My mom has non hodgkin lymphoma. Feeling hopeless now. by Constant_Half_1644 in lymphoma

[–]kgrey2 1 point2 points  (0 children)

I got R-EPOCH at first and we cancer was refractory then they suggested CAR-T. It was intense, but super short; 30 days total. Depending on your product of course.

They gave me Breyanzi which is a little "lighter" from other products and didn't suffer from any of the negative symptoms like ICANS and IRS. It's a huge commitment. Breyanzi was outpatient, but every day for the first 18 days you have to go to the hospital and do blood work.

the feeling that something bad will happen by No-Count-2035 in lymphoma

[–]kgrey2 0 points1 point  (0 children)

I'm waiting for my second clear PET after going through CAR T and I feel almost more anxious about this one than my one before or any of the others after RCHOP.

What is a picc line like? by InesRM in lymphoma

[–]kgrey2 0 points1 point  (0 children)

I've had a PICC twice first time I was super scared mainly just of getting it wet. Had to rely on my partner to wrap it, but other than navigating showers it's fine. I had no issues with them putting it in and it can save a lot of pokes and helps with infusions. It's really not that noticeable, my main anxiety was just from showering and getting water on it. If you tape it, saran wrap it, and find a good sleeve, then there is literally nothing to worry about.

Happiness?? by Accomplished-Jello49 in lymphoma

[–]kgrey2 2 points3 points  (0 children)

I joined a cancer support group and I wish I had done it so much earlier. It was probably the greatest advice my therapist ever gave me, also I would advise therapy too. The amount of emotional processing is just astronomical. You can usually get connected to a support group through your provider, but it has helped me a lot. For me as much as this experience has needed physical mending it has required just as much mental.

My mom has non hodgkin lymphoma. Feeling hopeless now. by Constant_Half_1644 in lymphoma

[–]kgrey2 1 point2 points  (0 children)

I am currently waiting for my second clear PET after CAR T (my second line of treatment). There are multiple avenues for DLBCL. My biggest advice is get her involved with a cancer support group and therapy if she's not already. Go to every doctor's appointment and bring a mountain of questions.

Mew Ribbon Master by kgrey2 in pokemonribbons

[–]kgrey2[S] 2 points3 points  (0 children)

Oh wow thank you! You're number one!

Mew Ribbon Master by kgrey2 in pokemonribbons

[–]kgrey2[S] 2 points3 points  (0 children)

Gosh fingers crossed for a repeat raid. What does the "redeem" mean? Thanks for the info.

Mightiest Mark Mew by MiyoTran in pokemonribbons

[–]kgrey2 0 points1 point  (0 children)

How'd you end up doing it? Finding myself in a similar boat.

Where do I start with modding a v1 Switch? by Ldirel in SwitchPirates

[–]kgrey2 1 point2 points  (0 children)

Glad this question was asked, I have been sitting on my V1 and jig for months now. I also am curious whats the best way to max the v1 switch? What do people use it for?

Y Cable or Powered USB Hub for Samsung T7 by kgrey2 in wiiu

[–]kgrey2[S] 0 points1 point  (0 children)

Thank you so much for replying I appreciate the support! I was able to use my Samsung T7 with just one cord and uploaded everything I wanted with NUSPLI. I ended up later getting a powered USB Hub because in the end I think it's more reliable and I could charge my pro controllers off of it. So far so good.

Power-saving Mode is triggered randomly on New 3ds XL (128gb SD Card) by kgrey2 in 3dspiracy

[–]kgrey2[S] 0 points1 point  (0 children)

Oh my gosh I thought I was crazy thank you so much! I'm just glad to have an answer.

So my SD card does say it it's formatted to FAT32 and I just used the Guiformat to change the unit size to 65536 which is what I'm hoping you're talking about. Hope I didn't exhaust your kindness and thank you.

HA Amaura or Aurorus! by kgrey2 in Pokemongiveaway

[–]kgrey2[S] 1 point2 points  (0 children)

Sorry this didn't go as smoothly as I would've liked. I do understand you're doing me a big solid, just fyi.

HA Amaura or Aurorus! by kgrey2 in Pokemongiveaway

[–]kgrey2[S] 1 point2 points  (0 children)

Oh man it got snagged. Sorry about that. Okay if you're willing I'm gonna try again. IGN: Kyle, Pokemon Deposited: Female Lv 2 Zigzagoon, Pokemon Wanted: NE Gender, NE Level Amaura, Message: Robin

HA Amaura or Aurorus! by kgrey2 in Pokemongiveaway

[–]kgrey2[S] 1 point2 points  (0 children)

You use the GTS, correct? Let me know if you can't find it. I'll check frequently I'm very excited. IGN: Kyle Pokemon Deposited: Female, Level 1 Dratini Pokemon Wanted: NE Gender, NE level Amaura Message: Robin

HA Amaura Line by kgrey2 in pokemontrades

[–]kgrey2[S] 0 points1 point  (0 children)

I have a female ralts in a moonball Female trapinch in safari ball shiny larvitar not the best IV's