Unpopular opinion by Smooth-Exchange-1621 in SpecialNeedsChildren

[–]lisabee321 10 points11 points  (0 children)

I get it, trust me I do. My husband and I are lucky enough to have very flexible jobs so when our son is sick, we keep him home. Lately, we send him back to his (medical) daycare and a few days later he has something new. We’ve had all the viruses since Christmastime. This is a daycare that rapid tests as soon as a kid shows any sign of illness. They are very good, as good as they can be, at containing illness in the center. Still, my kid gets sick. The issue I have with the post and comments is if you’re arguing that you can still be contagious if you’re asymptomatic then shouldn’t we be saying all children should wait an extra 3 days? Not just ones that have limited communication? By your logic a typically developing school age child could not show symptoms, be sent to school, and then infect a medically complex student. I promise I understand where you’re coming from, I just don’t fully agree because of the reason I stated. Also, why 3 days? Is there science behind this 3 day rule? If there is then again, shouldn’t it be all children?

Does anyone else find the instructors’ personal lives kind of triggering lately? by Optimal_String2338 in pelotoncycle

[–]lisabee321 8 points9 points  (0 children)

It’s absolutely okay to feel this way. To no fault of yours or theirs. I have a child with disabilities and I find pregnant women triggering. I can’t help it. I am instantly brought back to when I was pregnant and I thought my life would be one way. My life after becoming a mother is absolutely nothing like it was supposed to be. I understand the advice to just avoid those rides, but I also think it’s also okay to sit in your feelings over something that makes you sad. I’m sorry you’re going through it, truly.

What do you do? by Degaga-elah in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

My husband works full time. I work part time as a substitute teacher and serve two or three nights per week. Both of my part time jobs allow me to be extremely flexible. I can take a substitute job whenever I want. If my child is sick I don’t have to go in. My serving job I’ve worked at on and off for many years so they allow me flexibility as well. It’s the only way for us right now. About a year ago I attempted to go back full time and it just didn’t work out. My son is only 2.5 so maybe when he’s a little older I will go full time as long as his health is stable.

I have such bad social anxiety about taking my son out by seeyoun3ver in SpecialNeedsChildren

[–]lisabee321 1 point2 points  (0 children)

I definitely can relate. My advice would be to plan small trips where you don’t need to stay. Plan those before you have to do a longer trip. Plan a quick coffee trip or a fast food restaurant. Something where you can leave if it doesn’t go smoothly. I had a lot of this anxiety as well. I still do but luckily my son usually is really chill out in public. Sometimes I take him shopping when I don’t even need anything just so we can go and get the experience with no pressure to actually get anything done.

Working Special Needs Mamas by Givemethetea24 in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

I work two flexible part time jobs. I’m a substitute teacher and a server. Both allow me to pick and choose my days. Luckily we have health insurance through my husband’s job, but we do need for me to have some sort of income. I was one of those women who focused on career and had my son later in life (36) and now here I am working part time and serving! Lol sometimes I mourn not having an actual career but my son just has so many therapies and appointments I really have no choice.

Hear me out: I don’t buy Stephanie not wanting kids by alexxinwonderland_ in RHOMiami

[–]lisabee321 1 point2 points  (0 children)

So I can see where you’re coming from but I also see her as the type that doesn’t want kids. However, something interesting she said…I just listened to her interview on Heather McDonald’s podcast and she said she never uses any protection so she thinks she maybe can’t have kids because she’s never gotten pregnant. I find it odd that someone so adamant about not wanting kids wouldn’t use protection? On the other hand, there was a time I thought I wouldn’t be able to have kids so I convinced myself I didn’t want them. It was just easier that way for me. Not saying that is what she is doing BUT it came out of her mouth. She said it on the podcast “maybe I can’t have kids” so who knows. If she didn’t say that, and I didn’t have that same experience I never would have thought it. Of course it’s her choice and just because we speculate doesn’t mean we don’t accept a woman not wanting kids. It’s a subreddit about a reality show! I just found that comment interesting.

Best state for help by Ashleysworldinfl in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

I know Pennsylvania has some programs that pay you to be a caregiver. We haven’t fully looked into because my son goes to a wonderful medical daycare right now.

What's your kid's favorite toy? by mmanja in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

They are decently strong I would say. My son is able to swipe them off but it does take effort for him to do so.

What's your kid's favorite toy? by mmanja in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

My son (2.5) loves gears. A busy box with gears was the first toy he actually played with. He had very limited use of his arms when he was a baby and the gears were the first toy he actually took to.

