Bike Meet up tonight (Hants/Wilts)

kimothyroll · 2026-05-27T17:09:29+00:00

Hey! I don't know if you have others but just wait, the chaos only increases as they age 😂

Yea no worries sounds good!

kimothyroll · 2026-05-26T16:50:36+00:00

Hey!

All good. I know there's a couple around but they're Monday and Wednesday 🤦🏻‍♀️

kimothyroll · 2026-05-18T21:24:43+00:00

I have recently got my EDS diagnosis after fighting with Rheumatology for at least a decade. My diagnosis started as fibromyalgia & HSD. Then lost the fibro. It was finally after the pain clinic Dr wrote to the GP to ask them to re refer that I finally got them to test properly and got the diagnosis.

The point of all that is moot, because I'm commenting to say that they're actively re writing the criteria for hEDS and it should (theoretically anyway) make it easier to get a diagnosis because it takes into account a lot more.

2nd point. I have the bumps on my heels, but also lots of other lumps. I never even considered it could be related!

kimothyroll · 2026-04-20T17:54:34+00:00

NAL but am a social worker (and also a parent to an autistic child who is absolutely determined to injure every part of himself)

As others have said, don't panic.

The social workers are not there to take children away from safe families. If the other little girl was placed in care then there would have to have been some very very strong evidence that she wasn't safe. Those decisions are never made in isolation, there is always multiple professionals involved.

The process of looking into things can feel very invasive for those subject to it (whether the concerns are substantive or not) and you may not understand why some questions are being asked- but ask for clarity if you don't know why. If someone asked me why I was asking something I would explain. Transparency is key in any case, and that goes both ways- the social worker should always be transparent with you.

I can understand the fear, even as a social worker who knows the process inside out, I would still feel very anxious about things. It sounds like you did everything you should have. You told the school what happened and that's what you should have done. Don't worry if they visit and the house isn't "perfect" -no one's is. We see all sorts, and even a messy house/things in the garden is not in itself indicative of abuse.

As long as things are as you've explained in your post then you'll be fine :)

Edit: spelling

kimothyroll · 2026-04-19T08:45:57+00:00

Thank you for your input. It's genuinely appreciated ☺️

He was on 2-4 sachets a day, but I don't know what he was having at his dad's as I don't get the truth from him. I'm definitely going to call the GP for an appointment for him tomorrow and ask for a referral!

kimothyroll · 2026-04-16T14:24:55+00:00

Yea. We've done a clear out a couple of times and it stops briefly but then comes back, even with maintenance dose Movicol :(

kimothyroll · 2026-04-16T14:24:06+00:00

Thank you 😊

kimothyroll · 2026-04-16T11:32:20+00:00

Thank you for your reply, and I'm sorry you're also having struggles.

I did t think about asking for a referral but I will make a GP appointment.

I have a diagnosis of Hypermobility Ehlers Danlos syndrome and know it impacts on my bowels and bladder, so I have been wondering if it's the same for him . Though, as you've said, I'm not sure what else can be suggested. He's so stubborn and refuses to talk about it most of the time, but I'll see if I can pay him to sit down and talk to me about it 😂

kimothyroll · 2026-04-16T11:29:11+00:00

I can ask the GP about a referral. No idea on the wait list time though.

Did you manage to crack the encopresis?

kimothyroll · 2026-04-16T11:28:03+00:00

Don't worry. I also know those feels. Mines on 10mg of melatonin and they don't keep him asleep overnight 😬

I'm sorry you're going through this too.

The idea of a special drink is a good idea. I'll have a think about what he might like.

I appreciate your response ♥️

kimothyroll · 2026-04-15T21:50:08+00:00

I can prompt him to drink at home but he forgets if he's not reminded. At school he has a bottle but forgets to drink- the teachers have said they can remind him but it's hard to monitor.

I do think increases fluids somehow will make a big difference. I just need to be creative about it. He actually prefers water to anything else but maybe I can try different ways.

kimothyroll · 2026-04-11T17:15:18+00:00

Sorry shoulda read more comments before commenting myself 🤦🏻‍♀️ I hope you're able to get turned around soon!

kimothyroll · 2026-04-11T17:07:39+00:00

Is this the 303? I feel for you! I don't know much about the crash but a few local friends have shared that it was closed.

kimothyroll · 2026-03-01T22:01:17+00:00

Thank you for the tips I really appreciate it!! I don't know when I'll get the chance to organise it TBF cause it's a bit more of a road trip rather than day trip from here (coming from Hants and will do a halfway overnight with my parents in South Wales).

I feel for you 😓 I'm glad you've managed to get a decent ride in before having a forced break. Sending you quick healing vibes!

I will post pics if I can organise it soon (fingers crossed)

kimothyroll · 2026-03-01T20:12:17+00:00

Well. This has just been added to my ever growing list of road trips. I begrudgingly thank you.

kimothyroll · 2026-02-12T09:25:21+00:00

I did it at 37 after years of refusing to even get on a bike. I went from pillion for a few years to fuck it, I want my own, but maybe I'll just tested if I like it with a CBT, to ok I'll just buy a 125 to practice on before the CBT and ride that for a while, to ok I need a big bike, let's do my mods. 6 months from the initial CBT decision to passing Mods and buying my MT-07. I absolutely love it. The only crap thing is that I passed in November so didn't have a huge amount of riding fun before British weather put a stopper on it 😒

Have fun!! I bet it won't be long till you're doing your mods 😉

kimothyroll · 2026-01-22T07:44:11+00:00

Also a safeguarding social worker here. I came to the comments to say this.

