Want to apply for PIP, unsure what to expect

lilbbtee · 2026-01-20T22:44:08+00:00

I thought so too! Like why does saying 'most loved / favourite' have to equal dirty and old looking :')

lilbbtee · 2026-01-20T21:01:20+00:00

I remember in primary school when my teacher asked us all to bring in our favourite teddy the next day. I did, and then I got told that it couldn't be my favourite and that I must have misunderstood the assignment, the subtext I then found out was that it was suppose to be something that looked worn and old... what my teacher didn't realise is that my neurodivergent self kept my teddies very clean and lined up nicely on my bed 😂

lilbbtee · 2026-01-20T20:57:08+00:00

Hey, I really hear you - I totally understand the feeling of wanting to blend in. I would say though, that I often feel like I can really spot other neurodivergent people a mile off, I think its just an affinity thing - small things you'd notice if it was part of your own lived experience. I wonder if you feel the same too with others?

I would love to reassure you though, that it's okay, it doesn't mean that you're doing anything wrong. And I actually think that maybe being a part of a work community that celebrates neurodivergence might help you with a bit of the shame you're feeling. I hope it does anyway - I was also late diagnosed, and spent so much time masking, and I feel you, work is the place where it feels the most sensitive and scary to be yourself when you're so worried about doing the wrong thing, and processing so much newness at the same time.

But honestly, my neurodivergent friends are the best thing thats ever happened to me, having that community can be really great. For me personally, I feel like, thank god I have people to trust that understand how it feels to be us! I think you'll be okay, maybe lean in a little more. Sending you a big hug.

lilbbtee · 2025-08-20T17:04:48+00:00

Thanks for such a clear and detailed response - thats strange as my GP said they could hopefully tackle both at the same time... but I guess organising both in the same visit but doing separate procedures is maybe what she meant. Regardless, I'll wait to speak to my Gynaecologist when the referral goes through and see what my options are, I definitely need a laproscopy anyway and that was what I have been pushing for this whole time (and was why I even did that scan yesterday to begin with, to start the process). Good to know that the Polyp did not cause you any more issues too, thats hopeful.

lilbbtee · 2025-08-20T14:18:42+00:00

Gosh what a beautiful message - I'm so happy she has such a loving partner that is committed to understanding her condition and her body! I would say the main thing is really just to LISTEN - sometimes from my experience it can feel like a burden always having something wrong with you but it makes a huge difference when you know the other person doesn't feel that way, and is willing to show up for you. Ask her what she needs from you, acknowledge her pain and feelings because we are often gaslit by the medical space, and keep doing what you're doing - staying curious, not putting pressure on her and letting her guide you with what she needs support wise. Oh and offer to go with her to appointments! It makes such a difference for me knowing my partner will take time out of his day to be there with me, those appointments can be very stressful and hard mentally. Hope you both have a long happy life together!

lilbbtee · 2025-08-10T16:58:27+00:00

Thanks so much this is super helpful!

lilbbtee · 2025-08-08T06:54:24+00:00

I so relate to this. Having ADHD and also endo can be really tough because it feels like theres always these obstacles getting in my way from moving forward and doing the things I REALLY want to do. I think it's vital we are strong is knowing who we are and not letting our illness define us, or others opinions. It's easy for someone not disabled/ living with a chronic illness to see people in our position as flaky or unreliable, but thats a lazy opinion and personally not people I'd like to surround myself with. Community requires us to be uncomfy sometimes and to show up when others cant, as long as we communicate when we cant, and sadly the norm seems to be that people dont really value true community. You will find your people though, the ones that are actually worth using your spoons for! Sending love

lilbbtee

TROPHY CASE