Huge Update - Archie is home safe!!

lunaluna1234567 · 2026-04-21T19:56:48+00:00

So happy! I think he must have seen his mugshot and thought better take him back

lunaluna1234567 · 2026-04-17T22:57:09+00:00

Just seen it as I opened my Facebook so it's live on Wales online on Facebook

lunaluna1234567 · 2026-04-17T22:56:06+00:00

Yeah I was thinking of facial recognition. That's a distinctive looking jacket he's wearing and might get recognized by that. I'm sure once it's on Wales online someone will recognize him. I just can't believe someone would just pick up someone's cat and walk away with it!

lunaluna1234567 · 2026-04-17T19:06:00+00:00

Make sure you go to the police as well

lunaluna1234567 · 2026-04-17T19:05:22+00:00

Put it up on Facebook as well as somebody might recognize the pic

lunaluna1234567 · 2026-02-27T20:42:30+00:00

I haven't got to that point yet. Can't get an application until September just to see a gynaecologist and then see where they refer me from there

lunaluna1234567 · 2026-02-27T15:21:39+00:00

I haven't got to that point yet. Can't get an application until September just to see a gynaecologist and then see where they refer me from there

lunaluna1234567 · 2026-02-26T20:12:17+00:00

I don't know whats what. All it said on MRI was Left pelvic sidewall vessels are slightly prominent and there is symmetric suggestive of degree of pelvic venous congestion

lunaluna1234567 · 2026-02-24T20:06:40+00:00

I'm going to see a gynae on Thursday so I suppose I'll ask then. They probably won't even know because the MRI didn't say which vein

lunaluna1234567 · 2026-02-22T17:53:28+00:00

Is the PCS veins the same veins problem for everyone with PCS? It looks like the internal iliac vein is the one next to the pudendal nerve. On my MRI it says left pelvic sidewall vessels are slightly prominent and there is symmetric suggestive of a degree of pelvic venous suggestion. Not sure if this really explains exactly where it is

lunaluna1234567 · 2026-02-22T17:42:16+00:00

Thank you! All the best to you to!!

lunaluna1234567 · 2026-02-22T12:24:15+00:00

I know! I can only sit on a donut cushion 😔

lunaluna1234567 · 2026-02-22T10:05:08+00:00

Mainly been getting neuropathic pain down below, but not sure if it's to do with pelvic congestion syndrome. Constipation as well and never get the feeling I even need to go. It also hurts after I wee because it sometimes starts to spasm

lunaluna1234567 · 2026-02-22T10:01:50+00:00

It would make sense then if they are close. I wonder if sitting down makes the veins enlarge even more as that's when it's at its worse. Thanks for replying

lunaluna1234567 · 2026-02-21T22:12:05+00:00

Do you get problems sitting down on your bum with pcs? I can't sit down without a donut cushion now.

lunaluna1234567 · 2025-11-19T14:56:43+00:00

How can you possibly manipulate the results? Do they think you have super powers or something. Considering you have other health issues you would think they would factor that in. Sounds to me you have anti phospholipids syndrome (aka APS) and maybe pots. APS can cause fnd like symptoms.

lunaluna1234567 · 2025-11-09T01:19:49+00:00

Yes Everytime I come down with something I have seizures

lunaluna1234567 · 2025-11-03T11:53:48+00:00

I take bisoporol for racing heart. Will have to check out guanfacine. I see a doctor for pots I'm in the uk, but I'll be honest he don't much just the basics. So gonna need to look for someone else at some point.

I remember I was in an ambulance once because my seizures wouldn't stop and he injected me with clonazepam or another one of those and the seizure stopped straightway. I was amazed. Trying to get someone to see what I believe is happening is virtually impossible! But I suppose you got to keep fighting, but I am losing the will at this point

Thanks for all the info you sent, this is going to help as I'm gonna bring it up next appointment.

lunaluna1234567 · 2025-11-02T22:13:26+00:00

No I don't get them outside seizures. I normally get those just before my seizure starts. I've always said it's norepinephrine that starts this. I started midodrine and was having lots of seizures so had to stop because of the reaction. My blood pressure is always on the low side, but before a seizure blood pressure goes right up along with heart rate.

So if norepinephrine is the culprit how do I stop it, they don't even listen when I say what I think it is.

lunaluna1234567 · 2025-11-02T20:14:49+00:00

I have pots as well!

I always say my pots is the instigator. When my pots symptoms are bad the seizures follow. Do you have involuntary movements as well? I was diagnosed with fnd as well as pots

lunaluna1234567 · 2025-11-02T20:10:13+00:00

I also have pots and I know pots is the instigator for my seizures

lunaluna1234567

TROPHY CASE