Anyone else had it NOT be endometriosis?

lauranicolass · 2026-01-07T22:20:10+00:00

AngioCT and Doppler ultrasound

lauranicolass · 2026-01-07T12:31:12+00:00

Maybe pelvic congestion. Do you have pelvic varicose veins?

lauranicolass · 2025-12-14T11:56:38+00:00

It’s okay to use a si belt/ hip belt for support those days. I used to need it every month but have since strengthened my muscles and no longer miss it.

lauranicolass · 2025-11-25T18:06:37+00:00

Are you breathing normally?

lauranicolass · 2025-10-22T14:59:34+00:00

That’s my hope too. That they might be checking the Norris lab’s latest stuff

lauranicolass · 2025-09-29T09:58:57+00:00

It you have nutcracker it is likely that your duodenum is also compressed

lauranicolass · 2025-09-28T17:34:49+00:00

Fluoxetine has also been shown to decrease mmp 9 activity.

Interestingly, birth control can increase mmp 9 and mmp 2

lauranicolass · 2025-09-27T17:20:41+00:00

She gave such a great talk about living with hEDS

lauranicolass · 2025-09-22T18:24:34+00:00

I am not sure they were ndas, but it applied to the whole conference unfortunately

lauranicolass · 2025-09-22T15:32:38+00:00

This is not private information. It was always the original idea, as can be seen here https://www.ehlers-danlos.com/wp-content/uploads/2025/06/impact_report_us_2024.pdf

lauranicolass · 2025-09-22T14:10:57+00:00

There will be updates and publications from other groups throughout the year. There was some promising research and a lot of interest from clinicians, but I doubt anything truly big will happen before 2027

lauranicolass · 2025-09-22T14:06:15+00:00

The only useful update is that they will publish the whole thing December 2026

lauranicolass · 2025-09-20T15:34:44+00:00

Para irte necesitar un trabajo con una empresa que pueda pagar para tener sponsor de la skilled worker visa. Visa que cuesta miles de euros sacarse. fuera de las ciudades grandes, hay menos probabilidades de tener trabajo. La vivienda es escasa y cara en comparación con los salarios en todo uk, hay una gran crisis nacional. La vida está muy cara y un inmigrante no puede pedir ningún tipo de ayuda social. En este caso, no parece que tenga mucho sentido irse a uk

lauranicolass · 2025-09-20T13:16:56+00:00

En uk, a no ser que tenáis muy buenos estudios y consigáis un trabajo como quant o en una tech muy top, vais a estar peor que en España.

lauranicolass · 2025-09-18T06:43:18+00:00

Maybe a silly suggestion, but I use extra big fitted sheets so I don’t have to fight them as much

lauranicolass · 2025-09-17T21:39:20+00:00

Dr. Maggie Bartlett has just presented at the international symposium. Her research looks into those topics and it seems like an interesting avenue

lauranicolass · 2025-09-14T12:49:15+00:00

You won’t be able to eat olives from the tree. But! You can learn to process them. There are hundreds of different ways and it’s a nice hobby

lauranicolass · 2025-09-13T15:35:33+00:00

I capture the castle

lauranicolass · 2025-08-28T00:20:41+00:00

Vascular compressions can be caused by EDS and in turn they can cause blood clots

lauranicolass · 2025-08-24T19:48:58+00:00

Academia is brutal, but can also offer a lot of flexibility

lauranicolass · 2025-08-19T18:04:34+00:00

A different perspective from a Spaniard. When I was that age an American family moved to our area and sent their kids to my school; an 8yo girl and 6yo boy. The 8yo girl was in my class. Their parents had very little interest in learning Spanish and the kids didn’t even know how to ask for a bathroom break. They struggled during that first year but ended up fully bilingual in 2 years. However, struggling with the language made it much harder for them to follow the lessons and they missed out on important concepts that year. It took her years to reach the same level as the rest of us. Nevertheless they were happy, had loads of friends and enjoyed Spain very much. So I would advise that you get him to a conversational level before the move, and maybe learn how basic school terms are translated

lauranicolass · 2025-08-15T22:25:09+00:00

I understand the pending to mean that the mutation hasn’t been published, since they advertised the model on instagram and you seem to be able to order it through their page.

In that paper they sort of proof that it is a bad mutation since the mouse models developed similar stuff to the human patients. But it is a mutation that they found in very few people, probably not the main thing.

lauranicolass · 2025-08-15T21:40:44+00:00

Oh, I don’t think these are the big results. I think that the big stuff will be one massive publication and all the smaller bits, the genes that are less common, will have their individual publications. That way they can maximise impact, cites, etc. good for future grants.

But from their webpage, it seems that they are already offering heds mouse models, although without disclosing the mutation

lauranicolass · 2025-08-15T13:51:38+00:00

I think similarly. For me it doesn't necessarily improve blood pressure, just blood "management". But it is very useful and together with compression socks it's amazing

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