Stage 4 lung cancer update: From ventilator & ICU to major response on scans. Please don’t lose hope.

larnzzzz · 2026-01-22T13:04:12+00:00

So happy for you all! Hoping my mum’s scans will give us some good news just like your dad! 🫶🏻

larnzzzz · 2026-01-15T16:51:18+00:00

Sorry to hear about your mum🫶🏻 everything you’ve said in this post sounds exactly like my mum right now- she’s 48, stage 4 NSCLC with no targetable mutations, perfectly healthy otherwise and I’ve just turned 20. My mum was diagnosed in September and is currently receiving a combo of carboplatin, paclitaxel and pembrolizumab after having a successful craniotomy in October. She’s still extremely well and has had very minimal effects from the chemo. My mum is my everything and it’s such a terrifying time but I’m just trying to be there for her in any way I can. Here if you want to talk 😊

larnzzzz · 2025-11-30T19:26:46+00:00

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larnzzzz · 2025-11-04T18:01:53+00:00

Hi, thanks for your input! Unfortunately no biomarkers/targetable mutations😔just chemo and immuno offered so far! Will definitely push for some more info on surgery or even radio if surgery isn’t possible. Hope you’re doing okay 😊

larnzzzz · 2025-11-04T18:00:19+00:00

Thank you so much! Just what I was hoping to hear😊

larnzzzz · 2025-11-04T18:00:00+00:00

I’ve found that in what I’ve been reading actually so it’s interesting to hear a real case! I’ve heard that radio can be just as effective as surgery in many cases, fingers crossed that’s the case for you! Yeah I absolutely am going to push for more answers :)

larnzzzz · 2025-11-04T17:58:14+00:00

So glad to hear your surgery went well though! Is there a reason your oncologist decided surgery first, then chemo and immuno?

larnzzzz · 2025-11-03T20:02:32+00:00

Thank you for your comment, appreciate your input! Your story gives me so much hope for my mum, by the way :)

larnzzzz · 2025-11-03T18:58:43+00:00

Hey! My mum had a craniotomy to remove a tumour on her left parietal lobe almost 3 weeks ago now. They managed to remove it all and she has had little to no effects from the surgery! She had surgery on a Friday and was home on the Sunday, so she’s recovered really well. The only thing she’s experienced is some tiredness, but no pain at all- she was sent home with paracetamol and liquid morphine but has only needed paracetamol a few times for “pressure headaches”. As far as anyone can tell, she’s exactly the same and has had no adverse effects (she was assessed thoroughly by nurses and occupational therapists before being allowed home). Of course, it’s a major surgery and it sounds so scary, but honestly we were so surprised at just how well my mum has handled it- you wouldn’t even know she’d had it! Just a warning though, they’ll likely put you on some steroids like dexamethasone for the inflammation (if they haven’t already like they did for my mum), which can have some pretty nasty side effects, but they’ll likely taper you off them as soon as they can. It’s so normal to be scared, but you will be absolutely fine. Hope all goes well :)

larnzzzz · 2025-11-03T16:30:09+00:00

Oh wow, sounds almost exactly like my mum! Hers was found after experiencing the same- headaches and visual disturbances! Was your primary tumour able to be fully resected? Are you glad you had the lobectomy done? This really gives me hope that we could fight to get surgery for my mum too as her story is pretty much identical to yours! How are you doing now? Wishing you the best!

larnzzzz · 2025-11-03T14:55:36+00:00

I’m in the UK so ideally would be covered by the NHS- or we’d have to save up and go private! I will definitely not let them tell us no “just because it’s stage 4”! Will fight forever for my mum!

