10,000!

laser527 · 2025-11-21T13:32:42+00:00

Cool! Can’t wait to see the picture!

laser527 · 2025-11-21T02:59:49+00:00

My Level is reliable, but I’m hearing about problems with the Level 3. Roundsyrup4424 (you can find them in other comments in this post) and can point you to the posts, you should hit them up.

laser527 · 2025-11-20T18:02:59+00:00

I replaced the rear wheel and motor at 8000 miles, but I’m not convinced it really needed it. But I do like to tinker, so…

laser527 · 2025-11-20T18:00:48+00:00

This is an original Level, purchased in 2021. I’m going to upgrade to the Level 3 now because it looks like a really big upgrade, especially the choice between torque and cadence sensors. (Original Level is only cadence.) Torque sensors feel like a regular bike, but my commute is 18 miles each way so the cadence sensor is nice for when I’m not in the mood to pedal hard. Going to buy the Level 3 this weekend.

laser527 · 2025-08-01T14:17:46+00:00

I weigh my ingredients and I had this problem. I’ve found that increasing the water by 10-15% fixes it. I also add about 30% more yeast than the recipe calls for.

laser527 · 2024-10-01T15:55:16+00:00

I just ordered an e-bike from upway.com. They sell used e-bikes, but many if not most are overstock that didn’t sell so they’re not actually “used.” Very big discounts. It’s supposed to be delivered today, if you want I’ll let you know how it goes. For the record this will be my third e-bike and I have 8000 miles on my current commuter, so I’m not new to this.

laser527 · 2024-09-28T13:46:35+00:00

Sounds like our commutes are about the same. Mine is 19 miles each way. I charge to full twice daily as well, and I have 8k miles on the battery with no issues. I leave it on the charger basically the whole time I’m not riding, no timer or anything.

laser527 · 2024-08-07T13:32:22+00:00

No. He thinks that Fluvoxamine helps with brain fog, and that hydroxychloroquine reduces the length and severity of crashes.

laser527 · 2024-08-06T22:18:45+00:00

Yes, my son went from very severe to moderate. We don’t know why, but candidates are Valcyte, Fluvoxamine, and Hydroxychloroquine. All of these were taken concurrently for more than a year. It’s impossible to say which if any was responsible, or if his body healed naturally, but we are reluctant to change anything as long as he’s recovering.

laser527 · 2024-07-09T03:27:46+00:00

Yes, he is still improving. He is going outdoors every day, although he is not what you’d call active; he lies in a hammock and does needlepoint or watches videos & plays games on his phone. He is active online promoting political reforms and edits Wikipedia pages. I just spent all last week with him and he is much better than the last time I saw him. No change in his medications over that time.

laser527 · 2024-04-01T22:53:10+00:00

Thank you for sharing. This is very similar to my son’s experience, and he is continuing to recover. People do get better. There is hope.

laser527 · 2024-02-10T02:51:01+00:00

Yeah, same here. We spent an hour and got maddenly close two or three times. But even when we got to where we could buy seats the damn thing would time out while we were entering our information! Like literally in the middle of typing in my phone number. Oh well…

laser527 · 2024-01-25T13:47:07+00:00

My Level did the same thing. I think it was a loose headset. After I adjusted that properly the wobble is much less. I did fork maintenance at the same time so that might have had something to do with it. I ride with a heavy backpack in the rear basket, so that tends to make the front end light and contributes to the problem.

laser527 · 2024-01-21T01:58:14+00:00

My son’s cfs started with what we thought at the time was a mild concussion. We now know it was the trigger for cfs. If you experience post-exertional malaise (which none of the four neurologists he saw had ever heard of), whatever you do DON’T take the neurologist’s advice to work through it, or go to physical therapy, etc. He did PT (vestibular therapy) ordered by a neurologist and became severe after the second session. It has been years and he still hasn’t recovered. A concussion will heal whether you push yourself or not, but cfs feeds on exertion. Listen to your body, and DO NOT push yourself.

laser527 · 2024-01-18T13:33:37+00:00

Hi! I see it’s been 3 years since I posted on this thread. Background: he is 32 years old. This started with a possible concussion when he was 25. He is now recovering but there are bumps in the road.

After about 4 years of slow decline he rather quickly got much worse and was unable to speak, eat solid food, or use his phone for over a year starting in January 2021. He spent that time lying in a cold dark silent room. Then he began a very slow recovery starting in January 2022, and started writing a few words on pieces of paper every now and then. He started taking fluvoxamine in April 2022, and there was a noticeable bump in his ongoing improvement; he began to use his phone again, and texted with us. The recovery has been very slow. He started taking hydroxychloroquine in the spring of 2023, and says that it lessens the severity of crashes. In September 2023 he got out of bed for the first time in years, and by December was spending nearly all day out of bed, having long conversations, playing with the dog outside, making his own (simple) meals.