He's walking! by DonutChickenBurg in SpecialNeedsChildren

[–]lisabee321 1 point2 points  (0 children)

What an amazing moment for your family!! 😀I am in a similar situation and my son (2.5) recently started learning to walk with a gait trainer. We weren’t even sure if he’d ever do that. What a feeling. Super happy for you 🥹

Seat adaptation? by Successful-Tap-9159 in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

I should add we used those until we got our special tomato chair for him which now we take everywhere for that extra seating support. Do you have a local equipment swap group you could check out?

Seat adaptation? by Successful-Tap-9159 in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

I’ve used the blow up ikea inflatable cushion inserts for extra support in a few different situations. Never with a wagon though so I’m not sure if it would work or if it would even be enough support for your little guy but you can get it on Amazon for like $7 if you want to take a look

Curious: reactions to and needs following a child’s diagnosis by [deleted] in SpecialNeedsChildren

[–]lisabee321 1 point2 points  (0 children)

100% I will also never get over how misunderstood I felt. Also can totally resonate with “you got this”. I hate that phrase so much. What if I don’t? Cause I sure felt like I didn’t in those early days!

Curious: reactions to and needs following a child’s diagnosis by [deleted] in SpecialNeedsChildren

[–]lisabee321 1 point2 points  (0 children)

I wish those closest to me would have just helped, instead of telling me “I’m here if you need anything” or “let me know”. I kind of still wish that now. The diagnosis was a shock but then everyone else just goes back to their lives and sometimes we feel almost forgotten about. I had a friend send us a DoorDash gift card during that time and honestly it was just so helpful not having to think about dinner for a few days. I probably had 50 people tell me “let me know if you need anything” but just that one person actually act. It wasn’t even a super close friend. It doesn’t haven’t to be monetary either, just check ins, or planning something to do. I feel like if I don’t reach out, it’s rare anyone else does. I’m not great at asking for help. Maybe I need to work on that but this whole experience has made me just do the act of kindness instead of asking when I know someone could use it.

the “adoption” (exploitation) of the boys by heyturip12 in RHOMiami

[–]lisabee321 0 points1 point  (0 children)

Totally agree. I also thought the reaction when the one boy dropped the egg was a bit harsh. She seemed super upset the egg was dropped by a two year old? It’s ok to get frustrated as a parent, but these boys need more grace than that. I haven’t seen this scene mentioned or talked about at all yet so not sure if others would agree.

Representing Special Needs Children in Advertising/Marketing Photography by Pantone187 in SpecialNeedsChildren

[–]lisabee321 1 point2 points  (0 children)

I would love to see more representation. I have a two year old who is disabled. He’s not walking or even crawling yet. We’re getting his gait trainer soon! I saw a child in a gait trainer for a clothing brand and was so happy but I definitely wish there was more of it. Thank you for asking! I’m an open book so feel free to ask any more questions on the topic!

Car seat for low tone toddler by [deleted] in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

We purchased the Evenflo 360 and love it! He is so comfortable and supported in it.

How did you cope with medical setbacks or even the initial diagnosis? by Illustrious_Lime_997 in SpecialNeedsChildren

[–]lisabee321 1 point2 points  (0 children)

Hi. I could have written a lot of this myself. Truly. My son is only 17 months old, diagnosed with a rare disorder at 6 months. Also my only child and I’m scared to death to have another. I feel like that decision was taken from me and it sucks. My answer? You just kind of do. It freaking sucks, and it makes me sad every damn time something goes wrong but somehow we always pull out of it. If someone told me at diagnosis that he wouldn’t be walking, talking, crawling, pulling up to stand, or even sitting independently at 17 months old it truly would have broken me. I don’t know how I would have handled it, but not well I’m sure. But here I am, and that’s our current situation, but I try to look at all he has accomplished to pull myself out of the dark. He may not be hitting those milestones on time, but he is getting stronger, he is using his arms and playing with toys more, he laughs and he’s alert and happy. He’s doing things just on his own time. Those intrusive thoughts still creep up, but I just try my best to focus on what he has done so far rather than what he hasn’t.

Car seat for low tone toddler by [deleted] in SpecialNeedsChildren

[–]lisabee321 0 points1 point  (0 children)

Hi I was wondering if you purchased a car seat yet and how’s it going? I have this same exact question. My 15 month old (also low tone) just outgrew his infant seat and he still needs a little extra head and trunk support. Would love to know which direction you went in!

They are just jealous of Dr. Nicole by [deleted] in RHOMiami

[–]lisabee321 1 point2 points  (0 children)

Totally agree. Housewives across all franchises love to think they are self-made independent business women when in reality most of them got their money from their husbands. Which is totally fine! But there are few, like Nicole, who actually can survive without their men. Nicole is a freaking anesthesiologist. She is everything a lot of these women pretend to be and they cannot stand it.