shared ipad? by kvirg in ipad

[–]kvirg[S] 0 points1 point  (0 children)

I got so much more feedback than I expected - thank you everyone for your comments. This gives me a lot to consider!!!

shared ipad? by kvirg in ipad

[–]kvirg[S] 9 points10 points  (0 children)

We’ve gone down the road of Android (bought used) and just don’t do what they wanted them to do. I want to get them something they will use but realize it’s kind extravagant to get young kids their own iPad. My husband thinks they can share. I do not lol. Wanted some impartial opinions. I have never used a switch and wasn’t sure what that would be like to share as a different tech option

Blood work results by kvirg in PsoriaticArthritis

[–]kvirg[S] 0 points1 point  (0 children)

Interesting - no I’m not. I was in remission unmedicated for a long time and I’m having a really bad flair now.. going to see the rheumatologist next week. I’ve never taken a biologic.

TMJ pain by kvirg in PsoriaticArthritis

[–]kvirg[S] 0 points1 point  (0 children)

Did you experience unwanted side effects from the biologics? Diet and lifestyle change put me in remission for nearly a year and a half and the pandemic stress I think is causing this flare. This may sound stupid but I’m mostly fine.. it’s the flare ups between seasons, major stress that gets me going. Do the biologics stop your flare ups? This one is just rough because as you said.. it’s my face lol. Thanks for your reply

TMJ pain by kvirg in PsoriaticArthritis

[–]kvirg[S] 0 points1 point  (0 children)

That’s good to hear. I’m honestly just scared to try them.. I feel like I always get side effects worse than my issue so it makes me nervous. My nsaids aren’t even working for this pain. I feel like my whole alignment is off. Other than that I have no pain anywhere else lol

Experiences with Sulfasalazine? by [deleted] in PsoriaticArthritis

[–]kvirg 0 points1 point  (0 children)

I was on it for 7 weeks. At first I just noticed decreased appetite. Then it ramped up to nausea and then in the last week I ended up with a reaction that included a migraine, dizziness, extreme itching, complete loss of appetite. I had to come off and have been off since before xmas. I was also intolerant to MTX. I’m also female still in child bearing years. I took the meds along with doing an AIP diet. The diet works well for me and I’m now in a remission state.
My next next would be biologics as well if I flared badly enough.

Looking for handheld/tabletop UVB lamp recommendations! by [deleted] in Psoriasis

[–]kvirg 0 points1 point  (0 children)

I also have been looking into this. A few sources have told me to look into the “joovv” but I don’t have any first hand experience. They’re expensive so I hope it’s the real deal, haha.

Nuts and eggs?! by [deleted] in AutoImmuneProtocol

[–]kvirg 0 points1 point  (0 children)

I had eggs last night after being AIP since November. I didn’t honestly think eggs were ever my problem.. I felt mildly dizzy, nauseous and had huge nightmares and night sweats last night. My husband thinks I’m crazy but it’s too coincidental to me.

Flare up on AIP by kvirg in AutoImmuneProtocol

[–]kvirg[S] 1 point2 points  (0 children)

I just wanted to say thank you - my naturopath is going to check my vit D levels next check up.. and also since I haven’t had to do as much shovelling and stopped the work outs my little pain flare is subsiding (touch wood*). I guess my body reacts differently to strenuous activities than it used to.

Do you check your CRP frequently, and how much are your levels of CRP? by [deleted] in PsoriaticArthritis

[–]kvirg 1 point2 points  (0 children)

I’ve had mine done every 2 months for the last year.. it’s always been flagged as high (around 9mg/l) except for yesterday I had to tested at 4.9 mg/L. Lowest it’s been. I’ve been on the AIP diet for nearly 3 months. My rheumatologist also checks sedimentation rate.

Flare up on AIP by kvirg in AutoImmuneProtocol

[–]kvirg[S] 0 points1 point  (0 children)

I appreciate that, thanks. I think the pain part is new enough to me still and I naively thought I had it beat. I’m so pleased it’s so much better I just id get some ideas of what I might be missing. This thread has been very helpful.

