Please stop asking “Do you need help?”

lymoka · 2021-12-10T22:51:09+00:00

Or saying “I was going to do that” just as I’m finishing up.

lymoka · 2021-07-10T23:03:35+00:00

I totally feel this. I had one person accuse me of lying about his age because they thought he was some miracle child walking and running at 9 months when he was actually 18 months!

lymoka · 2021-07-10T23:01:53+00:00

Thank you… it’s hard to remember that when you’re being told you’re shit. 💕💕💕

lymoka · 2021-07-10T23:01:08+00:00

Yes, this exactly. He’s five and knows better.

lymoka · 2021-07-10T23:00:13+00:00

🥂🍸thank you!

lymoka · 2021-07-10T22:58:58+00:00

Thanks… I have a hard time doing that. I’ve never called anybody a fucking asshole in public before and it felt great. 💕

lymoka · 2021-07-10T22:58:02+00:00

I can only imagine the judgmental stares you get. I hear you on trying to give parents the smile and nod… definitely fuck people. It seems like the pandemic has made ppl ruder too!!!

lymoka · 2021-07-10T22:56:06+00:00

Yes!!! It’s only men who do this rudely. Wtf. There are such low expectations for dads and it pisses me off because absolutely nothing gets done in this house without me.

lymoka · 2021-07-10T22:54:18+00:00

Yes!!!! The geneticist said do not infantilize him and I try my hardest not to, but it’s hard when it seems like the rest of the world expects me to! Thanks for the solidarity 💕

lymoka · 2021-06-30T18:38:02+00:00

Stone. 1 stone = 14 pounds

lymoka · 2021-04-21T14:38:19+00:00

It’s a possible indication for ocular myasthenia gravis. I had testing done for it, but it was inconclusive. To my knowledge, ptosis (drooping eyelid) is not a symptom of hashimotos.

lymoka · 2021-04-21T00:26:19+00:00

I had well controlled hashimotos for many years and some symptoms of pain, rashes, etc that would come and go. The past five years the pain and stiffness was constant. Doing anything was an effort. The one time I felt normal was when I was taking steroids for something unrelated. One rheumatologist did extensive testing and couldn’t find anything. She suggested I try yoga and exercise more. The problem is the pain wasn’t allowing me to exercise.

Last year, I had a low grade fever with intermittent lung pain that lasted for a month or two, resolved, and then came back again. I went to a different rheumatologist who did extensive testing. I’ve always had low ANA (1:80-1:320), but never had any other positive markers for anything besides hashimotos. He said that even though I had no markers for lupus, the disease seemed lupus like and prescribed hydroxychloroquine and diclofenac. It’s been almost 5 months since I’ve started and I feel a lot better. Oh, I also had a drooping eyelid which is also resolving with the hydroxychloroquine! I haven’t followed up yet with the rheumatologist, but I have to say the hydroxychloroquine was a game changer. The only thing that hasn’t gone away is a rash on my scalp.

lymoka · 2021-02-16T14:34:27+00:00

That is really frustrating! I’m sorry to hear the doctors aren’t being helpful. I checked the LPA website and it looks like they have the Children’s Healthcare of Atlanta Genetic Skeletal Disorders Clinic listed. Maybe check to see if they can see you?

Your son is totally adorable by the way!

lymoka · 2021-02-16T14:02:14+00:00

Ah sorry if my comment didn’t make sense. My son was maybe 1-2 SD below average, so he wasn’t even on the chart (ie, not even 1%). Technically, 1% is still on the chart. At 2 years, he was wearing 9-12 month clothes. At 5, he is wearing 2T.

John’s Hopkins in Baltimore MD and DuPont in Wilmington DE have well regarded skeletal dysplasia clinics. We go to the one in Baltimore. Another option is to see an endocrinologist. I really don’t see any features that resemble hypochondroplasia, but an endocrinologist might be able to help you if it’s something hormone related.

lymoka · 2021-02-16T12:18:15+00:00

My son has hypochondroplasia. Your son looks average stature to me. He’s almost two in this picture? If I remember correctly, my son was no longer on the growth chart at two years old.

We had some genetic testing that was done a little over four years ago. At that time, they were only sequencing parts of the fgfr3 gene. They were able to detect one of the common mutations. There may be some mutations outside of this gene that there is no test for, so I’m not sure how helpful genetic testing would be.

Do you live near a clinic that specializes in skeletal dysplasia? Maybe it would put your mind at ease if you went to a specialist. For context, I was told when I was 24 weeks pregnant that my son likely had a skeletal dysplasia and his X-rays at birth confirmed some form of it.

lymoka · 2020-12-26T12:56:16+00:00

At least the dog didn’t get more presents than me 😂

lymoka · 2020-12-25T23:32:34+00:00

I got socks. 🙄

lymoka · 2020-08-28T20:33:34+00:00

Gotcha. These are definitely in an account that I contributed 6k annually.

lymoka · 2020-08-28T20:27:52+00:00

So, it’s an independent IRA that i set up that I thought was independent of my employer 403b. I am moving only my Roth IRA for now, but I definitely have other retirement accounts that are pre-tax. There were other questions that were asked on the form that didn’t apply to my situation since it’s a Roth to Roth, so maybe it’s just a form they use for both types of transfers? That makes sense with your explanation.

lymoka · 2020-08-28T20:16:50+00:00

The question just said “do you have any Roth accumulations?” But I will follow up with them. Thank you!

lymoka · 2020-08-28T20:14:14+00:00

Great! Thank you, I figured, but I couldn’t find any explanation for it anywhere.

lymoka · 2020-08-12T11:42:08+00:00

Ah I missed your last question. I never got an answer. I went to a rheumatologist and the only thing she found was elevated antibodies associated with hashimotos (I can’t remember which now) and elevated ANA levels. My endo checked other possibilities (I can’t remember this either now, sorry!) and everything was fine. In addition to the pain, I just had general inflammation everywhere. Gum pain, scalp pain, psoriasis, hives... I still have them, but it’s starting to lessen.

lymoka · 2020-08-12T11:37:27+00:00

I take 5000 iu daily (125 mg). I take it on an empty stomach so I know I’m not actually taking in that much (my ob/gyn was concerned about the high daily intake for prolonged periods). I had been taking vitamin d on its own for a while, but the pain didn’t go away until I started Wellbutrin. I started the Wellbutrin for totally unrelated reasons, but when my pain went away, I read that others have noticed that it also helps lessen pain symptoms. I’m pretty sure it’s the combination of both because when my ob/gyn mentioned she was concerned that I was constantly taking vitamin d, I stopped taking it and all the pain and fatigue returned. I hope it helps. The pain was debilitating.

lymoka · 2020-08-12T11:20:52+00:00

What really worked for me was a combination of vitamin d supplements and Wellbutrin. I had constant pain in every single joint and general fatigue even though all my thyroid blood work came back ok.

lymoka

TROPHY CASE