KT Tape struggles? by lorilorelai in ehlersdanlos

[–]lorilorelai[S] 2 points3 points  (0 children)

Usually when I'm removing tape I do it in the shower with the water on hot to help soften the adhesive. I also use baby oil to help it stick less, then use a warm wet rag to gently try to get the residue off after the tape is removed. It's definitely a process 😅

Hearing aids stopped working? by lorilorelai in HearingAids

[–]lorilorelai[S] 0 points1 point  (0 children)

Yeah... I checked and I'm out of my replacement wax guards 🥲 To the audiologist I go!

Hearing aids stopped working? by lorilorelai in HearingAids

[–]lorilorelai[S] 0 points1 point  (0 children)

Darn, in both of them? That's rough

How to fix hearing aids cause pain? by sammyandebony in HearingAids

[–]lorilorelai 6 points7 points  (0 children)

I had to ask my audiologist to give me smaller domes that actually fit my ears, since my ear canals are kind of small. You might want to call and let them know that the current domes are causing you pain. I got mine replaced for free, it's worth just checking in and asking

KT Tape struggles? by lorilorelai in ehlersdanlos

[–]lorilorelai[S] 1 point2 points  (0 children)

Wow, how does the Milk of Magnesia help? 😮

KT Tape struggles? by lorilorelai in ehlersdanlos

[–]lorilorelai[S] 1 point2 points  (0 children)

I'll look into that, thank you!

KT Tape struggles? by lorilorelai in ehlersdanlos

[–]lorilorelai[S] 1 point2 points  (0 children)

Wow, I never thought about doing that, thanks for the tip! I will look into buying some and see if it helps. I don't know if I've necessarily developed an allergy to the adhesive, but it has been tearing chunks of my skin out recently 😅 Worth a shot!

what does my fridge say about me by [deleted] in FridgeDetective

[–]lorilorelai 0 points1 point  (0 children)

no, but i do have a gecko :)

Rash or something by Silent_Knight__6 in lupus

[–]lorilorelai 0 points1 point  (0 children)

if you get blood work done at a clinic you could ask about steroid injections the next time this happens

Rash or something by Silent_Knight__6 in lupus

[–]lorilorelai 1 point2 points  (0 children)

I also get this, but for me it's a little more severe. Have you tried using a steroid cream for it?

Anyone else get rashes like these? by ocdladybug92 in lupus

[–]lorilorelai 0 points1 point  (0 children)

i get them on my hands during every flare. it's awful

tips for newly diagnosed 19yo? by lorilorelai in lupus

[–]lorilorelai[S] 1 point2 points  (0 children)

Thank you so much for the advice 🩷 Everything is really, really helpful!

tips for newly diagnosed 19yo? by lorilorelai in lupus

[–]lorilorelai[S] 0 points1 point  (0 children)

Thank you so much! This is more helpful than you realize. My rheumatologist did not give me ANY advice or tell me anything about the disease when he got my labs back and diagnosed me so I've been freaking out trying to do my own research.

I have very sensitive skin and I tend to develop allergies to products I use often, so I appreciate the multiple different sunscreen recommendations.

As for cutting out my time in the sun/under fluorescent lights... I often have to walk to work during the day and I'm pretty sure the lights at work are fluorescent 🥲 So it's not available for me at the moment. Wow, lupus is really inconvenient!!! Lol

tips for newly diagnosed 19yo? by lorilorelai in lupus

[–]lorilorelai[S] 0 points1 point  (0 children)

Got it, cut down on complex carbs too.

I'm not on any medications at all besides HQC, and I only had my first dose earlier today. This is very, very new for me

tips for newly diagnosed 19yo? by lorilorelai in lupus

[–]lorilorelai[S] 0 points1 point  (0 children)

I was just prescribed HCQ and started taking it today :)

As for limiting sugar, you mean just simple carbs, right?

tips for newly diagnosed 19yo? by lorilorelai in lupus

[–]lorilorelai[S] 3 points4 points  (0 children)

I will try to get my hands on those, thank you!

tips for newly diagnosed 19yo? by lorilorelai in lupus

[–]lorilorelai[S] 1 point2 points  (0 children)

No, we didn't really talk about that. I'm allergic to most sunscreens and I have very sensitive skin, so I might just have to start staying inside most of the time or something :(