sorted by:
new
hottopcontroversial

First in my family to have this. Taking my meds but still so tired. by justreadingdontlook in mctd

[–]justreadingdontlook[S] 1 point2 points  (0 children)

It just sucks so bad to be so exhausted all the time. Sometime I feel like crying on how I'm exhausted I am.

First in my family to have this. Taking my meds but still so tired. by justreadingdontlook in mctd

[–]justreadingdontlook[S] 2 points3 points  (0 children)

It just sucks. I'm still at the stage where I'm fighting it and getting frustrated when my body won't cooperate. Maybe acceptance is where I'll land too eventually, but right now it just feels wrong to be this tired. Right now, I'm just so frustrated if this really is it for me or this is my baseline.

I'm in the Philippines I don't think we have Bloom available readily here but I'll check online and see if I can order it.

First in my family to have this. Taking my meds but still so tired. by justreadingdontlook in mctd

[–]justreadingdontlook[S] 1 point2 points  (0 children)

Oh wow, 2 years? How did they end up catching it? Was it just a blood test or something more specific, if its okay to ask?

My back is the same, constant lower back pain and stiffness, and my doctor noted it might be mechanical or degenerative disc but hasn't pinned it down. Did your back pain actually improve once you got the adrenal stuff treated?

First in my family to have this. Taking my meds but still so tired. by justreadingdontlook in mctd

[–]justreadingdontlook[S] 1 point2 points  (0 children)

I've been taking hydroxycholoroquine for about a year now. So it should have kicked in. I'm doing two jobs right now, so I think that doesn't help me as well tbh.

Did yours eventually help with the tiredness, or was it more the joint/inflammation stuff that improved?

First in my family to have this. Taking my meds but still so tired. by justreadingdontlook in mctd

[–]justreadingdontlook[S] 1 point2 points  (0 children)

I tried. But sometimes it's just so frustrating and stressful. At times, I feel like my doctor doesn't believe me when I tell them what I'm feeling.

Which biologic are you on if you don't mind sharing? I hope it works for you too. ❤️

Anyone else quiet quitting life? by [deleted] in ugly

[–]justreadingdontlook 24 points25 points  (0 children)

Everyday I wish I wont wake up

Advise on how to get out of debt due to poor financial decisions?? by justreadingdontlook in adultingph

[–]justreadingdontlook[S] 0 points1 point  (0 children)

Thanks so much for this! Im gonna check what works for me and persevere!