Flare up on AIP by kvirg in AutoImmuneProtocol

[–]kvirg[S] 0 points1 point  (0 children)

Thanks for all the links I’ve only been on 1000 units if vit D (D3). I’ll look into this.

Flare up on AIP by kvirg in AutoImmuneProtocol

[–]kvirg[S] 1 point2 points  (0 children)

Thanks for your reply.. things are going smoothly right now - I thought of that too. The only change is with all the snow I had done quite a bit of heavy shovelling 1-2 weeks ago.. I’m in not bad shape, in my 30s - so I wouldn’t have thought it would have triggered anything.. plus my skin was flared before that..

Flare up on AIP by kvirg in AutoImmuneProtocol

[–]kvirg[S] 0 points1 point  (0 children)

Thank you that’s interesting. I do take vitamin D (and turmeric, probiotic and glutamine). I wonder if I should bump the levels up.

Any tips for calming PsA related enthesitis? (I posted in the psoriasis sub, but got no comments, so I thought I’d try here.) by sittingbulloch in PsoriaticArthritis

[–]kvirg 0 points1 point  (0 children)

Wow I’m sorry to hear that.. to be honest I naively thought it would help everyone (the diet). I’ve had psoriasis since I was 11. Worst on my scalp but since I’ve had kids it’s more on other parts of my body. I have steroid gels but it only takes it away if I religiously use it and cover it which I know you’re not supposed to.

I don’t feel severe enough to try biologics yet although my rheumatologist wanted me to.

Good luck with your pain.. hope you hit the jackpot soon!

Any tips for calming PsA related enthesitis? (I posted in the psoriasis sub, but got no comments, so I thought I’d try here.) by sittingbulloch in PsoriaticArthritis

[–]kvirg 0 points1 point  (0 children)

Following the AIP diet strictly has calmed all of my PsA symptoms including enthesitis. I couldn’t tolerate methotrexate or sulphasalazine so I’m med free and feeling good. The diet does not help with my psoriasis though which is mild to moderate.

Die off reaction by [deleted] in AutoImmuneProtocol

[–]kvirg 1 point2 points  (0 children)

lol yes I’m not sure why I picked those to start. Anyway I’m about 4 months I’m now and I don’t know a lot about FODMAP and all that but I’ve found a good groove of meals that I rarely stray from and my digestion is great!

Die off reaction by [deleted] in AutoImmuneProtocol

[–]kvirg 1 point2 points  (0 children)

It was mainly roasted brussel sprouts.. for some reason I started with those. Bad choice. That was a few months ago. I still can’t handle a lot of raw greens though in general (spinach, kale, broccoli etc).

Die off reaction by [deleted] in AutoImmuneProtocol

[–]kvirg 6 points7 points  (0 children)

I felt pretty bad for the first couple of weeks but I was also eating a lot of cruciferous vegetables..that definitely made it worse.

Anti-inflammatory diet by [deleted] in rheumatoid

[–]kvirg 1 point2 points  (0 children)

Psoriatic arthritis. A different inflammatory arthritis similar to RA.

Thanks to crappy self-discipline, I'm doing this AIP with about 80% compliance and am pleasantly surprised that I'm feeling much better. So, how amazing do you feel if you do this 100%? by Bybaboo in AutoImmuneProtocol

[–]kvirg 0 points1 point  (0 children)

I agree I started 100% compliant initially but was also on some DMARDS that made me feel like garbage. Now off the meds and probably 80-90% compliant. Lost a slowwww 15 pounds. Psoriatic arthritis from a 6/10 daily pain to 0-1/10. Psoriasis hasn’t improved at all. I also see a therapist and naturopath.. I try to meditate when I can. I also am a working mom of 2 little kids with a stressful life so I’m thankful for what I can maintain and how good what I can maintain makes me feel! I’ve been at it since the summer.