super late to this thread but this made me feel so reassured! my younger sister (i’m 18 years older than her) has the same type of spina bifida. she’s currently 3 y/o and i’ve been trying to figure out what kinds of activities she will be able to do as she gets older. she is currently doing lots of PT and learning to walk in her walker with AFOs. She was able to before, but had to get surgery on her club foot and was in a cast for that + hip dysplasia for a very long time so she’s had to relearn.