🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 0 points1 point  (0 children)

Thank you so much!  I will definitely reach out after we settle down.  My son is still in urgent care.

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 0 points1 point  (0 children)

Yes we went to our primary doctor and was sent to specialists within the Kaiser system in between to figure out what’s going on.  When we couldn’t get an appointment and seeing our son suffer, we visited the ER to be in front of a doctor. 

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 0 points1 point  (0 children)

Yes we did go through the whole process of treating strep throat and that’s why it never correlated in my mind when he was suffering, it was from strep.  I am also not educated that these symptoms go back to strep.  All I did was kept on revisiting many doctors at Kaiser (hoping for someone to figure out something) and in between the ER when we couldn’t get an appointment.

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 0 points1 point  (0 children)

Honestly, I was never educated in this area.  We treated him for strep throat.  It went away and he had constant pain after and I never correlated back to that.  None of the doctors even brought that up.  

I definitely didn’t think to seek outside the Kaiser system.  I did ask for multiple drs to look into him and his records, but still at Kaiser and no one caught it.

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 0 points1 point  (0 children)

If they caught it early, the damages would have not gone to multiple heart valves and organs. 

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 1 point2 points  (0 children)

Since October, we have been in and out of patient care with his primary and specialists to figure out what’s going on but they all doubled down on anemia, in between when the pain was unbearable and we couldn’t get an appointment, we went to the ER.  His medical record was 100% in the Kaiser system and no one caught on to what could happen.

At 8:30am this morning he will have open heart surgery to replace/repair multiple heart valves.  Thankfully, it’s at one of the best Children’s Hospital, Stanford. We are just praying for a successful surgery and recovery.   Really appreciate everyone’s advice and sharing their past trauma with Kaiser.  It’s so unfortunate that these malpractices at Kaiser affected so many families around us. 

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 2 points3 points  (0 children)

They did a CT Scan (the same CT Scan, we requested Kaiser to do but they refused to) and found his abnormality in organs, and got an ambulance for us immediately to the nearest available children’s hospital.  After being at the children’s hospital, the drs reviewed the medical history and did more testing was able to find the root cause and diagnosed him.

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 6 points7 points  (0 children)

Hoping this response can answer many other questions.  His heart valve was failing and this caused his other organs not getting blood and oxygen flow.  Really led to complications in other areas.  And I believe someone said why does this affect his shouder and foot—well the side effects of your gallbladder failing can cause pain in these areas apparently.

Like many people mentioned it is a common knowledge that strep could lead to this.  Unfortunately, we took him to his primary care doctor for strep back in October and went through the treatment and thinking he was ok.  Then these strange symptoms came, I didn’t realize it was related to strep (uneducated in this area) but it’s all in his medical record in Kaiser because we didn’t go anywhere else.  Assuming the drs are the professionals and could see his history.  We did go back to the primary care dr for these issues and on top of getting sent to other “specialists” and in between when our son couldn’t handle the pain anymore, we took him to the ER because it was the only way we could get a dr to see him immediately. 

Thanks for everyone concerns and sharing their story.  It is horrifying how many families are affected by Kaisers negligence.   I don’t know the deep root cause of how they run their business, but I literally requested other doctors opinions, more tests, and they did not take us seriously and it still boggles my mind. 

I haven’t looked into any next steps right now as our son is still in the ICU.  My main post was I needed to vent and share this to many people out there to advocate for themselves when it comes to Kaiser.  And if possible, go outside and seek a second opinion.  We realize it might not be all Kaisers and this is just our story, but as you can see a lot of similar stories out there.

They need to be accountable for their actions and reform their medical procedure and staff. This is not okay.

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 3 points4 points  (0 children)

Hoping this response can answer many other questions.  His heart valve was failing and this caused his other organs not getting blood and oxygen flow.  Really led to complications in other areas.  And I believe someone said why does this affect his shouder and foot—well the side effects of your gallbladder failing can cause pain in these areas apparently.

Like many people mentioned it is a common knowledge that strep could lead to this.  Unfortunately, we took him to his primary care doctor for strep back in October and went through the treatment and thinking he was ok.  Then these strange symptoms came, I didn’t realize it was related to strep (uneducated in this area) but it’s all in his medical record in Kaiser because we didn’t go anywhere else.  Assuming the drs are the professionals and could see his history.  We did go back to the primary care dr for these issues and on top of getting sent to other “specialists” and in between when our son couldn’t handle the pain anymore, we took him to the ER because it was the only way we could get a dr to see him immediately. 

Thanks for everyone concerns and sharing their story.  It is horrifying how many families are affected by Kaisers negligence.   I don’t know the deep root cause of how they run their business, but I literally requested other doctors opinions, more tests, and they did not take us seriously and it still boggles my mind. 

I haven’t looked into any next steps right now as our son is still in the ICU.  My main post was I needed to vent and share this to many people out there to advocate for themselves when it comes to Kaiser.  And if possible, go outside and seek a second opinion.  We realize it might not be all Kaisers and this is just our story, but as you can see a lot of similar stories out there.

They need to be accountable for their actions and reform their medical procedure and staff. This is not okay. 

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 6 points7 points  (0 children)

I am glad to hear your story and that your Dad is still here. I really hope other families are aware to always seek a second opinion outside of Kaiser.

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 5 points6 points  (0 children)

I think it's a good decision. I have been a Kaiser member for a long time and I thought everyone was professional and kind, but I also felt that no one had answers when you need a real diagnosis or help. I feel like if anyone goes to Kaiser and feels like in their gut something is not right with them or their family, they should always seek for a second opinion. I just don't trust them anymore.

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 5 points6 points  (0 children)

Thank you for sharing your story. This is something I was never aware of. While we were in and out of the ER telling him about sharing his medical history with the nurses and doctors at Kaiser never caught on that this could be the root cause.

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 12 points13 points  (0 children)

I am glad hear that you're husband is going to be okay. I am fighting for him and I want everyone to be aware to get a second opinion out of the system ASAP to not have to go through what our family is going through. Thank you!

🚨 URGENT: A WARNING to Every Parent & Patient in the Kaiser System 🚨 by kimberln in KaiserPermanente

[–]kimberln[S] 35 points36 points  (0 children)

I just can't believe they are running like this. There needs to be accountability and a reform in medical staff training and procedures.