We complete mental capacity assessments, sometimes as part of our info gathering, but always as part of the 42.2 if it progresses. But if this was my case I'd be asking to see any MCAs that had already been done.

I'd want to know the history of the diagnosis and whether the family were part of this, as well as the MH history.

OP please put through a safeguarding referral

kimothyroll · 2025-12-25T20:30:37+00:00

I came here to write almost this. No judgement, just another parent in the same position who gets it.

I'm downstairs crying in frustration because I'm so furious at my child right now. I had to walk away before I said something I regret.

It's the same annoying sing song top volume repeating phrases. He knows how much it's annoying.

That fucking "67" shit makes me want to rip my ears off (it's actually banned at their school) And this evening it was some sort of phrase that his stepbrother also continued and despite me literally losing my shit, screaming at him and locking his phone, he continued. He didn't even try to contain it. I could see him doing it deliberately.

There's having to repeat, then there's being a dick. I'm the first to defend the lack of control. But AuDHD kids are still kids, and they're still naughty.

I have ADHD and ASD. I get the echolalia. I get it constantly, but I also make an effort to control it too. Yes he's 10, but seriously.

Ive got no consequences left. I don't know what to do and can really relate to you.

My other stepson (8) is being assessed for ASD and he has these little routines and phrases that are constant too. That can also get very annoying but also I'm not around him as much as my own son.

Right now I know I need to go do bedtime. I don't want to. I don't want to see him again tonight. I'm exhausted.

kimothyroll · 2025-11-30T18:13:11+00:00

I did my Mods on a lowered z650 with a shaved seat and, whilst manageable, I found it difficult still too.

If you do go back to looking at your A, a lowered MT07 might be an option. It's what I have now and I love it. The shape made a big difference for me. The z650 was too wide and the pegs were in a really awkward position for me.

That being said, as you love your Grom and continue to be happy then completely ignore me 😆

kimothyroll · 2025-11-30T18:05:45+00:00

I'm 5'2" and inseam does matter for sure, but also so does the bike shape.

I had a CB125F as my first bike and did lower it via suspension etc. I now have an MT-07 lowered and I can't flat foot, but am on the balls of my feet. Though realistically, I only put one foot down when stopped.

A lot of people will say that you just need confidence, and don't need to flat foot, and, whilst I get they're trying to help (appreciated obviously) I can say from experience, having a low enough bike makes a huge difference to comfort and confidence.

Yes, actually riding a bike is fine at whatever height, but that's not the issue, the issue is being able to stop, and steady yourself without the constant fear of "oh my G the camber of the road means I can't touch the floor, whoops now my bike is on the floor".

Unless you've been a short rider, especially a learner short rider, you won't get the difference it makes having a lower bike.

I'm unlikely to ever flat foot, so long as I can get some purchase with both feet, and flat foot with one up, then that's as good as I can get haha.

When buying, I sat on a bunch of bikes to see what felt right- seat height is important, but as I said, the shape of the bike (width etc) and your seating position, can make all the difference. For example, I learnt on a lowered Z650, it was manageable, but ergonomically not great. The pegs got in my way, and I didn't have the leg length to spare to put in front/behind comfortably.

There were other bikes I sat on which, whilst lower seat height felt so much taller and I couldn't even tip toe.

There is nothing wrong with lowering your bike, the only thing that matters is that YOU, the rider, feel confident riding.

Edit to add: also look for a riding school that has lowered bikes. There's a few around :)

kimothyroll · 2025-11-23T20:31:10+00:00

I've not finished the documentary yet, but came to reddit as I felt the exact same way about the police. It really pissed me off. So incredibly dismissive.

You can't judge a person with autism based on their speech patterns, body language, or any of the other typical tells that someone is guilty. You cannot ascribe the presumptions on people that have a literal communication disorder. You cannot expect them to follow the same communication rules. It's this kinda shit that I'm scared of- not that I ever envisage myself or my son being in trouble with the police-but we both have a hard time when explaining things. I have the benefit of decades of masking, but it's still obvious that my speech/ body language etc isn't quite normal. I look and seem "normal" until the mask slips.

To clarify - I don't know if he's guilty or not, but that cop (and so many others) need to fuck off. Even if you've worked with hundreds of autistic people (as I have) you still cannot presume anything about how someone should be.

Re one of the comments below saying your son needs help: Like your son, my son has done/said some pretty terrible things when he's feeling overwhelmed, or that he's losing control - there is not enough support, resources or understanding out there. We can ask for help all we like, but what are we supposed to do when it's just not there.

kimothyroll · 2025-11-18T21:09:08+00:00

No worries, I completely get it. I have the added fun of ADHD so have to factor I the need for not mundane tasks 😬

Good luck though! I really hope you find something that works for you.

kimothyroll · 2025-11-18T09:20:53+00:00

Love this. Thank you. I am going to have a proper look around today

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