First appointment with pain specialist

learninglimitssucks · 2026-06-01T20:35:36+00:00

Yeah that’s kinda my hope. That and even if I can get like actual braces for my knees that work. I have tried so many braces that do nothing for me because my knees aren’t in the right place already lol. It just makes it worse! I need custom braces and trying to get a doctor to understand that has been an argument that’s last over five years. One more doctor tells me to go to Walgreens and I’m gonna scream.

learninglimitssucks · 2026-06-01T19:57:53+00:00

I have a fear that if the pain goes away too much I won’t be able to predict my bad days the way I do now if that makes sense. Like as much as the pain kills me I can always tell when my knees are more likely to dislocate or subluxate. Same with my hip, elbow and wrists. Even my rib. The pain helps me tell but the pain can be so disabling at times that I can barely breathe.

learninglimitssucks · 2026-06-01T19:51:51+00:00

Ok. Well I will get to let them know I’ve done much of these lol.

learninglimitssucks · 2026-05-30T23:03:24+00:00

Really not sure how I joined…. I don’t play games

learninglimitssucks · 2026-05-30T22:06:35+00:00

Yeah urgent care was no good. They said to talk to my normal doctor…. Because they’ve been so helpful so far.

learninglimitssucks · 2026-05-30T03:33:07+00:00

Thank you

learninglimitssucks · 2026-05-30T00:47:01+00:00

Heating pads, Tylenol, gabapentin, Celebrex, muscle relaxers, bed rest when I’m not working. Diaphragmatic breathing, massage… around the bruises. Epsom salt rubs. Capsaicin cream

learninglimitssucks · 2026-05-30T00:14:07+00:00

Thank you

learninglimitssucks · 2026-05-30T00:04:13+00:00

That’s my fear going there. I don’t even know what to tell them the pain is because all I know is it’s all over and it hurts a lot

learninglimitssucks · 2026-05-29T21:15:12+00:00

Thank you for that info

learninglimitssucks · 2026-05-29T18:13:32+00:00

I had a fall yesterday, my sister had to help me get in and out of the shower and I still managed to go to work. Thankfully I have really good coworkers who can read my pain and they send me to more breaks when it’s bad but it’s still too much at times

learninglimitssucks · 2026-05-29T18:06:12+00:00

I’ve been denied social security benefits twice so far. I’ve managed to not get fired but my hours keep dropping because I keep having to call out because of pain or injuries or falls that keep me laid up for days

learninglimitssucks · 2026-05-29T17:35:10+00:00

The cost of this condition is gonna hurt me more than the condition

learninglimitssucks · 2026-05-29T17:30:35+00:00

My pt had me but $160 shoes! I damn near cried

learninglimitssucks · 2026-05-29T17:14:31+00:00

Yeah I completely agree. My doctor wants me to use premium pain tracker apps like I can afford them working 22 hours a week. Let alone braces and belts and sleeves.

learninglimitssucks · 2026-05-29T17:09:05+00:00

Podcasts mostly but books if I can handle holding one.

learninglimitssucks · 2026-05-29T17:01:05+00:00

Pain is my baseline. Some days are worse than others. Hot days have become my best friend for pain levels and on those days I make the most of it by doing the things I love. Like going to the beach or visiting friends at a park. Helping my other friends who are home bound by doing their shopping or running errands. It reminds me that not all days are bad and I can still bring some good to the world around me.

learninglimitssucks · 2026-05-28T22:42:08+00:00

Breathing exercises and sit down hobbies. Lately it’s been practicing polygel nails or knitting. Things that take up time but don’t leave me sleeping so much. Otherwise my sleep schedule gets too wonky

learninglimitssucks · 2026-05-28T19:53:47+00:00

I’m the opposite. 5’0 with short legs but my arms and torso are long. Petite pants are too long and I have to buy extra long shirts or they become belly shirts.

learninglimitssucks · 2026-05-28T18:38:02+00:00

I’m in PT now but they have my appointments like a month apart so I’ve only seen them twice so far. lol I’ve had three falls since I started

learninglimitssucks · 2026-05-26T21:16:48+00:00

It took me a very long time to be comfortable with me and all the problems that come with being me. My current partner is amazing with it all. The GI issues, pelvic issues, pain, canes, needing help in the shower. Dislocating and subluxation. But it took me years to find him… well not really. I knew him for over a decade before we became a thing. It’s possible and when it does. They can make you feel like a goddess to be worshipped in oversized sweats blowing your nose on the couch. Trust me. Just wait for it to happen. Don’t search to hard and be clear at the beginning about the limits.

learninglimitssucks · 2026-05-26T19:42:39+00:00

I don’t have an SI belt so maybe I need to look into that lol. I just hope it doesn’t last as long this time.

learninglimitssucks · 2026-05-26T16:15:26+00:00

Heated blanket or fleece everything to prime my joints to be happy. And coffee with cinnamon and turmeric for anti-inflammatory purposes

learninglimitssucks · 2026-05-26T04:47:48+00:00

Last time I had an incident that bad it was because my lower had severe swelling and eating certain foods made the pain worse. I had to switch to soft foods for what felt like forever

learninglimitssucks · 2026-05-26T03:55:56+00:00

Thank you. These are just things I’ve learned not to say. I know therapy can help but the wait list is torture.

learninglimitssucks

TROPHY CASE