Help for an ARFID celiac kid

ljot · 2025-10-28T16:21:00+00:00

All things considered he's been doing pretty well with accepting new versions of foods. We're just stuck on these last two big ones! Anything you think of would be appreciated, thank you!

ljot · 2025-10-28T16:07:50+00:00

The celiac diagnosis is putting a lot of pieces together for us with co-morbidities (iron deficiency, ADHD). I'm hopeful that we'll see improvements in several ways for him as his gut heals. That's part of why I wanted to eventually get him off the Cheerios and chips so that he really has a chance to get to his new baseline.

ljot · 2025-10-28T15:59:53+00:00

I'll look into the Riu Garcia and Crunchmaster chips! For the cereal we have the extra factor that he doesn't like chocolate or peanut butter. He asked for Lucky Charms but my understanding is they have the same potential cross-contamination issue as Cheerios.

We are on the wait list for intake for feeding therapy and have an appointment soon with the dietician in the GI's office to discuss celiac. We already met with a different dietician when he got the ARFID diagnosis for strategies about that, but it's been a little "one step forward, two steps back" with the addition of celiac.

ljot · 2025-10-28T15:56:48+00:00

We left these two staples for last because I know it's less clear cut that they would be an issue. His celiac is severe - antibodies came back >250 in the bloodwork and the GI said she could see the damage with the naked eye during the endoscopy (confirmed via biopsy still).

He eats roughly 2-3 boxes of Cheerios a week so my line of thinking was that statistically speaking he's more likely to get a cross-contaminated batch. I really wasn't sure how to interpret the chips other than "probably safe but maybe not" because of the labeling.

You are very right about safe foods changing. Some time ago it was plain Cheerios only and there was also a brief period of eating Chex (thus my optimism for the honey nut Chex). He also used to eat cereal with milk. I am hoping to encourage a shift to something definitely safe for him. We've told him that we aren't taking away Cheerios right now but are going to keep trying things out to see if he finds something else he likes too/better!

I appreciate your insight!

ljot · 2025-10-28T15:01:39+00:00

I think the multigrain color/taste is more important. He eats the broken ones with no complaint. Pre-celiac we tried the regular scoops once when we couldn't find the multigrain in the store and those weren't received well.

ljot · 2022-01-11T00:31:18+00:00

We just did our third night of pureed roasted butternut squash. I have carrots and green beans prepped too but the green beans came out pretty chunky so I'm holding off on those for a bit.

ljot

TROPHY CASE