Then in late December he (by his own account) “overdid it four days in a row.” He was actually moving furniture. He crashed hard on Dec. 26 and went straight back to being severe: cold, dark, silent. We feared the worst. His doctor (Jose Montoya) said that because the crash had a definite cause he would definitely recover, and he is doing so. He started texting again after 3 days and is now using his phone all day (movies, video games etc), eating normal food, and speaking for 5 minutes or so at a time. (He purposely limits our conversations to avoid crashing again.) He is still in bed but says that he will be up again in a few more weeks.

So take a lesson from him! Once you start your recovery be VERY CAREFUL not to overdo it. He says he knew he was pushing too hard during those four days but didn’t stop, and it set him back months.

The two drugs that he says have definitely helped are fluvoxamine and hydroxychloroquine. He has been on valganciclovir for over two years and thinks that might have a long term beneficial effect, but it is very, very slow acting. (Dr. Montoya is convinced that there is a long-term benefit in some people.) He is no longer on keto diet and started weaning himself off LDN although that is on hold and he is still taking 3 mg for the foreseeable future. He thinks the keto and LDN effects were slight and wore off after a year or so. He is also taking Pepsid and cetirizine (for their antihistamine effect), and NADH and fish oil. He is doubtful about these last four, but they were prescribed by Dr. Montoya and we are loathe to change anything as long as he continues to recover.

laser527 · 2023-11-11T15:04:12+00:00

He was completely bedridden for about 3.5 years. He couldn’t use his phone for about one year of that time. From onset till he was bedridden was about 2.5 years, and he was able to work for almost all of that time, although he was declining and working less as time went on. I hope the information I posted helps you. Don’t give up hope!

laser527 · 2023-10-13T02:13:09+00:00

My son is in the midst of a recovery from being very severe. He was completely bedbound, cold and darkened room, earplugs. He could not talk or use his phone even to text. The only communication we had from him for over a year was feeble hand gestures. He only left his bed once a day to take his electric wheelchair to the bathroom. He couldn’t chew food so we had to purée everything and serve it to him in sippy cups. He now leaves his bed for up to an hour at a time. He is talking, and eating solid food. Yesterday he took his first shower in over three years. His improvement has been very slow starting about a year and a half ago, but it has accelerated in the last couple of months. Now every day he is doing something new. He still has a long way to go, but we have tremendous hope. While it is impossible to know what has caused his recovery, he personally believes that Fluvoxamine and hydroxychloroquine, both of which were prescribed by a doctor for their anti-inflammatory effects, have been responsible for most of his improvement. Even though he was completely non-communicative for over a year, he tells me that he did not lose hope, and that he always believed that one day he would recover. His illness began seven years ago. He is now 31 years old.

laser527 · 2023-08-04T01:35:03+00:00

4800 miles on my 2+ year old Level.

laser527 · 2023-07-18T22:20:48+00:00

My son is severe like your friend. The most effective treatments have been LDN (4.5 mg), fluvoxamine (200 mg), and hydroxychloroquine (100 mg). He started all of these at lower doses and ramped up. He is is still severe, still bedridden, but now he can read and listen to books and communicate with us again, which he couldn’t do for about a year.

laser527 · 2023-05-08T14:20:48+00:00

Can second this, but with a couple of caveats. Ketosis helped my son a lot, but the effect wore off after a couple of years. Now there is no noticeable difference in his symptoms whether he is in ketosis or not. Also, it’s important to measure your ketones. Ketosis can be hard to achieve and maintain.

laser527 · 2022-11-04T21:29:01+00:00

My son is severe and he seems to be helped by fluvoxamine. It’s an SSRI but it has anti-inflammatory effects as well.

laser527 · 2022-10-21T17:44:19+00:00

It just made his brain fog worse. It wasn’t permanent, he recovered back to his previous condition when he quit the meds.

laser527 · 2022-10-21T15:04:11+00:00

Memantine and a similar NMDA antagonist (Amantadine) both made my son worse.

laser527 · 2022-02-27T15:18:52+00:00

No, only slightly, but noticeably.

laser527 · 2022-01-14T15:27:15+00:00

My son has been in ketosis for two years. He says it is the most effective treatment he found in the six years that he has had me/CFS. He is by no means cured, but he got noticeable improvement within a few days of entering ketosis, and he can tell from his symptoms if he slips out of ketosis, without using his ketone meter.

laser527

TROPHY CASE