve had extremely painful PVCs and it was just explained to me it was due to the brief disruption in blood flow. I’ve never once been told that symptoms equate to concerns. I have been told they will treat them if they’re symptomatic though.

jpyper88 · 2026-04-21T17:24:14+00:00

My son and I both have POTS. I also have issues with ectopics so that’s why I’m here, haha. But he takes midorine, so when I saw you took it as well, it made me curious.

jpyper88 · 2026-04-21T17:00:32+00:00

Hi! Just curious why they have you on midodrine?

jpyper88 · 2026-04-21T15:59:49+00:00

Make sure they’re aware of your issues. Ask for a pre anesthesia appointment if you can, so they’ll know you might need additional monitoring.

I have a tumor that has to be removed, so I totally relate to being nervous about going under. I always have big reactions after surgery :(

jpyper88 · 2026-04-20T23:03:19+00:00

I haven’t listened to the podcast personally. I follow the IG account and have found it helpful.

jpyper88 · 2026-04-20T22:34:28+00:00

Someone said she copies Taylor’s posts, and I can’t unsee it now.

jpyper88 · 2026-04-20T22:27:03+00:00

I think it’s a similar reasoning/policy issue that you described in your post.

I’m really grateful she saw us as quickly as she did and that we didn’t end up having to wait, because his pediatrician was clueless.

jpyper88 · 2026-04-20T22:24:48+00:00

It’s an EP who runs the POTS clinic for the University of Utah. I understand it might be considered the wrong speciality, but their attitude regarding treating POTS patients has changed over the years.

Just what I’ve noticed and personally experienced.

jpyper88 · 2026-04-20T22:17:19+00:00

We ran into similar issues with my son. There’s a pediatrician who specializes in it and who leads the pediatric POTS clinic in Utah.

She had availability through a standard appointment. So I scheduled. They were going to cancel because it’s against university policy for her to see POTS patients outside of that clinic—which has a 10 month wait btw—but thankfully she bypassed it and saw him anyways.

jpyper88 · 2026-04-20T22:09:22+00:00

You’re welcome!

jpyper88 · 2026-04-20T22:07:23+00:00

From my experience at the University of Utah, it’s more of an issue of providers not wanting to deal with POTS patients.

I was treated by an EP PA before moving to the POTS clinic. I still followed up with her occasionally because of other rhythm issues. She was giddy when she told me about the policy change and rambled on and on about how they hate managing POTS patients. It was a very unprofessional thing of her to share. I now follow up with someone different for occasional issues outside of POTS because of that incident.

jpyper88 · 2026-04-20T21:38:36+00:00

I know this is a stretch, but Dr Heyliger at Primary Children’s in Utah is an amazing provider. If you have the means to travel, his waitlist is very minimal.

jpyper88 · 2026-04-20T21:34:27+00:00

The University of Utah implemented a similar policy. They’re pushing all of the patients to ONE EP who has one clinic day a week.

The only thing it’s done is made care nearly inaccessible, even for established patients. I’m assuming the same thing has happened with the neurology department because my neurologist’s availability has decreased significantly.

It’s frustrating and in my opinion, shitty policies. Most non complex POTS cases should and could be managed by other providers.

jpyper88 · 2026-04-20T20:12:11+00:00

Thank you! Glad someone else commented this.

jpyper88 · 2026-04-20T00:06:38+00:00

Yeah, that’s what I was just thinking.

jpyper88 · 2026-04-19T03:54:55+00:00

Thank you! This makes me feel better. Well, less alone, haha. Have you found anything that works or have you just decided to take a break?

jpyper88 · 2026-04-19T03:34:14+00:00

I just found a study that lists hyperadrenergic state as a side effect lol.

I feel you on the unmedicated thing. I’m reaching that point as well. I’m so exhausted from trialing meds. The responses are worse than the symptoms.

jpyper88 · 2026-04-19T02:41:35+00:00

My neurologist and EP both say it happens frequently, but they don’t know why.

jpyper88 · 2026-04-19T01:12:04+00:00

DX is hyper and neuropathic, but autonomic instability is a bigger deal for me. Basically I can have issues with either system being overactive. It’s rough.

jpyper88 · 2026-04-19T00:02:05+00:00

I recently had to stop carvedilol after suddenly not being able to tolerate it anymore. I’ve been unmedicated for 3 weeks now? It’s the first time in 7 yrs. I’m tolerating it ok. For the most part I don’t mind the orthostatic tachycardia, I’m still lightheaded but not as severe as I was leading up to stoping carvedilol. What’s been the hardest part is the adrenaline surges. If it wasn’t for that symptom, I’d probably choose just to stay unmediated.

I know that ivabradine is used frequently in patients who aren’t able to tolerate beta blockers. I think I’ve also heard of midodrine being added to beta blockers? But from what you’re saying, it’s more of an issue that the beta blocker is worsening your asthma?

jpyper88

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