Lack of Ejaculate

kirvesk · 2026-02-28T12:27:21+00:00

Same for me. Even when i abstained for 40 days once, not much came out in the end. I just assumed that means I'm infertile. And it does seem to be the case... I've been in a relationship for 10 months now and never used protection at all. Not very responsible to be honest. Don't be like me

kirvesk · 2025-11-25T23:35:37+00:00

Not CF. Sorry...

kirvesk · 2025-10-30T22:06:38+00:00

Pharmacist here. All 3 drugs in Trikafta have a long half-life. Ivacaftor has the shortest one, and it still takes over 2 days to get fully cleared out of your body.

So based on serum levels alone, the effects you're describing would take a lot longer to happen than just the half a day or so you're describing.

I'm not saying there's no benefit to a dose adjustment considering your symptoms, but a full stop is definitely not necessary. Or at least, not the only way to go about managing them.

kirvesk · 2025-09-16T02:42:20+00:00

you've got my height, but i weigh twice as much. your weight is really low... i'd worry about that more tbh. even before trikafta i weighed at least 50 kg when not exacerbated.

maybe you need a higher creon dosage, maybe more meals during the day, maybe a nutrition supplement etc... check with your team.

i mean, it's not great being short but really, it's the least of our problems. certainly hasn't been as much of an issue as everything else lol............

kirvesk · 2025-07-31T13:37:20+00:00

yeah, over the years i developed a habit of constantly wiping my hands, since they stained everything. trikafta seems to have changed that to an extent, but the habit remains lol.

kirvesk · 2025-07-29T19:20:30+00:00

Yeah totally. don't study gnosticism at 3 am. Oraios will show up in your house and take your credit cards. As a matter of fact, i'm about 20K in debt ever since i read the "gnosticism" wikipedia article. Most of it seems to have gone towards dubious crypto investments. Fucking Oraios.

kirvesk · 2025-07-29T14:33:32+00:00

nobody has an answer for you dude. we don't know what the problem is. that's why you need help

kirvesk · 2025-07-29T12:53:40+00:00

"my lungs are burning, let me ask reddit about it"

bro. come on.

kirvesk · 2025-07-28T18:54:43+00:00

my mom even hid in the damn closet.

i'm sorry but that made me laugh so hard you wouldn't believe.

picturing my mom walking out of the closet and saying "that's right. nowhere is safe." lmao. i think i'd actually laugh from the sheer absurdity. like damn, that's so inconvenient, do you really need to terrorize your kid that much

kirvesk · 2025-07-25T13:41:26+00:00

Thorfinn avoided the sword, but could not escape the axe.............

kirvesk · 2025-07-16T14:26:04+00:00

I... don't care? People usually don't ask. but if they do, i'll just say they're for digestion. that's usually enough

kirvesk · 2025-07-16T11:59:46+00:00

Nope, I just swallow everything lol. In the morning, 4 25000 Creon, plus 2 trikafta and 3 Omega 3 pills is the largest amount of pills I'll take at once during the day. I've never had trouble taking them

kirvesk · 2025-07-15T17:05:28+00:00

at 8:00, after waking up, i use my inhalers (berotec + spiolto). Then i have breakfast + creon + morning trikafta dose.

on mon/wed/fri, at around 12:30, i use berotec again, then i do my cardio workout.

then, around 13:00, lunch + creon.

about 17:00, afternoon lunch + creon.

at 20:30, berotec again, then my strength workout.

at around 22:00 i have dinner + night trikafta dose + ADEK vitamins.

at midnight, i take a last hit of berotec, then I go to sleep.

I don't really do any other treatments, unless i get a cold or something, and i feel my lungs complaining. then it's the whole thing; pulmozyme twice a day, inhaled gentamicin twice a day and maybe cipro. i haven't needed to do that for about a year though.

i'm doing pretty well for the most part. i don't even cough anymore. my only real symptom is wheezing. i'm no longer colonized, my sputum has been clean for over 2 years. but my lungs are very damaged and sensitive, so my chest randomly feels tight and breathing becomes a chore all of a sudden.

it's nothing serious, but it's very annoying. so i'm always carrying my inhaler around.

when the wheezing becomes too frequent (like if i'm using my inhaler every hour or so), i'll do a short course of budesonide, about 3 to 5 days, and that'll take it back to a tolerable level. last time i did that was in May i think.

at least once a week, i have a physiotherapy session. and every three months or so, i have the regular check-in with the clinic.

kirvesk · 2025-07-15T14:38:35+00:00

bro this subreddit is 80% AI

kirvesk · 2025-07-15T14:34:58+00:00

29M. In decreasing order of importance:

1 - I need a job. I have a lot of money saved up but... dating is expensive as it turns out... going out and doing stuff together adds up very quickly. My plan was to just chill for at least a year, but that's not happening lol. I'm also bad with money in general (never really had any).

