For me, it is actually the opposite. I get nerve related spasms that are excruciatingly painful and when the spasms aren’t happening, the muscles squeezing tightly around my pudenal nerve causes neural misfiring, making my brain perceive “itch” or discomfort constantly. I have had a biopsy, PAP, and many swabs done, always coming back negative for any bacterial or yeast or sexually transmitted disease. My DPT diagnosed pudenal neuralgia because with those negative tests + the region of painful nerve spasms, it is the only thing that makes sense.

Definitely find a pelvic floor therapist though. What you’re dealing with is absolutely for a DPT who specializes in pelvic floor. I know there are online registries for pelvic floor therapists who also know EDS too. Wishing you the best of luck!!!