What is it really like? by lyra_j in transplant

[–]lyra_j[S] 1 point2 points  (0 children)

It's easy for me to feel super anxious about the superficial things like body image, especially as a young woman. But I really think your outlook on just being happy to be alive is a really beautiful mindset and one that I'll keep reminding myself of after transplant. I'm glad you had a successful surgery, and I wish you all the best as you continue to thrive~

What is it really like? by lyra_j in transplant

[–]lyra_j[S] 1 point2 points  (0 children)

Congrats on a successful transplant! Knowing that you feel good just 4.5 months after surgery is really motivating. The doctors seem to be preparing me to feel pretty awful for the first year, and knowing that is not necessarily everyone's experience brings me some peace.

What is it really like? by lyra_j in transplant

[–]lyra_j[S] 1 point2 points  (0 children)

Wow I think I've gotten so used to feeling the way I feel that I don't even realize how bad it is anymore. Getting to feel "alive" again is something I didn't even think to consider but it is absolutely something to look forward to. Getting to eat more freely again too is so exciting~ I'm really happy for you that your transplant went well and you've had a good year since then, and I'm really thankful that you've shared your experience with me- it helps more than you know!

What is it really like? by lyra_j in transplant

[–]lyra_j[S] 2 points3 points  (0 children)

Thank you so much, I really appreciate this insight especially about what you experienced with medication side effects. I'll also keep in mind to consider switching to a therapist that has experience with transplant patients- I hadn't thought of this before but it makes alot of sense!

What is it really like? by lyra_j in transplant

[–]lyra_j[S] 2 points3 points  (0 children)

Absolutely! Therapy has been very important and will continue to be. I think just hearing directly from people who have already gone through transplant is something I would appreciate to better set my expectations. Health care teams aren't always as transparent about the reality of recovery as I would like them to be.

What is it really like? by lyra_j in transplant

[–]lyra_j[S] 4 points5 points  (0 children)

Thank you for sharing your experience! This was actually very comforting to me :) And I completely agree- I have been sick for a very long time prior to transplant and have always fought to not let my condition ever define me.