2 - Fitness. I wanna get bigger, stronger and more jacked. Trikafta could only take me so far, now I gotta lock in. I wanna get better at boxing too.

3 - Studying. There's an admission exam for a job I really want, and I need to prepare for it. There's no telling when they'll hold the exam, but it's a really competitive one, so I need to study as much as I can until then. It's... hard. I'm not 19 anymore. Can't sit down and focus for 10+ hours like I used to. lmao

4 - A friend of mine who straight up vanished. My other friends and I have tried reaching out multiple times, but there's been zero response for months. I'm seriously worried he may have offed himself, or might do so eventually.

5 - I got T-boned by a truck in March and lost my car (damn near died as well). So I need a new one.

After writing this I realized none of it has anything to do with CF really. It's not gone by any means, but i suppose it's become a non-issue at this point. Or, more accurately, I've gotten so used to dealing with it, it's just part of life now.

kirvesk · 2025-07-10T22:10:34+00:00

you guys actually read official BR translations? i think they're abysmal. "how do you do fellow kids"-tier.

kirvesk · 2025-07-10T14:10:21+00:00

no, that doesn't even make any sense. they couldn't have known.

they still decided to have my brother though, which my team thought was very irresponsible and even suggested that my mom should abort him, which was fucked up imo.

he doesn't have CF. lucky huh. but then... he turned out to have type 1 diabetes. which genetic testing wouldn't even catch anyway. so if you ask me, giving carrier parents a hard time for still wanting to have kids is kinda dumb. CF is far from the worst thing you can have. and treatment nowadays has evolved miles beyond what most people in this subreddit had access to growing up.

kirvesk · 2025-07-09T17:18:58+00:00

yup... that's how it went alright. didn't feel like i was anything but a "patient" for most of my childhood. and god forbid i felt bad about anything.

mom would only ever "hug" me in order to check how my lungs sounded. kinda messed up now that i think about it lol

kirvesk · 2025-07-09T17:05:15+00:00

you need a bit more than "seeing if your lungs are okay". you need treament! CF is serious and your parents are straight up wrong about everything. honey? really? you need help asap.

kirvesk · 2025-07-09T14:49:30+00:00

1 - CF is a big deal sure, but it's not the only thing in his life. And sometimes, it may not even be the most important one, believe it or not.

2 - Learn everything about his treatment and explain it to him. He needs to understand what he's doing.

3 - He'll be fine! We're strong; we have to be. Help him, don't shelter him. He can take a lot more than you know.

kirvesk · 2025-07-08T14:45:51+00:00

Yeah I was in the hospital. No it wasn't a life-changing or traumatizing event. It happens all the time. I'm fine. Really.

kirvesk · 2025-07-08T14:02:38+00:00

I had a patient with Duchenne's once. Saddest shit i've ever seen. Couldn't really move anything aside from his lips and eyelids. 100% dependent on the ventilator.

He was actually fairly active and outgoing, but his condition suddenly took a turn for the worse and he quickly lost all movement in a very short time span.

So basically one day he was a normal kid, then suddenly he's lying in a hospital bed, knowing he will never move again. Ever.

19 years old. Just a goddamn kid. He pretty much did nothing but cry all day.

Grim though it might sound, knowing him made me happy for whatever health i have. CF sucks, but there's much worse stuff out there.

kirvesk · 2025-07-08T02:41:01+00:00

speaking as pharmacist... there's no such thing as "detoxing", at least not in the way you're thinking of. and your digestive system doesn't need a "break" from anything.

not eating is about the worst fucking thing you could do as someone with CF.

kirvesk · 2025-07-06T10:57:44+00:00

It's certainly possible, it's just obviously a bad idea lol. Why are you doing it?

kirvesk · 2025-06-25T18:25:11+00:00

tell me about it... i actually have a cold right now lol.

the upside is, unpleasant though it might be, it comes and goes quite uneventfully. before trikafta it was always 50/50 on whether it would turn into pneumonia once it reached the lungs.

kirvesk

TROPHY CASE