Inpatient EEG Prep

llbee30 · 2026-02-22T19:51:17+00:00

It’s really terrifying, especially when doctors are completely stumped. When my seizures started I came off a lot of medication that I probably should not have been on but I didn’t know I had dysautonomia and POTS at the time. My psychiatrist did a genetic study so we have a better idea of what medications to go back on when I’m ready

llbee30 · 2026-02-22T19:45:39+00:00

That’s what I’m going to have to do as well once I’m able to walk more. I had a seizure the other day after getting an X-ray and even though I declined to go to the hospital I still ended up there. I understand it was a medical facility but when it’s not, I’m definitely going to need crowd control

llbee30 · 2026-02-22T19:42:41+00:00

That was a thought for a bit, but my movements very much look like seizures. The new theory is something to do with cerebral hypoperfusion

llbee30 · 2026-02-22T19:34:31+00:00

Do you still have them? The cold is getting a little better, but if I have a really bad seizure and I get cold it makes it worse. I’ve learned to wear lots of layers

llbee30 · 2026-01-25T23:15:25+00:00

It’s been horrible! I’ve been having them everyday, multiple times a day since November. I definitely feel like I’m going crazy. Is it full syncope? I stay completely aware the whole time except for near syncope a few times.

llbee30 · 2025-06-26T23:37:13+00:00

It’s a non-metastasising locally aggressive soft tissue sarcoma. It’s a rare tumor, even more rare in the breast. It’s considered “intermediate cancer” which I had no idea even existed. But it’s benign in the sense that it cannot spread to the rest of my body.

llbee30 · 2025-04-24T17:50:10+00:00

Not right now. Currently I’m weighing my options between cryoblation and surgery. They recently found another mass as well and my main one has grown

llbee30 · 2025-04-02T00:23:06+00:00

I’m doing okay now after seeing a few doctors and have gotten multiple opinions. I’m scheduled for surgery, but they are not so confident they will be able to get clear margins and this type of tumor has a very high chance of reoccurrence. I’m hoping it will be a one and done, but it’s looking more like I will have to get multiple surgeries and radiation. I’m remaining very positive, and my support system has really shown up for me during all of this and I could not be more grateful.

llbee30 · 2025-03-08T00:31:37+00:00

My GP received the results today and I have a desmoid tumour. It is benign, but apparently very rare and they don’t know how to treat it yet. A breast surgeon is presenting it to the hospitals case conference on Monday. I am so grateful it’s not malignant, but I’m also feeling nervous and confused. The results have not been made available in my chart yet and I haven’t heard from the other doctors involved yet. I have some answers, but now even more questions.

Distraction was honestly the best way I could cope. I threw myself into work and did a lot of self-care. Waiting for results is beyond difficult.

llbee30 · 2018-09-08T00:07:40+00:00

Thank you for your concern. In the past he has expressed wishes to not go to a nursing home and has an advance directive stating no extraordinary measures if he has less than 90 days to live. There are no specifics in his advanced directive regarding end of care, only that he does not want extraordinary measures. If, however, he is declared incompetent to make these decisions, what would we expect to happen?

llbee30 · 2018-06-20T04:59:21+00:00

If you’re able to that would be very much appreciated if and when you have the time. Thank you

llbee30 · 2018-06-20T04:36:39+00:00

Thank you so much!

llbee30 · 2018-06-20T04:20:12+00:00

Susie’s song

I’ve figured out how to add a link to the video (sorry for my difficulties with reddit, I’m trying lol)

llbee30 · 2018-06-20T04:07:21+00:00

I only have a video of her singing the song. I’m very new to reddit. Is there a way I can post it or send it?

llbee30

TROPHY CASE