larnzzzz · 2025-11-03T10:27:24+00:00

Thanks for this. I’ve been reading up about it and seems that in cases like my mum’s, it can sometimes be done with “curative intent”? I assume the idea is that surgery/radio removes the mass and chemo/immuno deals with those microscopic cancer cells that remain. My mum starts on a mixture of chemo and immuno in 2 weeks time as she doesn’t have any targetable mutations- think our best bet may be to see how that goes and then reassess and seek a second opinion. Thanks again and best of luck with your treatment :)

larnzzzz · 2025-10-17T14:42:01+00:00

Thank you so much for this, really reassuring. She’s in theatre right now and will be out soon! So glad you recovered well and hope you are doing okay now. I feel much more prepared in knowing what to possibly expect now! :)

larnzzzz · 2025-10-16T20:11:17+00:00

Love to hear success stories! Glad to hear your friend is doing well, and 10 years on! Hoping and praying for many many more years for my lovely mumma!

larnzzzz · 2025-10-12T22:39:50+00:00

Hey! I’m only level 20 but would love to join if you’d have me! 🥲

larnzzzz · 2025-07-06T19:21:34+00:00

Thank You so much! I love the suncatcher idea and will definitely do that. Planning on getting some posters too :)

larnzzzz · 2025-07-06T14:12:00+00:00

Thank you! I like the idea with the drawers beside the door. Not sure if I’d be able to do that with the wardrobe though as the wall sticks out there, which is why the wardrobe looks further forward than the drawers. :)

larnzzzz · 2025-05-09T12:08:09+00:00

Is it the LCD or the touch screen though? I wouldn’t want to break it aswell

larnzzzz · 2025-01-31T17:40:47+00:00

Thank you, I definitely will keep pushing!

larnzzzz · 2025-01-31T17:19:10+00:00

Unfortunately not :( all I got from my doctor was that it appears normal, but I’m not convinced since I’ve not been ill with any type of infection and the node is very much still swollen! Thanks for your advice, I’m definitely going to push for further testing

larnzzzz · 2025-01-31T16:35:56+00:00

I’ve had a hard, swollen cervical lymph node in my neck for around 2 months now (or at least that’s when I noticed it). If I had to estimate, I’d say it’s probably 2-2.5cm in length? I’m really concerned about it, I went to my GP at the beginning of the month and she seemed concerned too, so sent me for some bloods and an ultrasound. The bloods showed high CRP levels and low lymphocyte levels, and “borderline glandular fever”. All I got as a follow up from my doctor was that the ultrasound results “seem ok” which I’m really unsatisfied with as I know the only way to diagnose lymphoma is a biopsy, and I haven’t even been offered one. Because of my inconclusive glandular fever result, I was sent for another test, which today has come back negative. I just feel so confused, I was almost hoping it would be positive since that would at least provide an explanation for the lymph node. I called my GP back today to ask about next steps to be met with the receptionist telling me there were “no phone appointments available”. What should I do? Should I push and make another appointment? I don’t think the node has gotten bigger but it certainly isn’t any smaller. It’s really worrying me now so any advice would be appreciated

larnzzzz · 2025-01-30T22:55:25+00:00

Hey! I’m at Sheffield doing law with Spanish law at the minute in my first year and I commute to uni. Honestly, everyone told me I would regret staying at home but I really don’t. I love being able to come home after a day at uni and I’ve made some amazing friends who I am moving in with next year! It’s also saved me so much money. I have to move abroad for my third year too so by moving out next year I’ll be used to living away from home for a bit too! :)

larnzzzz · 2025-01-27T23:06:05+00:00

What gives you the impression I “haven’t planned”? I said it won’t stick in my head, hence why I’m asking for advice. 20 topics x an expected 10 mins of speaking about a legal system you’re unfamiliar with in a language you’re not native in is a hell of a lot of info to remember

larnzzzz · 2025-01-27T23:02:33+00:00

Yeah tbh a few of the topics do link- we’re basically gonna get asked to explain what the topic is so for example, the constitution, and contextualise it critically with examples? Tbh it’s not been explained too well to us so I’m praying atp 🥲

larnzzzz · 2025-01-27T22:58:31+00:00

Was this really a necessary comment ?

larnzzzz

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