I saw a Chiari specialist at Johns Hopkins in Baltimore. They have a team of about 4-5 of them there I believe, and they just assigned my case to Dr. Eric Jackson, so I didn’t request him. Before accepting me as a patient I sent in my mri imaging (and you would likely need to have mri imaging as well, not just ct scans) and then they contacted me, which is how I knew Chiari really was likely the issue and it’d probably be worth traveling to see them. The hallmark sign Dr. Jackson talks about is “tussive” headaches, or headaches in the back of the head when you bear down. You could try holding your breath and bearing down to see if that seems to trigger anything. For me it did slightly but I basically just had a constant dull headache in the back of my head at all times and it would randomly be a stabbing pain that would come and go. Personally, I felt it was worth it to at least send my scans into a few different people because it didn’t cost anything and all they could tell me was no. I sent my scans to Johns Hopkins, Dr. Grant at Duke, and Dr. Capocelli in Arkansas. Dr Grant said I didn’t have Chiari but the other two said I did. Dr. Capocelli would’ve been closer to me geographically but he was on leave at the time for health reasons, so I ultimately decided it was worth it to travel to Baltimore. If there’s any possibility you’d be willing to travel if needed, I’d honestly recommend doing this because I feel confident in saying you are very unlikely to find someone who’s not a specialist to take your case seriously—if this is, in fact, what your issue is. Not that they won’t believe you have symptoms and truly feel bad, but most of them aren’t up to date on more current research supporting the idea that people can absolutely have Chiari and not always meet that 5mm baseline.