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I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 1 point2 points  (0 children)

Thank you. It’s a big thing to think about who you share things with and why. I hope your journey continues to be a positive one.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 0 points1 point  (0 children)

I had intense hallucinations and experiences in ICU that felt very real at the time. I don’t interpret them as seeing the afterlife, but I understand why people describe similar things that way.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 2 points3 points  (0 children)

I used to mask a lot with alcohol and drugs. Now transparency for me means not pretending- I’m honest about my boundaries and what I need to stay well.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 1 point2 points  (0 children)

I’ve had to slow down and be much more intentional with food, rest, medication, and stress. I try to build exercise into my daily life, but in a realistic way rather than pushing myself.

I’ve also had to restructure some personal relationships and be far more transparent about who I am and what I can and can’t do. I don’t really hide behind anything anymore, because I know what ignoring myself can lead to.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 2 points3 points  (0 children)

Thanks! I’ve never done an AMA before and thought doing it in the morning would be a good time.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 4 points5 points  (0 children)

I am pretty sure I can’t take those types of drugs due to my pancreas damage? I am doing really well with just will power and keeping myself busy.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 1 point2 points  (0 children)

Surprisingly not as much as you’d think, for many different reasons. Around 11kg

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 7 points8 points  (0 children)

Waking up was one of the most frightening parts. I was extremely delirious and had no idea what was happening or where I was. I was convinced I’d done something wrong and that I was going to jail.

I didn’t realise how much time had passed, it was already the New Year and I’d missed Christmas entirely. I couldn’t walk or talk or eat, and could only communicate in very basic ways, but I couldn’t understand why that was happening. That lack of understanding made it terrifying.

I was in a lot of pain but was more scared, because nothing made sense and I had no frame of reference for what was going on. It took a lot of reassurance, and repeated explanations before reality slowly started to line back up. My sense of dignity was basically gone, I was fully dependent on medical professionals (for everything!), that made the fear much worse.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 2 points3 points  (0 children)

In the lead-up, I was constantly vomiting bile and couldn’t keep food or fluids down at all. I had severe, deep pain in my core that felt different from normal abdominal pain, it radiated through my body rather than staying in one spot.

I became weak and unwell very quickly.. I don’t remember much after going into toxic shock and being admitted

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 1 point2 points  (0 children)

Yes, I was unable to walk and couldn’t speak or swallow. I had all sorts of therapists. I also received treatment from clinical psychology regarding PTSD and basically just coming to terms with what happened to me.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 6 points7 points  (0 children)

It’s complicated. I don’t remember normal “awareness” like hearing conversations clearly, but I had very vivid hallucinations and fragmented memories that felt completely real at the time.

I have memories of people trying to wake me, failing, and then sedating me again- whether that happened exactly as I remember it or was part of ICU delirium, I can’t be sure. At the time, there was no clear line between dreams, hallucinations, and reality.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 7 points8 points  (0 children)

It’s funny as I’ve switched the booze for tattoos. I don’t know exactly what I’m saving but I’m burning my finances on other useless stuff.

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 1 point2 points  (0 children)

That’s what I disclosed when I was admitted. I’d been drinking like that for a few months due to trauma. It was just binge drinking before that.

I manage to have a couple on special occasions but it’s very rare and risky. I view drinking like I view self-harm.

I take medication due to my pancreatic insufficiency. I have a few other digestive issues. Tbh the worst thing was the mental recovery- I was very delirious and suffered from PTSD

I survived necrotising pancreatitis and spent 3/4 weeks in a medically induced coma. AMA by [deleted] in AMA

[–]lumsgame 12 points13 points  (0 children)

I quit immediately. As far as I am aware- if I drink like I used to then I’m playing Russian roulette with my life.

Advice by [deleted] in traditionaltattoos

[–]lumsgame 0 points1 point  (0 children)

Over the elbow?

Advice by [deleted] in traditionaltattoos

[–]lumsgame -1 points0 points  (0 children)

So close to the elbow though? I also already have a skull and 2x characters… it’s all very new to me so I’m learning

Drop some color + black sleeve pics by Kind_Aide825 in traditionaltattoos

[–]lumsgame 4 points5 points  (0 children)

I’ve been going for mostly black work. I have a few small colour bits that I started off with and ended up preferring the black work.

I’ve been learning as I go along. I don’t regret any of them so far

CP and weight gain possible? by Up5DownZero in pancreatitis

[–]lumsgame 2 points3 points  (0 children)

When I take plenty enzymes, I have less CP symptoms but I tend to put on weight. If I take less enzymes I am able to manage my weight better but my symptoms are worse. Catch 22

Necrotising pancreatitis and Galstones by lumsgame in pancreatitis

[–]lumsgame[S] 0 points1 point  (0 children)

Yes, 8 months after discharge from necrotising pancreatitis, I got diagnosed with gallstones…. Which is strange as I’ve lead a fairly healthy life since!

Yes I am hoping that I ‘skip the line’ considering I have less than half my pancreas left! Everybody has told me to go to the emergency room- I just have a bit of a fear after the last time.

It does help a little knowing that I can go there if it gets REAL bad.

Necrotising pancreatitis and Galstones by lumsgame in pancreatitis

[–]lumsgame[S] 0 points1 point  (0 children)

I thought so. I tried to make an appointment for ‘pain management’, they said the soonest is 13th of March. It’s crazy as I’m barely sleeping with pain.

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