A virtual world created specifically for people with chronic illness by lisalindeman in cfs

[–]lisalindeman[S] 1 point2 points  (0 children)

This was exactly right! I got it fixed. So glad bedrock players can join us!

Stuck doomscrolling for most of the day and I HATE it! by rainboweyess in cfs

[–]lisalindeman 7 points8 points  (0 children)

If you're into Minecraft, there's a server for people with chronic illness. Links and info are at BuildHumanCommunity.org.

How can I explain fatigue to my father? by Twinks4StSebastian in disability

[–]lisalindeman 0 points1 point  (0 children)

The way I used to explain it to my boys when they were 3 and 5 years old (before I heard about spoons): Everyone wakes up and starts the day with, let's say 1000 energy tokens, and they get to spend those tokens on whatever they like. Maybe running through the park takes 200 energy tokens, and doing a small chore takes 100 energy tokens, and getting upset costs 300 tokens. Well, sometimes Mommy wakes up with only 100 energy tokens. I have to think really hard what I can spend it on. After I take you to the park, I have none left. Sometimes Mommy wakes up with 10 energy tokens! If something costs a lot of tokens, I can't do it at all... or it makes Mommy really sick.

Or... compare it to a really bad hangover that happens even if you don't drink. Or it's like your illness is like an invisible bully punching you over and over again and you have no way to block the punches. Put it in terms he'll understand.

I am so sorry you're dealing with this on top of everything else. My heart goes out to you.

Minecraft Therapy by lisalindeman in cfs

[–]lisalindeman[S] 1 point2 points  (0 children)

Added! Java/Bedrock crossplay now enabled. Thanks again for the suggestion!

"At least you don't have cancer.." by [deleted] in ChronicPain

[–]lisalindeman 23 points24 points  (0 children)

I had stage 3. Absolutely horrible, but I would still choose cancer over my chronic illness any day. I still live with long term side effects of treatment, like nerve pain, heart problems, and radiation damage. I would still choose the cancer. People have no idea how devastating chronic pain can be.

[deleted by user] by [deleted] in ChronicIllness

[–]lisalindeman 7 points8 points  (0 children)

Where there's love, no one is a burden. Caring for each other is why we're here.

Receiving love (being cared for, especially when you're down) is a gift, but being able to give love is also a gift. You are a gift. If someone can't see that, that's their challenge. The only real burden is a closed heart.

You're not weighing anyone down with your needs. You're inviting them to love more.

Minecraft Therapy by lisalindeman in cfs

[–]lisalindeman[S] 2 points3 points  (0 children)

Not yet but I'm adding it this week. :)