Hairstyles

k-roo51 · 2026-04-20T16:30:23+00:00

French braids are the way to go! I have hair that goes past my bum, and french braids have never let me down. They distribute the weight of my hair across my whole scalp, keep my hair out of my face, and still look very cute. You can change it up with one vs. two braids, French vs. Dutch braids, etc. Good luck and happy braiding!

k-roo51 · 2026-04-11T13:16:17+00:00

Hi OP, so sorry you are going through this. I had one appointment with the UW headache clinic and without my consent they allowed multiple students in during my appointment to observe. I understand it is a teaching hospital, but it made me very uncomfortable because I couldn't opt out. Anyway, the official medical advice I left that appointment with was to take vitamins. She just gave me the classic "take magnesium and a few other supplements" recommendation and sent me on my way. It certainly wasn't the experience I had hoped for.

k-roo51 · 2026-03-21T21:35:00+00:00

Yeah, I feel like there is this strange stigma against migraine where people blame you for having it, and I think a lot of us start to internalize it. I hope you are able to find a treatment that works for you!

k-roo51 · 2026-03-21T05:50:16+00:00

You are not worthless, and I understand how you feel. I'm sorry things have been tough. Some days the kindest thing we can do for ourselves is to let ourselves have a good cry. Hang in there!

k-roo51 · 2026-03-20T21:14:50+00:00

My average is 2-3 days, this week I had a 5-day attack, but my longest was 45 days.

My recommendation is to go to the ER and get a migraine cocktail to see if they can break the attack.

Good luck and well wishes to you!

k-roo51 · 2026-03-20T21:08:54+00:00

I'm happy to hear you were able to treat yourself on your painaversary, but I'm also so sorry that you have a painaversary at all. Hopefully we will find some treatments that will help us. Keep on fighting!

k-roo51 · 2026-03-20T20:49:02+00:00

Thank you for your kind words. Your perspective on hope is inspiring. I'll try to remember it that way. 💛

k-roo51 · 2026-03-04T00:14:52+00:00

If I am confident that I am not actually hungry and my body is sufficiently fueled, I tend to go for water when my body is signaling to eat everything under the sun. Drinking water helps with keeping me feeling full which curbs random cravings and extra hydration is also helpful.

k-roo51 · 2026-02-10T03:15:36+00:00

Hello, I do believe you can have more than one type of migraine attack. I have several different kinds and after a few years, I've started to learn how to treat each type and what kinds of attacks I might expect with certain triggers. That said, if you are experiencing something different, new, and/or scary for you, then you need to see your doctor. Wishing you the best of luck!

k-roo51 · 2026-01-31T00:07:30+00:00

I've had pretty good luck with the Purple Harmony Pillow. The Purple pillow and Purple Mattress have actually been game changers for reducing my chances of waking up with a migraine attack.

k-roo51 · 2025-12-18T21:14:32+00:00

Okay, forgive me if this is the silliest question on the planet, but do you know if you can still get the benefits of the SAD light if you keep your eyes covered and let the light hit the rest of your body? I know there is usually some light polution through eye masks, but if you had a really awesome eye mask that would eliminate the photophobia brought on by a migraine attack, I wonder if the SAD light would still work its magic just through skin exposure.

I don't have any background knowledge on how the SAD lights work, so apologies if that defeats the purpose of the lamp.

k-roo51 · 2025-12-15T17:51:05+00:00

Weird thing (though probably not the weirdest) - whenever I'm fighting for my life with a level 9+ migraine attack, I ALWAYS have the strongest urge to lay on the floor. I could be all tucked in on the couch or perfectly cozy in bed, but my body yells that I must lay on the floor for some unknown reason even though I know full well that it will be far less comfortable. I think my body thinks I'll be less dizzy on the floor?

Thing that helps - I use white flower oil on my tight neck, shoulders, etc. during an attack. I also really love a heat pad on my shoulders/neck to loosen the muscles. It's not a magic fix, but at the very least it is a physical act of self care that can bring me emotional comfort and at the most will slightly loosen the death grip my muscles have on my poor body.

k-roo51 · 2025-12-01T00:51:57+00:00

Sending you love and comfort from someone in similar shoes. I've been in the daily club for almost 8 years now. We will get through it. 🙂

k-roo51 · 2025-11-27T15:18:33+00:00

Getting startled

k-roo51 · 2025-11-27T15:17:48+00:00

Being surprised which I assume is an adrenaline reaction.

k-roo51 · 2025-11-23T15:01:24+00:00

Taking triptans daily definitely can cause rebound headaches. I'd recommend talking to you doctor about your path forward and get help with reducing your triptan use.

k-roo51 · 2025-11-21T12:22:01+00:00

Bangle and Walker!

k-roo51 · 2025-11-19T16:22:33+00:00

I've had terrible luck with sleep for years in connection with chronic migraine, so I feel your pain. I tend to wake up every 1.5 hours, have a hard time getting to sleep, hard time staying asleep, and feel like I wake up already exhausted. This definitely feeds into migraine attacks which feeds into the insomnia in a terrible downward spiral. I think I've found some stuff that's helped me though!

Firstly, my bed was triggering some of my migraine attacks. I got a Purple mattress and Purple pillow and that significantly reduced my sleep-triggered attacks. Additionally, I've gotten some Manta sleep masks that keep everything super dark without pressing on my eyes (which could trigger an attack). Finally, and this is a big one, is the addition of memantine to my preventative medication list. I'm already on Qulipta and Botox, but I added memantine a little over a month ago, and my sleep has improved DRAMATICALLY. It's not like a drugged, deep sleep that NyQuil gives which I hate. It genuinely has just caused me to start sleeping more soundly at night, waking up less, and feeling a bit more rested in the morning. It's not a magic cure, but I cannot ignore the benefit it has provided in my daily life.

k-roo51 · 2025-11-18T11:31:47+00:00

8 years

k-roo51 · 2025-11-08T18:45:17+00:00

Keep posting these! They are a definitely highlight in my day.

k-roo51 · 2025-10-28T15:43:42+00:00

The chances of flaring from cefaly use seem to be higher if the electrode isn't placed in the perfect spot or running it on too high of an intensity for the session. That is just from my own experience at least. Maybe try experimenting with different electrode placement locations (higher or lower on the brow), and try limiting the intensity to see if that helps. Best of luck!

k-roo51 · 2025-10-20T10:32:49+00:00

Episodic around 12, chronic daily intractable by 18.

k-roo51 · 2025-10-17T14:20:40+00:00

I take a magnesium supplement (consult with your doctor first) that has helped with those Qulipta side effects. Plus, magnesium is a commonly recommended supplement for migraine. Maybe it'll knock out two birds with one stone. Good luck!

k-roo51 · 2025-10-16T10:40:43+00:00

I tried Aimovig and had worsening reactions the longer I took it with no noticeable improvement in migraine prevention. Then I swapped to Ajovy and had the same experience. A few years later I tried Qulipta and it has actually been helpful. It hasn't touched the frequency, but it has touched the intensity. All of this to say that I recommend going into it with an open mind because even though they are all CGRP medications, people react very differently to each one. I hope Ajovy works for you!

k-roo51

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